I have been opening up the weightlifting gym at my kids school. My daughter and I have been walking on the treadmill. Today I did a solid 5 minute walk, which is great for me. Lifting some weights with my son. Drs said I wouldn’t be able to lift again. #ChronicPain #Fibro

My daughter turned 13 in December and has been dealing with a lot of pain. The pain clinic has been helping her. Her #migraine meds are working. She joined the school basketball team. Her school has been so supportive. She is the manager on her team. I am so proud of her. #EDS

Delighted to testify today on the danger of 'quality' metrics that end up doing harm.

Here’s a degrading pain contract that someone posted on FB. If you need an example of ableism in this field, here ya go.

#DEACenteredCare #Pain #DisabilityJustice #Ableism

“Until medicine catches up, however, those disabled by CFS and long covid will continue to suffer and have limited life choices.” #Fibro myalgia #ChronicFatigue #LongCovid #ME #CFS #FMS #Fibro #Chronicillness #ChronicPain apple.news/AUpJYWOtqRBWKw…

We surveyed 3,500 patients on the term 'pain catastrophizing'

• 1/3 of those who had heard of the term said it was problematic or stigmatizing.

• Of those, 12% reported stigma from the term.

We concluded: 'Clinician education on patient-centered terminology may improve care…

Open access article:
jpain.org/article/S1526-…

On the topic long of long term opioid prescribing, this study shows clearly that opioids help some people. The author is John Farrar, President of USASP. I will link to his discussion below.

journals.lww.com/pain/fulltext/…

Thankful to be home safe

There's a roof up above me
I've a good place to sleep
There's food on my table
And shoes on my feet
You gave me your love Lord
And a fine family
Thank you Lord
For your blessings on me

#ThankYouLordForYourBlessingsOnMe

#NightNight

Recently my daughter turned 13 and started attending the pain clinic Stollery Kids hospital. It has been good for her. The first thing her pain team said was we believe your pain. It breaks my heart seeing her in so much pain. #ChronicPain

Took some time away from social media. It’s been a needed break as I was about to break, trying hard to adjust to new levels of pain. The fatigue has also been worse since catching Covid 4 months ago. #ChronicPain #Fibromyalgia #Disabled #NeverGivingUp

At my daughter’s first appointment at the Stollery children’s hospital pain clinic, she got to meet her team. The first thing the lead doctor said was “we know your pain is real”. With such an affirmation my daughter is going to get great treatment here. #ChronicPain

The day has finally come. After waiting for over two years my daughter had her first visit to the pain clinic at the Stollery children’s hospital. #ChronicPain

September is #PainAwarenessMonth

#Chronicillness
#Fibromyalgia
#TrigeminalNeuralgia
#MECFS
#CRPS
#Rheum
#EhlersDanlosSyndrome
#Endo
#Lupus
#Lyme
#MS
#Migraines
#SickleCell
#Arthritis
#Invisibleillness

Big day in our household. My son started high school and my daughter started junior high.

Hey did you know that September is #PainAwarenessMonth & this week is #Fibro myalgia AwarenessWeek
#Fibro myalgia #FMS #Fibro #ChronicPain
This month share your chronic pain story and use this hashtag #RealPainStories

So I’m still having problems with COVID. Although not as bad. My wife is feeling much better.

Got home from our vacation & spent the last week in hell battling COVID. My poor wife has it as well. She is doing better. I’ve lost my smell and taste. The added fatigue is just cruel. #ChronicPain #Chronicfatigue
#Fibromyalgia
#Chronicillness

Enjoying the ⁦Las Vegas Raiders⁩ game with family. First time to an ⁦NFL⁩ game. I’m impressed how at the entrance they offered me any assistance I need. For those of us in pain the seats have lots of room compared to other venues. #ChronicPain #Disability #Fibromyalgia

Got close parking at allegiant stadium. ⁦Las Vegas Raiders⁩