Fragile X Society-India(@FragileXIndia) 's Twitter Profileg
Fragile X Society-India

@FragileXIndia

ID:803904792946884609

linkhttp://www.fragilex.in calendar_today30-11-2016 10:13:33

905 Tweets

494 Followers

134 Following

Fragile X Society-India(@FragileXIndia) 's Twitter Profile Photo

From misconceptions to missed opportunities, let this reel guide you on your journey of raising your neurodiverse child.

It might be a bitter reminder of the pitfalls families may encounter along the way.

account_circle
Fragile X Society-India(@FragileXIndia) 's Twitter Profile Photo

Autism awareness month is over but in reality it is on 365 days.

Just like our constant endeavor to spread awareness on the connection between Autism and Fragile X.

Every child with an AUTISM diagnosis should get FRAGILE X ruled out.

Please feel free to ask any questions.

account_circle
Fragile X Society-India(@FragileXIndia) 's Twitter Profile Photo

Hey guys, today I want to share my personal journey with you. My child was diagnosed with Fragile X syndrome, a genetic condition that affects their development and behavior.

It was a tough time for me and my family, and we felt like we had no support.

been worth it.

account_circle
Fragile X Society-India(@FragileXIndia) 's Twitter Profile Photo

I understand how overwhelming it can be for families to receive a diagnosis and navigate the complexities of fragile X syndrome.

We break down the scientific jargon into simple terms that everyone can understand.
[fragile x syndrome, medical jargon, genetic condition, family]

account_circle
Fragile X Society-India(@FragileXIndia) 's Twitter Profile Photo

NO! It's Not Your Fault!⁠

Fragile X Syndrome is an inherited genetic condition, often passed down silently through families.⁠

Instead of carrying guilt, let's focus on getting the support you deserve.⁠

account_circle
Fragile X Society-India(@FragileXIndia) 's Twitter Profile Photo

12K Strong and Growing We're so grateful for your incredible support in spreading awareness about Fragile X Syndrome.⁠ Imagine the impact we can make for individuals and families affected by FX. ⁠What milestones can we reach next?⁠

account_circle
Fragile X Society-India(@FragileXIndia) 's Twitter Profile Photo

This , learn about Fragile X Syndrome, a genetic condition impacting learning and development. The Fragile X test is a simple blood test that can help families understand their child's needs. Knowledge is power!⁠

DM us to learn more about this condition 🩵⁠

account_circle
Fragile X Society-India(@FragileXIndia) 's Twitter Profile Photo

Meet Shalini and Kinisha: A Dynamic Boss-Team Duo!⁠

Meet the dynamic duo behind the scenes! Shalini and Kinisha: one creates, the other executes, but they both bring their A-game to make magic happen. ⁠
Who's the boss? We'll let you decide ⁠

account_circle
Fragile X Society-India(@FragileXIndia) 's Twitter Profile Photo

🚨DIFFERENCE ALERT🚨AUTISM vs. FRAGILE X SYNDROME.
While both share similarities, the biggest difference is that children with fragile X syndrome crave social interaction and friendships.
We thank The Power Learning Centre for helping us facilitate a parent meet today.

account_circle
Fragile X Society-India(@FragileXIndia) 's Twitter Profile Photo

Yes that’s actually how many families react knowing the connections between Fragile X, Autism and infertility.

Save and share!

[Fragile X Syndrome, Autism Awareness, Fragile X india, infertility, acceptance]

account_circle
Fragile X Society-India(@FragileXIndia) 's Twitter Profile Photo

This message by Payal Narang has explained the role of occupational therapy very well.

Recognizing the red flags for occupational therapy is crucial for early intervention and improved outcomes.

It is also imperative to not be scared of social taboos if your child needs help.

account_circle
Fragile X Society-India(@FragileXIndia) 's Twitter Profile Photo

Hi, here is a brief introduction about me and the work we do for all those who are new with us.

It was a challenging uphill journey for me 25 years ago which I have used to ameliorate the lives of thousands of families till today and continue doing so.

Join me on this journey

account_circle
Fragile X Society-India(@FragileXIndia) 's Twitter Profile Photo

Meet Shatakshi who has a 8 year old son with Fragile X syndrome.
“He may be non-verbal, but he always says hi and bye and loves playing and having fun with me. Even if he pushes us out at times, his loving personality shines through.” Says the loving mom.

account_circle
Fragile X Society-India(@FragileXIndia) 's Twitter Profile Photo

Attention all healthcare professionals!
We are in need of your help.
Our community has been reaching out for the FMR1 gene test and we want to make sure we connect them with reliable and compassionate providers.
If you offer this test, please Dm us.

account_circle
Fragile X Society-India(@FragileXIndia) 's Twitter Profile Photo

By understanding Anxiety the family can help the child

The unique challenges that anxiety presents for children with Fragile X Syndrome is something that families need to be well equipped to handle.⁠
Anxiety is a natural human response to stress or perceived threats..⁠

By understanding Anxiety the family can help the child ⁠ The unique challenges that anxiety presents for children with Fragile X Syndrome is something that families need to be well equipped to handle.⁠ Anxiety is a natural human response to stress or perceived threats..⁠ ⁠
account_circle
Fragile X Society-India(@FragileXIndia) 's Twitter Profile Photo

Join us for a heartwarming tale! Discover how Occupational Therapy empowered a child to ride a bicycle. It's a beautiful example of how OT can transform lives and unlock a world of possibilities for children with special needs.⁠

account_circle
Fragile X Society-India(@FragileXIndia) 's Twitter Profile Photo

Autism and Fragile X Syndrome co exist and that makes it very challenging for many families and professionals.

Will we let that stop us from getting the right answers?

and fragile x syndrome genetic condition blood test

account_circle
Fragile X Society-India(@FragileXIndia) 's Twitter Profile Photo

Every child deserves the gift of speech, and as a speech and language therapist they are always doing their best.

But it’s not always easy convincing parents who see their child speaking to continue therapy.

account_circle
Fragile X Society-India(@FragileXIndia) 's Twitter Profile Photo

Fragile X Syndrome is a genetic disorder which causes intellectual disabilities in children. It is the only known single-gene cause of Autism. ⁠While there is no cure for Fragile X, an accurate diagnosis opens doors for the child and the family.

Fragile X Syndrome is a genetic disorder which causes intellectual disabilities in children. It is the only known single-gene cause of Autism. ⁠While there is no cure for Fragile X, an accurate diagnosis opens doors for the child and the family. ⁠
account_circle
Fragile X Society-India(@FragileXIndia) 's Twitter Profile Photo

Children with Fragile X syndrome and ASD are visual learners, which is why it’s important to support their learning with visual tools and resources.

My biggest tip to families is to start thinking visually and that will empower them on what all their children need.

account_circle