HMSA Charity(@HMSACharity) 's Twitter Profileg
HMSA Charity

@HMSACharity

Supporting people with connective tissue disorders or hypermobility related health problems, including but not limited to Ehlers-Danlos, Marfan & Stickler etc.

ID:274723066

linkhttps://www.hypermobility.org calendar_today30-03-2011 22:41:13

18,9K Tweets

12,0K Followers

7,5K Following

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We’ve been a little quiet on socials lately because we’re very busy with our January live events! Between relaxations, our living well series and this evening’s’ Ask the Experts’ with Jo Southall and Dr Jessica Eccles we’ve barely stopped. Find out more at bit.ly/3G9Guvk

We’ve been a little quiet on socials lately because we’re very busy with our January live events! Between relaxations, our living well series and this evening’s’ Ask the Experts’ with Jo Southall and Dr Jessica Eccles we’ve barely stopped. Find out more at bit.ly/3G9Guvk
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Researchers are crunching data in their labs and offices and we've received requests for assistance in recruitment. Two pieces today - Ehlers-Danlos Syndrome (EDS) and Psychiatric Morbidity in an Adult Population [bit.ly/3NJqQvo ] and ...1/2

Researchers are crunching data in their labs and offices and we've received requests for assistance in recruitment. Two pieces today - Ehlers-Danlos Syndrome (EDS) and Psychiatric Morbidity in an Adult Population [bit.ly/3NJqQvo ] and ...1/2
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Made some connections at the FORTH conference over the weekend, thanks very much to BAPO & the host Peacocks Medical group for having us over to exhibit! After all that traveling we're definitely ready for tonight's at 8pm. Members link > bit.ly/48TjFZn

Made some connections at the FORTH conference over the weekend, thanks very much to BAPO & the host Peacocks Medical group for having us over to exhibit! After all that traveling we're definitely ready for tonight's #MellowMonday at 8pm. Members link > bit.ly/48TjFZn
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Is there anything quite so lovely (and scary) as a virgin notebook or planner? We’ve a little ‘help’ filling in the blanks from a resident chaos kitty as we get organised for a busy week. What’s your day to day organisational system like? Soul sold to Siri, here!

Is there anything quite so lovely (and scary) as a virgin notebook or planner? We’ve a little ‘help’ filling in the blanks from a resident chaos kitty as we get organised for a busy week. What’s your day to day organisational system like? Soul sold to Siri, here! #SelfCareSunday
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My eldest went on a school trip to the Tate art gallery in London. The day has caused far more overwhelm and pain than expected.

Living with hypermobility can feel so tricky when life can be unpredictable - but we can absolutely learn to ride some of these waves.

My eldest went on a school trip to the Tate art gallery in London. The day has caused far more overwhelm and pain than expected. Living with hypermobility can feel so tricky when life can be unpredictable - but we can absolutely learn to ride some of these waves.
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Heard us talk about autonomic dysfunction or dysautonomia but have no idea what we mean, or how it relates to hypemobility?

This piece is a useful guide to the main presentations and diagnosis, in addition to looking at ongoing research and management.

bit.ly/3tR0uAy

Heard us talk about autonomic dysfunction or dysautonomia but have no idea what we mean, or how it relates to hypemobility? This piece is a useful guide to the main presentations and diagnosis, in addition to looking at ongoing research and management. bit.ly/3tR0uAy
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Quick reminder that our Members' Relaxation sessions resume this evening at 8pm. Kim's all set, so grab a cuppa, a blanket, and cosy down for a chill of the non-snowy variety (poor snow show here, do you have any?). Link in the usual place bit.ly/3IZxyIh

Quick reminder that our #MellowMonday Members' Relaxation sessions resume this evening at 8pm. Kim's all set, so grab a cuppa, a blanket, and cosy down for a chill of the non-snowy variety (poor snow show here, do you have any?). Link in the usual place bit.ly/3IZxyIh
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and we’re doing prep for our webinar series starting Wednesday. Yes, self-care isn’t all crafts, hot chocolate and cuddly fur balls. Sometimes it means homework. We’re evaluating which five issues to prioritise, and top of our list Is organisation… How about you?

#SelfCareSunday and we’re doing prep for our webinar series starting Wednesday. Yes, self-care isn’t all crafts, hot chocolate and cuddly fur balls. Sometimes it means homework. We’re evaluating which five issues to prioritise, and top of our list Is organisation… How about you?
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On Fridays our Lara usually posts, but she got to the end of term, splatted, and spent the holidays unwell so she's starting 2024 right by resting until she's better. Anyone else reliably sick when they stop? Pacing can only help so much, we're all sounding a little husky today!

On Fridays our Lara usually posts, but she got to the end of term, splatted, and spent the holidays unwell so she's starting 2024 right by resting until she's better. Anyone else reliably sick when they stop? Pacing can only help so much, we're all sounding a little husky today!
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Happy New Year, and welcome new members, we're looking forward to Kim & Jo kicking off 2024 next week (if you didn't register yet: website>support>patient members area> events). Not a member? There's still time to join us, meanwhile, tell us all about your Xmas and New Year!

Happy New Year, and welcome new members, we're looking forward to Kim & Jo kicking off 2024 next week (if you didn't register yet: website>support>patient members area> events). Not a member? There's still time to join us, meanwhile, tell us all about your Xmas and New Year!
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Happy New Year! Hope everyone is having a good one so far. Just over a week left until we kick off 2024 with a five session self management boost. HMSA members can register now, and if you’re not a member you can join on the website, Hypermobility.org - We’re back Friday!

Happy New Year! Hope everyone is having a good one so far. Just over a week left until we kick off 2024 with a five session self management boost. HMSA members can register now, and if you’re not a member you can join on the website, Hypermobility.org - We’re back Friday!
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I try not to take related grumpiness out on others. One thing that helps is to be open about my pain levels - if they are hideous, I'll say so - or have this card handy. Then no-one gets frustrated by expecting me to do more than I can.
Card from buff.ly/3RMEWOA

I try not to take #pain related grumpiness out on others. One thing that helps is to be open about my pain levels - if they are hideous, I'll say so - or have this card handy. Then no-one gets frustrated by expecting me to do more than I can. Card from buff.ly/3RMEWOA
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Tonight's 'Ask the OT' event is off, as Jo is unwell (Get Well Soon!), so we're turning off all but the twinkly lights and closing for the holidays, our volunteer team deserve a proper rest. See our events page, or 2024 preview at bit.ly/3NyVozu for what's next!

Tonight's 'Ask the OT' event is off, as Jo is unwell (Get Well Soon!), so we're turning off all but the twinkly lights and closing for the holidays, our volunteer team deserve a proper rest. See our events page, or 2024 preview at bit.ly/3NyVozu for what's next!
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AnonQ: A member is facing urgent colon surgery this Christmas, surgeons aren’t sure they’ll be able to avoid fitting a permanent stoma. We’d very much like to hear from anyone who’s had similar surgery, with their skin healing tips and helpful experiences so we can relay them.

AnonQ: A member is facing urgent colon surgery this Christmas, surgeons aren’t sure they’ll be able to avoid fitting a permanent stoma. We’d very much like to hear from anyone who’s had similar surgery, with their skin healing tips and helpful experiences so we can relay them.
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