The Healey & AMG Center for ALS at Massachusetts General Hospital is thrilled to announce the completion of enrollment for Regimen F of the HEALEY ALS Platform Trial evaluating ABBV-CLS-7262 from Calico Life Sciences

Read the full announcement: massgeneral.org/neurology/als/…

#HealeyALSPlatformTrial 2morow 4/11 @ 5pmEST: Join us 4 updates by Merit cudkowicz, who'll be joined by #PlatformTrial Reg E Co-Lead Shafeeq Ladha, MD & several biostat's, to provide community update on Reg E's investigation of Trehalose by Seelos Therapeutics. Reg: bit.ly/3KKsme2

If you're planning to attend the ALS Community Summit at the end of May, OR if you're local to Annapolis, MD, check out this great opportunity for fully wheelchair-accessible boating trips on June 1st! iamals.org/action/crab202…

ir.brainstorm-cell.com/index.php?s=43…

I am pleased to share news about our synergistic collaboration with $LONN
$NRSN
$LONN.SW

lonza.com/media-advisori…

I AM ALS is offering scholarships to attend the ALS Community Summit! It will cover three nights in the JW Marriott, where our room block is. If you have financial need and want to attend the summit, please apply: iamals.org/action/als-sum…

We are bringing our flag event to DC for the 3rd year in a row this May. Honor yourself or a loved one who is living with ALS, has passed from ALS, or is an ALS gene carrier by adding their name to a flag (if you submitted last year, please submit again): iamals.org/action/2024fla…

Relyvrio update #als #relyvrio #clinicaltrial #fda #drugapproval #pharma

Full video- tiktok.com/t/ZTLSmGHB9/

Good news -- we're extending the deadline for ALS Community Award submissions! You now have until 11:59pm ET on Sunday, April 7th to make your nominations. So if you haven't yet, submit your nominations ASAP! iamals.org/action/2024-co…

Some exciting new GLP-1 drug randomized trial evidence for *potential* disease-modifying impact on #Parkinsons disease (there are none).
No progression of motor disability in the Rx group for 12 months.
nejm.org/doi/full/10.10…

First ARPA-H grant for neurodegenerative diseases. arpa-h.gov/news-and-event…

Thanks to Patrick Short and Sano Genetics for the great conversation!

'Good Morning, Believers!” performed by John Driskell Hopkins & Emily Saliers, is a song of hope & community. It's our fight song: the lyrics inspire us to keep going until we #cureALS .

What song motivates you?

Written by JohnDriskellHopkins, emily saliers, Brian Bisky, #SeanMcIntyre

Amylyx Pharmaceuticals Announces Formal Intention to Remove RELYVRIO®/ALBRIOZA™ from the Market; Provides Updates on Access to Therapy, Pipeline, Corporate Restructuring, and Strategy | Amylyx Pharmaceuticals, Inc. investors.amylyx.com/news-releases/…

The Peer Support Initiative is in need of current caregivers to serve as mentors within the program. If you are actively caring for someone with ALS and would like to share your knowledge with another caregiver who is new to ALS, apply to be a mentor: surveymonkey.com/r/IAA-Mentor

Join us every Friday at 1 ET for an open discussion on all things ALS! Bring your questions or just hang out and enjoy the conversation, we would love to have you!

Visit officehoursals.com for more information!

Don't forget to register for the ALS Community Summit! This event is a huge opportunity for collaboration -- scroll to the bottom of this landing page to see how many amazing organizations are going to be part of it! iamals.org/2024-i-am-als-…

Tonight’s bow tie for Yankees at Astros on FOX at 7:15e/6:15c: ALS Association The ALS Association. In honor of Sarah Langs. In memory of Jim Caple, Matt Kurkjian, Jim Poole and Chris Snow. More: als.org

Target ALS Launches Groundbreaking Data Portal with DNAstack and Verily to Fuel Breakthroughs in ALS Research  targetals.org/?p=17075

Applications for Live Like Lou's Postdoctoral Fellowship are due April 12. Emerging ALS scientists can apply for up to $75,000 annually for up to two years to be awarded beginning June 2024.

Learn more and apply today: phide.lt/49qfjcT
#funding #als #als research