Colin's journey with limb girdle muscular dystrophy shows the power of #AssistiveTech . Now, he's advocating for a government scheme to help others access essential devices.

Read more: rb.gy/bg7el0

'I wanted to create a [garden] based on people’s experiences of living with a muscle wasting condition.' 🌲

Meet Ula, designer of our accessible #ForestBathing Garden at The RHS Chelsea Flower Show which is funded by @ProjGiveBack.

Read more: shorturl.at/mMU68

Happy birthday to our president, Gabby Logan! 🥳

Thank you for all your hard work in changing the future of muscle wasting conditions.

Passover began this week. We want to wish all our Jewish followers a meaningful and joyous Passover celebration!

We’re delighted to announce, thanks to our partnership with LifeArc and @4LilyFoundation, the establishment of a new research centre, giving hope to thousands of people living with rare mitochondrial diseases.

Read the full story: shorturl.at/akH67

Our CEO Catherine Woodhead is leaving the charity this year.

Under her leadership, we've made huge strides in research, treatments & support.

Recruitment for our new CEO will begin shortly.

Read more: tinyurl.com/4zwvpknb

We are now PIF TICK certified!✅The only independently-assessed quality mark for trusted health information. The PIF TICK shows that our information is reliable, trustworthy and produced to the highest standard. musculardystrophyuk.org/news-blogs-and…

What an incredible day.

All 180 #TeamMDUK runners have taken on and completed the 2024 London Marathon. We can’t thank them enough.

Together we are changing the future of muscle wasting conditions.

Inspired? Apply now to join us in 2025
musculardystrophyuk.org/LM25

Tomorrow 180 #TeamMDUK runners will run the London Marathon. They have been training & fundraising for months to change the future of muscle wasting conditions.

Good luck #TeamMDUK ! Thank you for showing just how much our #MusclesMatter 🧡🏃‍♂️Read more: shorturl.at/jpBHY

Sheila's survey last August asked the muscle wasting community about fashion and accessibility, revealing design insights and barriers to shopping.

Now, she's crafting workshops for designers: shorturl.at/aLMQR

We contributed to this report, highlighting inadequate NHS mental health support for people living with muscle wasting conditions.

We back SHCA's call for better care. Need support now? 📞0800 652 6352 (Mon-Thur 10am-2pm).
Browse our support groups: rb.gy/orkrej

Thank you for joining our Wales Information Day! 🙌

Our speakers shared knowledge & experiences which helped our community grow stronger!

There were valuable insights on exercise, fatigue management, & research updates.

What were your takeaways?

#MusclesMatter

We’re at Goodenough College until tomorrow for the 17th UK Neuromuscular Translational Research Conference.

Let's hear what's on the horizon for muscle wasting research!

#NMTRC #MuscleResearch #London #CureTheFuture

🌿Exploring nature shouldn't have limitations!

Martin (diagnosed with LGMD) proves it with his adventures. Read his story: shorturl.at/bcuA0

ICYMI: We've got an accessible garden at The RHS Chelsea Flower Show designed by Ula Maria & funded by @ProjGiveBack

The TCS London Marathon running show kicks off today and we’re delighted to be here! Really looking forward to meeting all of our wonderful runners over the next few days

.NICE is currently consulting on the guidance and we have created a short survey to capture further insight from the Duchenne community about the impact of existing corticosteroid treatments. Take the survey: surveymonkey.com/r/corticostero… - open until Sunday 19 April.

Today is Pompe disease awareness day. John Foxwell, who lives in Wales, shines a light on the importance of education for better diagnosis and the huge strides he's made to raise awareness. Read more: shorturl.at/hmsBL

🎉We're thrilled to announce that we've been awarded part of the Medical Research Charities Early Career Researcher Fund. This will fund seven researchers in the early stages of their career studying muscle wasting and weakening conditions.

Read more:
shorturl.at/wCOWX

West end musical theatre performer Jordan Cunningham is running the London marathon for his father and nephews with Charcot-Marie Tooth (CMT).

Jordan talks about how watching his partner complete the marathon last year convinced him to sign up: shorturl.at/moTW6

Our The RHS Chelsea Flower Show garden designer, Ula, inspired by our communities stories designed a space where one can reconnect with nature.

🌼Read her top tips for making your garden into a space for wellbeing: shorturl.at/nHXY8

Thanks to Project Giving Back.