Do you have #Lupus and live in #Wales ? 🏴󠁧󠁢󠁷󠁬󠁳󠁿 LUPUS UK are supporting CEDAR to conduct an evaluation of the lupus service in Wales.

Click the link below to share your experiences and help to improve lupus services: forms.office.com/e/Us0KYB1tbK

#Lupus awareness #NHSWales

#PMDawarenessmonth is on us!

#PMDD is often misdiagnosed as #bipolardisorder , meaning patients receive unsafe treatments.
Like bipolar disorder, there are no blood or saliva tests for PMDD.

Noting the cyclical pattern is crucial for PMDD patients.

#differentialdiagnosis

Great response by Stanford University to the recent Lancet articles about menopause - these quotes are especially relevant:

“Menopause is repeatedly referred to as “overmedicalized” when in reality, the vast majority of women are left to navigate their perimenopausal and menopausal years…

This bank holiday, at least 1 in 10 women in #Wales are struggling with symptoms of #adenomyosis and not knowing where to turn for information. FTWW is petitioning Petitions Committee to have the condition added to #NHSWales 's website. Please sign & share! petitions.senedd.wales/petitions/2461…

Diolch to everyone who contributed to tonight's panel event on #Endometriosis in #Wales . A huge amount covered, thanks to Jenny Rathbone, Endometriosis UK, Endometriosis UK Wales 🏴󠁧󠁢󠁷󠁬󠁳󠁿, Severe Period Pain is Not Normal (SPPINN) Study. Please do check out endometriosis.cymru & share the free Symptom Reporting Tool far & wide!

Tonight's the night for our online panel event w. Endometriosis UK, Severe Period Pain is Not Normal (SPPINN) Study, Endometriosis UK Wales 🏴󠁧󠁢󠁷󠁬󠁳󠁿, liz bruen, Huw Irranca-Davies talking diagnostic delay in #Wales . It's not too late to register to join the discussion & have your questions answered here: endometriosis-uk.org/civicrm/event/…

🗣 Upcoming conference:

'Patient friendly mental health services: what do they look like?'

Hear from renowned speakers discussing how services for those with mental health disorders can be improved.

📅 14 - 15 May
📍 Wrexham University
🔗 patientfriendlymh.co.uk

We're delighted that so many DPOs and other organisations have joined us at our North Wales DPO Summit today.

Thank you to FTWW Wales, TheFDF, Autistic UK #TheFutureIsGold, Arfon Access Group and others for speaking so candidly about their work and the challenges they face.

#EndoMarchWales - it was amazing to see everyone today and be a part of what’s always a brilliant event!⭐️💛

Tonight, #Cardiff Castle will shine bright in yellow to show solidarity with Endometriosis Awareness Month and the EndoMarchWales march taking place in the city today. 💛

Find out more about here: orlo.uk/fPKLJ

#EndoMarchWales #EndometriosisAwareness

Women’s health needs beyond sexual, reproductive, and maternal health are missing from the government’s 2024 priorities, say Alice Witt, Robyn Norton, Dr Kate Womersley, Jane Hirst and Sophie Strachan
bmj.com/content/384/bm…

Proud to have funded FTWW Wales through our Voices from the Frontline fund.
📢Well done for amplifying the voices of women in Wales!

#endometriosis #EndometriosisAwarenessMonth

Diolch yn fawr iawn to FTWW Member, Bethan, for sharing her experience of diagnostic delay for #endometriosis with BBC Cymru Fyw today: bbc.co.uk/cymrufyw/erthy…

If you haven't registered already, please do! March 28th FTWW Wales, Endometriosis UK, Huw Irranca-Davies, Severe Period Pain is Not Normal (SPPINN) Study, liz bruen, Endometriosis UK Wales 🏴󠁧󠁢󠁷󠁬󠁳󠁿 will discuss Diagnostic Delay for #endometriosis & what's happening in #Wales to address it. See below to register & submit questions!

Pleased to see #endometriosis & FTWW feature in today's BBC Wales News, particularly in light of latest data from Endometriosis UK showing how diagnostic delay has increased to 10yrs. Whilst our endometriosis nurses are vital assets, we need more of them! bbc.co.uk/news/uk-wales-…

Today in Welsh Parliament, Hannah Blythyn led discussion on #InternationalWomensDay2024 . Diolch, Mabon ap Gwynfor AS 🏴󠁧󠁢󠁷󠁬󠁳󠁿 for drawing attention to #endometriois as a key marker of #HealthInequalities , & the need for a #WomensHealth Plan in #Wales , a WG commitment & top priority for FTWW.

As #InternationalWomensDay2024 ends, we'd like to say thanks to our followers for their support & commitment to improving #WomensHealth in #Wales . We hope that by NEXT IWD, we'll be celebrating the publication of a #WomensHealth Plan which makes a positive difference for everyone!

This #EndometriosisAwarenessMonth , FTWW is co-hosting an online panel event with Endometriosis UK & Huw Irranca-Davies, discussing diagnostic delay & upcoming additions to endometriosis.cymru - for more info, inc how to register & submit questions, pls visit endometriosis-uk.org/civicrm/event/…

Incredibly proud of FTWW's Engagement Officer, Dee, whose campaigning on #disabled people's rights & #WomensHealth in #Wales were celebrated this evening at the Women Of Newport Community Champions Exhibition at Y Pierhead #Cardiff . Can't wait to see the pics Dan Coast (He/Him) 🏴󠁧󠁢󠁷󠁬󠁳󠁿!