New Podcast Episode: Patient advocate Jenny Angus shares her #MS story and discusses her love for #ParaDressage Listen here: bit.ly/3QokQJs

Mississippi Has Established a Rare Disease Advisory Council (RDAC) bit.ly/3UI3Y2U #RareDisease #Mississippi #RareDisease AdvisoryCouncil #RDAC

EU Researchers Begin Working on an ALS Treatment and Vaccine bit.ly/3UFlDbx #ALS #AmyotrophicLateralSclerosis #RareDisease The ALS Association

RECAP: My Time at the PBCers 2024 Patient Education Conference: “Empowering Connections in PBC” bit.ly/3ULl400 #PrimaryBiliaryCholangitis #PBC #PBC ers PBCers Organization

Health Canada Accepts Priority Review of New Drug Submission for Exa-cel for Sickle Cell Disease and Beta Thalassemia bit.ly/4a3zKfh #BetaThalassemia #SickleCell #SickleCell Anemia #SickleCell Disease #TransfusionDependentBetaThalassemia

Is INOCA the Cause of Long COVID Chest Pain? bit.ly/4bgTTiX #COVID #COVID 19 #LongCOVID

TMDU Researchers Develop Mouse Model for Anti-MDA5 Antibody-Positive Dermatomyositis bit.ly/3wf2hRa #Myositis #Dermatomyositis #AntiMDA5AntibodyPositiveDermatomyositis The Myositis Association

Radio Presenter Discusses Getting Diagnosed with Dystonia bit.ly/3UGb9J4 #Dystonia #RareDisease Dystonia Medical Research Foundation

Rare Meningococcal Disease May Present with Unique Symptoms bit.ly/4bcxP8U #MeningococcalDisease #CDC #Septicemia #BacterialMeningitis

April 30th is the First-Ever AMKD Awareness Day. Here's What You Need to Know bit.ly/3vNpklI #Apol1MediatedKidneyDisease #AMKD #APOL1Aware #ChronicKidneyDisease #CKD American Kidney Fund

Thank you to Jenny Angus for sharing her #MultipleSclerosis story on our podcast! Good luck in your #ParaDressageRider competitions this year! Listen here: bit.ly/3QjRpIq

#MS #HSCT #Disability

Study of the Week: Brain Acidity Linked to a Wide Range of Neurological Diseases bit.ly/3UyPv9r #StudyOfTheWeek #Alzheimers #Autism #Depression #Schizophrenia #BipolarDisorder

Kindler Epidermolysis Bullosa Characterized by Oral and Dental Abnormalities bit.ly/49WVFEO #EpidermolysisBullosa #EB #KindlerEpidermolysisBullosa #KindlerEB debra of America

Study of Bronchial Asthma Reveals Cause of Cell Damage bit.ly/3UCkfGz #Asthma #BronchialAsthma #Asthma Research

New Podcast Episode: Patient advocate Jenny Angus shares her #MS story and discusses her love for #ParaDressage . Thanks so much for appearing on the show, Jenny! Listen here: bit.ly/3QjRpIq

How can the #RareDisease community, as a whole, work to enhance and amplify diverse voices and diverse patient experiences?

Clinical Trial: Rinvoq 45 mg Brings ‘Rapid Resolution’ of Crohn’s Disease Symptoms bit.ly/3UvU5oR #Crohns #InflammatoryBowelDisease #Crohns Disease Crohn's & Colitis Foundation

'Kentucky Bourby' Fundraiser Aims to Support the Parkinson's Disease Community bit.ly/3Uk4GBQ #Parkinsons Disease #Parkinsons

Rare Classroom: Russell-Silver Syndrome bit.ly/3xTot3K #RareClassroom #RussellSilverSyndrome #SilverRussellDwarfism #SilverRussellSyndrome

Investigational Treatment for ADPKD Earns FDA's Orphan Drug Designation bit.ly/3JxaBi6 #OrphanDrugDesignation #ODD #ADPKD #AutosomalDominantPolycysticKidneyDisease American Kidney Fund