Oh, we do like to be beside the seaside! Why not join us for our PWS community weekend at Southview Holiday Park, in Skegness, from 17th-20th May? Or you can just join us for the day at Natureland Seal Sanctuary on the 18th.

Find out more and book via pwsa.co.uk/events

CLOSES TOMORROW! Please nominate us for a £5,000 donation - it only takes a couple of minutes. Thank you!

All funds raised from PWS Stronger Together's #MoveItMay campaign will go towards important research into ageing in #PraderWilliSyndrome - an area we still know very little about! Find out more at pwsstrongertogether.co.uk.

Please note that all places for our Tottenham Skywalk in May are now filled - thank you!

Wishing you all a Happy Saint George's Day!

#StGeorgesDay #HappyStGeorgesDay

This evening marks the start of the Jewish festival of Passover. Chag Pesach sameach to everyone in our #PraderWilliSyndrome community who is celebrating!

#Passover #ChagPesachSameach #HappyPassover

Please nominate PWSA UK to receive a £5,000 donation through the #MovementForGood 's Health and Wellbeing Special Draw, which is open from today until Friday (26th April). Your support could really make a difference - thank you! #PraderWilliSyndrome

health.movementforgood.com/#nominateAChar…

Thank you to everyone who attended our first ever face-to-face conference for adults with #PraderWilliSyndrome on Saturday. We had a fantastic time and we hope you did too!

Good luck to our 9 fantastic runners taking part in the TCS London Marathon on Sunday (21st April) - and if you'd like to join us in cheering them along on the day, we will be at mile 20. We'd love to see you there!

#LondonMarathon #PraderWilliSyndrome

Is there a #GlowOrange location near you? #pwsstrongertogether #moveitmay

OUR NEXT TOWN HALL MEETING

Join PWSA UK Chair Danny Leslie and CEO Jackie Lodge for our next Town Hall meeting, taking place on Zoom at 7.30pm on Tuesday 23rd April.

Reserve your free spot at bit.ly/3W38VUZ

#PraderWilli Syndrome #PraderWilli #PWS

Exciting news from #pwsstrongertogether , our collaboration with Foundation for Prader Willi Research UK, about our 'Move it May' campaign for #PWSAwarenessMonth ! Find out more at pwsstrongertogether.co.uk!

MAKATON MONDAY

Hello and welcome to this week's Makaton Monday. Please watch the video to see what signs Sheila has for you today!

#Makaton Monday #Makaton #PraderWilliSyndrome

Happy Vaisakhi to everyone in our #PraderWilliSyndrome community who is celebrating today! #Vaisakhi2024

Today is #NationalSiblingsDay , which recognises and celebrates brothers and sisters of disabled children and adults, including those with #PraderWilliSyndrome .
Need support? Call our #PWS specialist team on 01332 365676 or email [email protected].

Eid Mubarak to everyone in our community who is celebrating Eid al-Fitr, which marks the end of Ramadan in the Islamic calendar. #Eid2024 #EidMubarak

We have just TWO places left on our Dare Skywalk at Tottenham Hotspur's stadium on 4th May.

Help raise vital funds for PWSA UK while also enjoying breathtaking views of London.

Interested? Contact Lizzie at [email protected] for more information.

#PraderWilliSyndrome

This new report will be of interest to families in our #PraderWilliSyndrome community.

Today we are launching our NEW report 'If Only You Knew' into the school experiences of siblings of disabled children. 202 young siblings responded to our survey. You can read the full report here. sibs.org.uk/ifonly/ Dr Georgia Pavlopoulou #Siblings

MAKATON MONDAY

Hello and welcome to this week's Makaton Monday! What signs has Sheila got for you today? Watch the video to find out!

#Makaton Monday #PraderWilliSyndrome #Makaton