Shoutout to Simon Pittman who is taking part in the Dash AT HOME by cycling 600km on his exercise bike to raise money in honour of his son Jensen who has DMD.

So far, he's raised £290! If you'd like to help Simon smash his target, you can donate here: yourselfwww.justgiving.com/page/simon-pit…

We’re offering a grant of up to £250,000 to fund projects that will be run as part of our DMD Care UK programme’s transition working group.

You can find out more about the group and grant, and how to apply for it here.

duchenneuk.org/new-grant-to-c…

Take part in the Dash AT HOME! Cover 300km - the distance our Dashers will be cycling during the London to Paris Dash - in any way you like! Walk, run, swim, cycle the distance and raise money for Duchenne UK.

duchenneuk.org.uk/dashathome

Your April update has landed! 📬📧

Check your inbox for the Duchenne UK April newsletter featuring the latest news and updates, events and campaigns, ways to get involved and more.

Missing out? Sign up for our monthly newsletter: duchenneuk.org/get-support/

Thank you to Dan Crossley who has been training hard for the Duchenne Dash - a 300km ride from London to Paris in under 24 hours to raise money for Duchenne UK and improve the lives of everyone with DMD.

You can donate to Dan's fundraiser here: justgiving.com/page/dan-cross…

Breaking news: Duchenne UK and Parent Project Muscular Dystrophy award $500,000 to paediatric neuromuscular neurologist Professor Peter Kang MD for research into new muscle cell treatment for DMD.

Find out more here: duchenneuk.org/duchenne-uk-an…

We'll be hosting a webinar about our DMDhome study on the 7th May from 7-8pm via Zoom. It is an opportunity to better understand what the study involves, the benefits of taking part in the trial and to ask our team questions.

Register your place here: us02web.zoom.us/j/87634147731?…

Shoutout to Paul and Lisa Vickers who are walking 300km in April for the Dash AT HOME! Paul and Lisa are taking on the challenge - walking the distance from London to Paris - in support of our family and friends fund, Mac My Day.

justgiving.com/page/paul-vick…

We'd like to shoutout Ruth Brown who recently ran a 22km trail and raised over £500 for Duchenne UK! Ruth took on the challenge to support family and friends fund, Lucas Fighting Duchenne.

Well done, Ruth!

#EndDuchenne

We'd like to say a huge thank you and congratulations to our 5 amazing runners, April and Tim Brant-Coles, Jason Barton, Sam Oshaughnessy and Shaun Taylor who took on the London Marathon and raised £19,645!

The ballot is now open for London Marathon 2025 letsdothis.com/gb/e/2025-tcs-…

Thank you and well done to Simon Coles who ran the Lincoln 10k for Duchenne UK! Simon ran the race in under an hour and raised £330!

Fancy taking on a challenge for Duchenne UK? Check out our events and campaigns that you can get involved in: duchenneuk.org/fundraising-ev…

Hot off the press!

Our founders, Emily Reuben and Alex Johnson, have been featured in the Spring edition of @rarerevolutionmagazine! The three-page spread delves into them receiving their OBEs, the work of Duchenne UK and how we were founded and more.

bit.ly/WomenInRARE-Al…

April Brant-Coles will be on London Heart Radio tomorrow morning (Friday 12 April) at 6.30am to talk about running the London Marathon to raise money for Duchenne UK and in honour of her son Remi who was diagnosed with DMD last year.

Tune in and show your support!

Help DMD Care UK improve physiotherapy and occupational therapy care by filling out this short online survey and sharing your experiences.

The online survey takes 10-20 minutes. To take part, visit:

newcastle.onlinesurveys.ac.uk/parent-survey-…

We want to say a huge well done and 'thank you' to the team at Ikonic Technology who raised over £13,000 by doing the Yorkshire Three-Peaks Challenge over the weekend!

The team took on the 25-mile to support their Sales Director's son, 18-year-old Joey, who has DMD.

Amazing work!

Calling all paediatric physiotherapists who have experience of working with boys with Duchenne Muscular Dystrophy following a femur fracture 📣 I am now recruiting for my MSc Advanced Practice dissertation research study. Please share with anyone who may be interested in helping.

Why do the Dash AT HOME six-week challenge?

🏋️It's a great way to get fit!
😋Have some fun with the kids
🤝Do it as a team
💙Help raise awareness of Duchenne muscular dystrophy (DMD)
🔬Raise funds to find a cure

Find out more and sign up: duchenneuk.org/dashathome

We’re calling on the MHRA to quickly approve Duchenne muscular dystrophy treatment givinostat.

Our co-founder and Chief Executive, Emily Reuben OBE, shares her painful personal experience to highlight the need for its quick approval.🔗
dailymail.co.uk/health/article…

Are you up for a challenge? 👀

Walk, run, swim, cycle, scoot, pogo-stick, hop, skip, crawl or bounce your way to 300km in six weeks for Duchenne UK!

Find out more about the Dash AT HOME challenge and join the 15 people who are already signed up!

duchenneuk.org.uk/dashathome

NICE has just published its decision to not approve Duchenne muscular dystrophy treatment vamorolone.

This is a provisional decision, and we'll be commenting on the draft guidance as formal consultees.

You can find out more about the decision here🔗 duchenneuk.org/vamorolone-not…