Ataxia UK accredited Specialist Ataxia Centres are centres of excellence, where adults & children with ataxia receive the best possible quality of care & a co-ordinated service combining diagnosis, treatment, support & research.

For more information, see: bit.ly/3I0Wbac

The ballot for the 2025 TCS London Marathon is now open!

Deadline: You have until Friday 26 April to enter. Enter now: bit.ly/3UbMY3G

Ataxia UK will cover the cost of your application if you are successful! Marathon Day next year is Sunday 27 April 2025.

A huge shoutout goes to Karen Bristow for conquering the Scunthorpe Half Marathon last month.

Running 13.1 miles is no easy feat, and she helped raise an amazing £170 for #AtaxiaUK in the process.

Well done on your fantastic achievement and raising money for a great cause! 👏

Massive congratulations goes out to daughter and father duo, Kathryn and Kevin Dolan, as well as Hamish Smeaton for running the Manchester Marathon over the weekend. 🏃‍♀️ All three should be incredibly proud of themselves for their dedication and efforts! 🥇

The very best of luck to all the incredible runners taking part in the #LondonMarathon tomorrow! Your dedication and hard work is truly inspiring! You’re making a real impact to the lives of those living with #ataxia . Please support our team here: justgiving.com/campaign/londo…

Are you a thrill-seeker looking for adventure?

Why not take part in a skydive for #AtaxiaUK ? Conquer your fears and make it a life-changing experience for both yourself and for the lives of those living with #ataxia . Contact [email protected] to find out more!

Good luck to Mark Holdsworth & his friends who are embarking on a massive cycle ride tomorrow in order to help raise vital funds for research into #ataxia . They'll be pedalling all the way from Ouistreham, France across to La Rochelle. That’s about 600kms! bit.ly/43XFJke

Researchers at King’s College London are recruiting participants for a remote study on online peer support for those living with long-term conditions. You'll complete two eligibility screenings. More info: bit.ly/4aRA1Tg

#AtaxiaUK #ataxia #Research

Mice treated once per day with SBT-589 showed significantly reduced thickening of the heart muscle (known as hypertrophy) and delayed mortality compared to mice not given SBT-589.

Read more here: bit.ly/3W5PVoK

#AtaxiaUK #Research #FA

Scott Forsyth kicked off his astounding year of fundraising by tackling the Paris Marathon last weekend! Such a fab feat, but what’s even more impressive is that’s just the beginning of a whole line-up of physical challenges he’s got coming up this year. justgiving.com/page/scott-for…

Come put on your Scottish flair & join a sea of kilted walkers soaking up the stunning Scottish scenery by taking part in a Kiltwalk. Kiltwalks are fun & inclusive events where you can challenge yourself & help make a difference. Email [email protected] to find out more!

This adds to the £70m provided by the government via the Medical Research Charities Early-Career Researcher Fund over the past three years, which has already supported 1,600 researchers to date.

Read more here: tinyurl.com/253b579c.

Join us for our next Carers support group meeting on Thursday 18th April from 14:00-15:30. Exchange useful advice on caring for someone with ataxia while connecting with other carers.

Head over to the link in our bio to register: bit.ly/3P3DFAV

#AtaxiaUK

There is still time to get yourself and your loved ones involved in the Ataxia UK 2024 Spring Raffle and be in with the chance of winning one of several top prizes!

Buy your tickets online at ataxia.org.uk/get-involved/s…

#AtaxiaUK #ataxia #SpringRaffle #Tickets #2024 #Community

Join us from 11:30 to 12:30 for a session run by Sonia Forde, a Pilates instructor with over 17 years of experience.

There's a limited number of places available for this session so don't delay in signing up! Register here: bit.ly/49djpnS

#AtaxiaUK

Our friend, Louise, has kindly shared her story with us. Here is your chance to read her journey!

'Ataxia is tough, but with confidence building, you can be in charge. Be amazed and inspired by your courageous resilience.'

Read the full story here: ataxia.org.uk/your-blog/adap…

Join us for our next Carers support group meeting on Thursday 18th April from 14:00-15:30. Exchange useful advice on caring for someone with ataxia while connecting with other carers.

Head over to the link in our bio to register: bit.ly/3P3DFAV

#AtaxiaUK

The pharmaceutical company Design Therapeutics announced on 19th March 2024 their new drug formulation of DT-216P2 for Friedreich's ataxia (FA) as part of their Gene-TAC programme, which has shown improved absorption and safety in non-clinical studies. bit.ly/3U40Huq

👣John Jarvie is an #ataxiahero who has been doing a 500-mile walking challenge since January 8th till the end of April to raise money and awareness. John is inspired by his wife who has had ataxia for years. That’s true love for you! 💓

Support him here:
justgiving.com/page/john-jarv…

Join us from 11:30 to 12:30 for a session run by Sonia Forde, a Pilates instructor with over 17 years of experience.

There's a limited number of places available for this session so don't delay in signing up! Register here: bit.ly/49djpnS

#AtaxiaUK