Medics4RareDiseases(@M4RareDiseases) 's Twitter Profileg
Medics4RareDiseases

@M4RareDiseases

Medics4RareDiseases is driving an attitude change towards rare diseases amongst medical students and doctors in training #DareToThinkRare

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linkhttps://linktr.ee/medics4rarediseases calendar_today23-02-2014 17:23:28

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Medics4RareDiseases(@M4RareDiseases) 's Twitter Profile Photo

Nadine and Dr Grace Knight, clinical ambassador for M4RD, recently got the chance to attend the All-Party Parliamentary Group (APPG) launch of the report ‘Where are our nation’s donors?’, in Westminster.

Read what Nadine had to say about the event!

m4rd.org/2023/12/13/whe…

Nadine and Dr Grace Knight, clinical ambassador for M4RD, recently got the chance to attend the All-Party Parliamentary Group (APPG) launch of the report ‘Where are our nation’s donors?’, in Westminster. Read what Nadine had to say about the event! m4rd.org/2023/12/13/whe…
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The Student Voice Prize(@RDStudentVoice) 's Twitter Profile Photo

Meet one of our judges, Jackie Boylan!

Jackie is a psychologist and has managed many complex, multi-disciplinary international research studies to improve the health and well-being of patient communities.

Read more here 👇

Meet one of our judges, Jackie Boylan! Jackie is a psychologist and has managed many complex, multi-disciplinary international research studies to improve the health and well-being of patient communities. Read more here 👇 #SVP23
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Medics4RareDiseases(@M4RareDiseases) 's Twitter Profile Photo

Are you interested to find out how patient advocacy can change the course of rare genetic conditions?

Sign up for this fantastic event now!

eventbrite.co.uk/e/first-do-no-…

Are you interested to find out how patient advocacy can change the course of rare genetic conditions? Sign up for this fantastic event now! eventbrite.co.uk/e/first-do-no-…
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Beacon for Rare Diseases(@RareBeacon) 's Twitter Profile Photo

We are teaming up with REMEDi4ALL and MeRIT to deliver the first international drug repurposing conference, , taking place on 6th - 7th March 2024 in Barcelona.

Early bird tickets are available!

Find out more here: 👇

]ow.ly/6Pb650QfYnY

We are teaming up with @REMEDi4ALL and MeRIT to deliver the first international drug repurposing conference, #iDR24, taking place on 6th - 7th March 2024 in Barcelona. Early bird tickets are available! Find out more here: 👇 ]ow.ly/6Pb650QfYnY
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Medics4RareDiseases(@M4RareDiseases) 's Twitter Profile Photo

It's that time of year again! Last week we had our Christmas meal and had so much fun!😘 Ho Ho Ho!! It was great to be in person again and have a fabulous meal together!

It's that time of year again! Last week we had our Christmas meal and had so much fun!😘 Ho Ho Ho!! It was great to be in person again and have a fabulous meal together!
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Medics4RareDiseases(@M4RareDiseases) 's Twitter Profile Photo

We've been super super busy the last few days planning for an exciting new development within the charity which we think you're ALL going to LOVE! 😍

We can't wait to reveal all of our new plans to you!

We've been super super busy the last few days planning for an exciting new development within the charity which we think you're ALL going to LOVE! 😍 We can't wait to reveal all of our new plans to you!
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Medics4RareDiseases(@M4RareDiseases) 's Twitter Profile Photo

GPs in the SE! 📢 What can be done to make it easier for you to order genetic tests within primary care??NHS South East Genomic Medicine Service would like to know about your experiences to improve the system for patients! SW Thames Faculty RCGP Annual Primary Care Conference ❤️🧬🧾🙌 forms.office.com/Pages/Response…

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Haemochromatosis UK(@IronOverloadUK) 's Twitter Profile Photo

Join us for our FREE online seminars on genetic for and healthcare practitioners.

Just 45 mins + Q&A.

In 60 mins gain a rapid introduction - book online (free) : bit.ly/3c9AnXV

Join us for our FREE online seminars on genetic #haemochromatosis for #Nurses #StudentNurses and #NHS healthcare practitioners. Just 45 mins + Q&A. In 60 mins gain a rapid introduction - book online (free) : bit.ly/3c9AnXV #MedTwitter #GITwitter
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Medics4RareDiseases(@M4RareDiseases) 's Twitter Profile Photo

If you listen to The Rare Disease Podcast for Medics, (which you should do by now!!) 😉you'll know that our guests submitted their favourite uplifting and inspiring songs to us for our official playlist! Hear them all now!

open.spotify.com/playlist/37rui…

If you listen to The Rare Disease Podcast for Medics, (which you should do by now!!) 😉you'll know that our guests submitted their favourite uplifting and inspiring songs to us for our official playlist! Hear them all now! open.spotify.com/playlist/37rui…
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Medics4RareDiseases(@M4RareDiseases) 's Twitter Profile Photo

Lucy is waiting to speak to GPs about Rare Disease in Primary Care with RCGP for the third year. Funded by Alexion We have 478 GPs registered for this webinar! 🙌🦓❤️⚕️ With Alex The Leukodystrophy Charity

Lucy is waiting to speak to GPs about Rare Disease in Primary Care with @rcgp for the third year. Funded by @AlexionPharma We have 478 GPs registered for this webinar! 🙌🦓❤️⚕️ With @alexTLCsupport
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Medics4RareDiseases(@M4RareDiseases) 's Twitter Profile Photo

Nadine is having a great time at the APPG report launch in Westminster today! Great to see so many of you going home with our merch too! 😍

Nadine is having a great time at the APPG report launch in Westminster today! Great to see so many of you going home with our merch too! 😍
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Child Growth Foundation(@ChildGrowthUK) 's Twitter Profile Photo

1/2

We're so pleased to have been involved in The Student Voice Prize 2023, an annual, international essay competition that raises the profile of rare diseases within the medical field.

Beacon for Rare Diseases and Medics4RareDiseases host the competition together

1/2 We're so pleased to have been involved in The Student Voice Prize 2023, an annual, international essay competition that raises the profile of rare diseases within the medical field. @RareBeacon and @M4RareDiseases host the competition together
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Hyperinsulinism UK(@CHCharityUK) 's Twitter Profile Photo

We were delighted to be partnered with a student in the Student Voice Prize a competition raising understanding and awareness of rare diseases like Hyperinsulinism within the medical community. Thank you Beacon for Rare Diseases Medics4RareDiseases The Student Voice Prize

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Medics4RareDiseases(@M4RareDiseases) 's Twitter Profile Photo

Big thank you to Beacon for Rare Diseases for a fabulous, inspirational and wonderful day at the ! We had such a great time and it was lovely to meet and catch up with so many of you!

Thank you for having us! 🤍 Until next time!! 😃

Big thank you to @RareBeacon for a fabulous, inspirational and wonderful day at the #RareShowcase23! We had such a great time and it was lovely to meet and catch up with so many of you! Thank you for having us! 🤍 Until next time!! 😃
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Medics4RareDiseases(@M4RareDiseases) 's Twitter Profile Photo

February is just around the corner and we're giving you the heads up to register now for our next Unusual Suspects event on February 21st! 😍

We can't wait to see you!

rsm.ac.uk/events/medical…

February is just around the corner and we're giving you the heads up to register now for our next Unusual Suspects event on February 21st! 😍 We can't wait to see you! rsm.ac.uk/events/medical…
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The Student Voice Prize(@RDStudentVoice) 's Twitter Profile Photo

A HUGE thank you to all the patients and advocates who participated in this year's patient pairing scheme! We made 92 pairings, the most ever in the history of 🥳@Rarebeacon Medics4RareDiseases

A HUGE thank you to all the patients and advocates who participated in this year's patient pairing scheme! We made 92 pairings, the most ever in the history of #SVP 🥳@Rarebeacon @M4RareDiseases
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The Student Voice Prize(@RDStudentVoice) 's Twitter Profile Photo

It's been one week since SVP closed for entries for 2023. Thanks to all the 100(!!) students who submitted an essay, your work is now with the judges. The winner will be announced on Rare Disease Day 2024! 🏆

It's been one week since SVP closed for entries for 2023. Thanks to all the 100(!!) students who submitted an essay, your work is now with the judges. The winner will be announced on Rare Disease Day 2024! 🏆
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Beacon for Rare Diseases(@RareBeacon) 's Twitter Profile Photo

There's just ONE WEEK to go until the !

We have over 160 attendees joining us, and we can't wait to see you all there. 🙌

Prepare to be captivated and educated by our incredible lineup of speakers and exhibitions!

👉 ow.ly/KN5S50Q4Xy3

There's just ONE WEEK to go until the #London #RareShowcase23! We have over 160 attendees joining us, and we can't wait to see you all there. 🙌 Prepare to be captivated and educated by our incredible lineup of speakers and exhibitions! 👉 ow.ly/KN5S50Q4Xy3
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