Results from last week's tests are back, negative for heliobacter pylori, so that confirms the need for and informs what (or what will not be explored) in the gastroscopy.

Keep fighting strong and advancing the knowledge of
#Fahrs

Well, today's Neuropsychiatry appointment went swimmingly. Loads of positive progress/stability, I'm now on a two year self referral back of needed.
It goes to show that it is possible to effectively manage symptoms of #Fahrs Disease,
Now, back to the other symptoms...

I'm at that point where my PhD thesis in a single keeps making my laptop go wonky 😅

A lovely sunny day, taking time to have a short break between working on refinements on my thesis progressing in line with my action plan, planning out the week ahead, and thinking on the campaign strategy to fund the world's first #PhD into #Fahrs Disease.

Very grateful for the ongoing support of Smithers Purslow for FahrBeyond it is truly appreciated

Sometimes, we invest our love and energy into things where it won't be reciprocated, channel that into other activities that will have a positive impact, and people who can provide that back.

Time is the most precious currency we have. Invest it wisely, spend it on activities that matter and people who appreciate it.

On #NationalChildrensDay and every day, we're passionate about giving young people the chance to discover the life-changing benefits of reading.

Research shows reading can have a big impact on children's educational and social mobility.

Find out more:

booktrust.org.uk/what-we-do/imp…

A moment of philosophical introspection, one which many of us can well understand

Watched an interesting series on Netflix called Postcards

Some easy watching

Collecting my medication from the pharmacy increasingly feels like I'm taking half the stock.

This isn't including two others I take!

At least it keeps me going #Fahrs Disease #RareDisease

Well, this weather is certainly making things grow outside, I need to cut the lawn, attack the weeds, and trim the bushes. However, it is still a bit too wet from the recent rain.

Proud to be leading a project to help ensure that #LGBTQ + students at Nottingham Trent University to have better outcomes, experiences, and greater sense of belonging.

Thank you to all those colleagues involved in the project, you're amazing.

Standing proud for #IDAHOBIT2024

Summer School applications are OPEN 🚨

Join us this summer for four days of talks, demonstrations, and interactive sessions on brain disorder research at our world-leading centre🔍🌍

📅 8 - 11 July 2024
📍 Cardiff University
🔗 Apply now: cardiff.ac.uk/centre-neurops…

We're at the 10 minute countdown ⏰ to #LTHEChat 294 with Annamarie McKie

Fill up the mugs and snack bowls, and get ready to chat!

📢Final call for papers for our annual research conference! Make sure to get your submissions in by 23:59 (GMT+1) tonight! Full details on our website srhe.ac.uk/srhe-internati… #SRHE2024 #callforpapers

🎉 We are delighted to let you know that the 15th Issue of the Students as Partners can be found at:

mulpress.mcmaster.ca/ijsap/issue/cu…

Altogether, 42 students and 44 staff/faculty from 13 countries contributed to this issue of 287 pages. Check it out!

Looking forward to #LTHEChat on Wednesday at 8pm BST with Annamarie McKie to discuss 'Enabling meaningful reflecting on teaching: what can we learn from talking to creative arts lecturers?' lthechat.com/2024/05/09/lth… via LTHE Tweetchat

And so the investigations have begun, test 1 this morning. Now a two-four day wait before the results inform test 2.

The joys of living with a #RareDisease #Fahrs

The NTU LGBTQ+ Health & Wellbeing research group (LGBTQ+ Research @ NTU) are holding an event on the 18th June to support and strengthen the work we do with external partners. If you are interested you can sign up here: ntu.ac.uk/about-us/event…