Neuromuscular Disease Foundation(@CureHIBM) 's Twitter Profileg
Neuromuscular Disease Foundation

@CureHIBM

Mission: To enhance the quality of lives of those living w/ #GNEmyopathy (HIBM) through advocacy, education, outreach & funding research on treatments #CureHIBM

ID:861691479084879872

linkhttps://curegnem.org/links calendar_today08-05-2017 21:17:12

1,1K Tweets

523 Followers

183 Following

Neuromuscular Disease Foundation(@CureHIBM) 's Twitter Profile Photo

Let's laugh and play with friends, family, and community!

Join us on Zoom for virtual trivia, guessing games, and more!

Free and inclusive for everyone.

December 10, 2023 at 9am PT

Registration required.
NDF.ticketspice.com/decmeber-huddle

Let's laugh and play with friends, family, and community! Join us on Zoom for virtual trivia, guessing games, and more! Free and inclusive for everyone. December 10, 2023 at 9am PT Registration required. NDF.ticketspice.com/decmeber-huddle
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click here youtube.com/watch?v=3gmEAD… to relive the magic of our past event and immerse yourself in a captivating experience that will leave you wanting to learn more.

click here youtube.com/watch?v=3gmEAD… to relive the magic of our past event and immerse yourself in a captivating experience that will leave you wanting to learn more.
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Please join us THIS WEEKEND for this month's Huddle! The Healing power of Pets: The Health Enhancing Benefits of Pets November 12th, 2023 9:00 A.M. PT There are some powerful health benefits when it comes to caring for pets. Click here to register! ndf.ticketspice.com/2023-november-…

Please join us THIS WEEKEND for this month's Huddle! The Healing power of Pets: The Health Enhancing Benefits of Pets November 12th, 2023 9:00 A.M. PT There are some powerful health benefits when it comes to caring for pets. Click here to register! ndf.ticketspice.com/2023-november-…
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Join us for an evening featuring inspirational speakers who will share their unique stories and insights at our Neuromuscular Disease Foundation (NDF) and SOLVE GNE Advocacy event Click here! NDF.ticketspice.com/ndf-advocacy-e…

Join us for an evening featuring inspirational speakers who will share their unique stories and insights at our Neuromuscular Disease Foundation (NDF) and SOLVE GNE Advocacy event Click here! NDF.ticketspice.com/ndf-advocacy-e…
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Please join us THIS WEEKEND for this month's Huddle!
The Healing power of Pets: The Health Enhancing Benefits of Pets
November 12th, 2023
9:00 A.M. PT
There are some powerful health benefits when it comes to caring for pets.
Click here to register! ndf.ticketspice.com/2023-november-…

Please join us THIS WEEKEND for this month's Huddle! The Healing power of Pets: The Health Enhancing Benefits of Pets November 12th, 2023 9:00 A.M. PT There are some powerful health benefits when it comes to caring for pets. Click here to register! ndf.ticketspice.com/2023-november-…
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Please come join us for the upcoming Speaker Series event with you... This presentation will be a unique opportunity to hear directly from NDF representatives about the innovative and impactful projects that are being funded by our organization. ndf.ticketspice.com/a-discussion-o…

Please come join us for the upcoming Speaker Series event with you... This presentation will be a unique opportunity to hear directly from NDF representatives about the innovative and impactful projects that are being funded by our organization. ndf.ticketspice.com/a-discussion-o…
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Neuromuscular Disease Foundation(@CureHIBM) 's Twitter Profile Photo

Please come join us for the upcoming Speaker Series event with you... This presentation will be a unique opportunity to hear directly from NDF representatives about the innovative and impactful projects that are being funded by our organization. ndf.ticketspice.com/a-discussion-o…

Please come join us for the upcoming Speaker Series event with you... This presentation will be a unique opportunity to hear directly from NDF representatives about the innovative and impactful projects that are being funded by our organization. ndf.ticketspice.com/a-discussion-o…
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Are you excited to learn about the latest and greatest NDF awarded grants? If so, join NDF for a special presentation on October 29th at 9:00 a.m. PT.
🌐 Location: Zoom link
We look forward to seeing you. Click this link to join!
ndf.ticketspice.com/a-discussion-o…

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Neuromuscular Disease Foundation(@CureHIBM) 's Twitter Profile Photo

Please come join us for the upcoming Speaker Series event with you... This presentation will be a unique opportunity to hear directly from NDF representatives about the innovative and impactful projects that are being funded by our organization. ndf.ticketspice.com/a-discussion-o…

Please come join us for the upcoming Speaker Series event with you... This presentation will be a unique opportunity to hear directly from NDF representatives about the innovative and impactful projects that are being funded by our organization. ndf.ticketspice.com/a-discussion-o…
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Neuromuscular Disease Foundation(@CureHIBM) 's Twitter Profile Photo

Please come join us for the upcoming Speaker Series event with you...
This presentation will be a unique opportunity to hear directly from NDF representatives about the innovative and impactful projects that are being funded by our organization. ndf.ticketspice.com/a-discussion-o…

Please come join us for the upcoming Speaker Series event with you... This presentation will be a unique opportunity to hear directly from NDF representatives about the innovative and impactful projects that are being funded by our organization. ndf.ticketspice.com/a-discussion-o…
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Check out our latest Speaker Series, where you can discover how assistive tech can enhance independence and open doors to new opportunities. Our expert speakers will guide you through the ins and outs of various assistive technologies. youtu.be/0vqwj__Uy7o

Check out our latest Speaker Series, where you can discover how assistive tech can enhance independence and open doors to new opportunities. Our expert speakers will guide you through the ins and outs of various assistive technologies. youtu.be/0vqwj__Uy7o
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Happy Labor Day!
This is a day to celebrate the hard work and dedication of all the laborers who make our world possible. We also want to take this opportunity to thank our own employees for their hard work and dedication.


Happy Labor Day! This is a day to celebrate the hard work and dedication of all the laborers who make our world possible. We also want to take this opportunity to thank our own employees for their hard work and dedication. #LaborDay2023 #NDF #neuromusculardiseasefoundation
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Come join our upcoming Speaker's Series 'Navigating Assistive Technology with Confidence' on September 24th @9 AM PT! It is easy to join, click the link below! We are excited to see you:) ndf.ticketspice.com/2023-gnem-spea…

Come join our upcoming Speaker's Series 'Navigating Assistive Technology with Confidence' on September 24th @9 AM PT! It is easy to join, click the link below! We are excited to see you:) ndf.ticketspice.com/2023-gnem-spea…
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'Navigating Genetic Counseling and IVF Solutions'

Dr. Mira Malcov, Head of PGD (Preimplantation Genetic Diagnosis) lab at Tel-Aviv Ichilov Medical Center

Watch it now! Take Action! curegnem.org/wp-content/upl…

'Navigating Genetic Counseling and IVF Solutions' Dr. Mira Malcov, Head of PGD (Preimplantation Genetic Diagnosis) lab at Tel-Aviv Ichilov Medical Center Watch it now! Take Action! curegnem.org/wp-content/upl…
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We’re happy to introduce our new caregiver support group and patient meditation group programs, beginning TOMORROW, June 16th!

To read more, visit our new blog: curegnem.org/2023/06/new-pa…

We’re happy to introduce our new caregiver support group and patient meditation group programs, beginning TOMORROW, June 16th! To read more, visit our new blog: curegnem.org/2023/06/new-pa… #patientsupport #onlinesupportgroups #caregiversupportgroup #raredisease #selfcare #ndf
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NDF is pleased to open these new programs! Join us on June 16th @ 9 am PT for these two groups.

1. Monthly Family/Care Partner Group

2. Monthly Patient Meditation Group

Hope you will come and join us!

Register at curegnem.org/events/

NDF is pleased to open these new programs! Join us on June 16th @ 9 am PT for these two groups. 1. Monthly Family/Care Partner Group 2. Monthly Patient Meditation Group Hope you will come and join us! Register at curegnem.org/events/ #onlinesupportgroup
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Join us for another informative Speaker Series session on June 25th at 9am PT!

More info. & Register at curegnem.org/events/

SEE YOU THERE!!

Join us for another informative Speaker Series session on June 25th at 9am PT! More info. & Register at curegnem.org/events/ SEE YOU THERE!! #speakerseries #NDF #GNEM #selfcare
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Monthly Family/Care Partner Group: A monthly online support group for family members/care partners who support patients affected by a rare disease.

➡️NDF.ticketspice.com/2023-june-care…

Hope you will come and join us!

upportgroup

Monthly Family/Care Partner Group: A monthly online support group for family members/care partners who support patients affected by a rare disease. ➡️NDF.ticketspice.com/2023-june-care… Hope you will come and join us! #carepartner #caregivers #caregiversupportgroup #onlinesupportgroup
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