“As you celebrate Passover may you be blessed with peace and happiness…

Congratulations to our amazing 6 runners who completed the iconic London Marathon yesterday. There is still time to show your support by making a donation.We will share their stories and pictures in the next Bear Facts Magazine.

We wish you a happy and peaceful Passover

The iconic London Marathon is taking place tomorrow.
Good luck to our 6 inspirational individuals running on behalf of the PBC Foundation.
We hope you all have a great day and have fun.
🏃🏃‍♀️🍀

Buzzing! AXON was honored to attend the PBC Foundation Summit 2024, and facilitate some lively sessions, with incredible input. With over 70 delegates working to create tangible actions to support the #PrimaryBiliaryCholangitis community, let the work begin #LifeAtAXON

Best of luck to Clare Wilson
She is running the London Marathon on Sunday

We are extremly proud of how much effort Clare has put into not only her training but her fundraising and awareness efforts.

Please support and donate on the link below;

2024tcslondonmarathon.enthuse.com/pf/clare-wilson

Do you live with #PBC and have the itch (pruritus)? We are delighted to bring you a survey which will provide a better understanding of your experience with itch and identify the unmet needs. Help the #PBC Commuity by taking part here: pbcfoundation.org.uk/new-survey-pat…
#PBC #Itch #Pruritus

Good Luck Mags Browne.
On sunday she will be taking on the iconic London Marathon for the PBC Foundation.

Please check out Mags story and support on the link below;

justgiving.com/page/mags-brow…

Good Luck Callum Fry!
On Sunday he will be running the London Marathon.
Callum's mother was diagnosed with PBC in 2011 and he has seen first hand the importance of the PBC Foundations support.
Please read his story and support on link below;

2024tcslondonmarathon.enthuse.com/pf/callum-fry

One week Maria Diamond takes on the iconic London Marathon. She had so much fun last year she is back for round two.
Thank you Maria
Good Luck
Please support and donate below;
justgiving.com/page/maria-dia…

At the #pbcSummit we joined advocates from around the world working to improve the lives of people with #PrimaryBiliaryCholangitis . Their passion and ideas inspired us and we left with lots to consider for our work ahead. Thank you PBC Foundation for leading this impactful event!

One weeks till our Amazing runners take on the iconic London Marathon.
After suffering an injury last year, we are thrilled to see David white back running for the PBC Foundation.
Good Luck🍀
Please read his story and support in the link below;
2023tcslondonmarathon.enthuse.com/pf/david-white…

#PBCSummit : Mo Christie of the PBC Foundation explains her idea of having a one stop shop PBC Website for all, whether you are a patient, a provider, or a researcher. 'We as patients want to own that website and we want to own that content.' - Danielle Alstat

#PBCSummit : The focus for day 4 of the summit is patient advocacy groups. Eddy Draws is shown here working on a mural of the conversation. Today, we as patients are working on action plans from patient perspectives. - Danielle Alstat

PBC Foundation

Until next time. ありがとう, gracias, bedankt, Благодаря ти, grazie, tapadh leat, tack, Дякую, תודה, tak skal du have, danke to this amazing group of people.
#pbcSummit

We’re in Scotland at the PBC Foundation’s International PBC Summit to engage in discussions around ways to improve the #PBC patient journey. Learn more about how the organization provides support to the PBC community: pbcfoundation.org.uk

#PBCSummit Day 3: Marlene Vincent from Intercept Pharma emphasizes health inequalities and disparities in PBC. Intercept offers a patient advocacy program in the US and heavily relies on patient experiences to guide further work. - Danielle Alstat

PBC Foundation

The background may look like some strange Scottish dancing tradition🕺🕺at our PBC International Summit in Edinburgh but it is just a change of speaker. 😂😂
#pbcSummit

A couple of the breakout sessions where ideas become actions on how to improve the patient experience for the #PBCCommunity #pbcSummit

What a fantastic way to capture the days as they progress. Thank you @eddylaurie1
#pbcSummit