EU-IPFF (@EU_IPFF )

EU-IPFF

Bio The European Idiopathic Pulmonary Fibrosis & Related Disorders Federation (EU-IPFF) is a European Federation of national #IPF & #PF patient associations
Location Brussels
Tweets 1,8K
Followers 1,5K
Following 854
Account created 16-06-2016 00:05:06
ID 743232897616855040

iPhone : Congratulations to Steve Jones and the freshly elected board members of EU-IPFF. Looking forward to meaningful collaborations in #PioneeringForPatients with pulmonary fibrosis. #IPF #ILD twitter.com/EU_IPFF/status…

iPhone : Each year ERS presents a number of prestigious awards to recognise the achievements of a select group of leaders in the field of respiratory medicine, and we are pleased to announce the winners for 2020.

Meet this year’s award winners: erscongress.org/funding-awards…

iPhone : Dont every feel that you are moaning constantly, you voice your feelings because you care We need people like you to continue to voice their observed experiences, who have seen the wider impact it can have, not just for the individual but those involved who care who feel helpless twitter.com/FoxyLady0811/s…

iPhone : How have you been affected by pulmonary fibrosis? We want to help you share your story. All are welcome to submit their experience as a part of the Portraits of PF series. Learn more and get started at
pulmonaryfibrosis.org/get-involved/s…

iPhone : Its normal to feel anxious/ worried about coronavirus, especially if you have a lung condition.

There are lots of ways you can find support if youre feeling anxious, including chatting to friends and family.

Read our tips on how to look after yourself:
blf.org.uk/support-for-yo…

iPhone : ILFA Ireland has bursaries for respiratory healthcare professionals working with lung fibrosis patients in Ireland to study Cognitive Behavioural Therapy - CBT. The online course will run from Sept-Oct & requires a minimum 25hr commitment. Please email info@ilfa.ie for details.

iPhone : We are pleased to be invited by the European Lung Foundation to present a poster at their Patient Organisation Networking Day about the caravan holiday we are able to offer #PF patients & the vital respite it provides.

#lungs #pulmonaryfibrosis #PFTrust #IPF

europeanlung.org/en/news-and-ev…

Squarespace : Abstracts and posters submitted to the planned European IPF Patient Summit/2020 eu-ipff.org/blog/2020/7/26…

Squarespace : Steve Jones, President of the EU-IPFF: EU-IPFF plays a vital role as the voice of people living with pulmonary fibrosis in Europe eu-ipff.org/blog/2020/7/26…

Squarespace : Welcome to new members of the EU-IPFF eu-ipff.org/blog/2020/7/26…