Read the report by our Scientific Research Correspondent James Sleigh about SMA Europe’s 4th International Scientific Congress on SMA, held back in March, which summarises some of the major findings presented at the conference: smauk.org.uk/scientific-con…

Big shoutout to everyone joining us for Ride Scorpion today to support SMA UK! 🚴‍♀️ Wishing you a fantastic day on the road and we can't wait to cheer you on at the finish line! 🎉 If you'd like to show some love to our riders, you can donate at bit.ly/3JSRbV4 Thank you!

A campaign being led by the Care Quality Commission and Healthwatch England aims to support the voice of people using care services. They want to hear experiences of health and social care to help them improve services for everyone: tinyurl.com/4fnks87y #ShareForBetterCare

Nusinersen and Risdiplam, funded through Managed Access Agreements, face expiration this year. SMA UK, with Treat SMA and MDUK, presented a unified response to NICE, advocating for continued access. Submitted on April 19th, read it here bit.ly/3Uxu0ob

Calling all super talented kids living with SMA aged 16 and under! 🎉 Join our competition to design the ultimate SMA UK Christmas Card for 2024! 🎄✨ Entries open till June 30th! 🎨 Every entrant gets a special surprise gift! 🎁 More details at bit.ly/3wqm9Rh 🎁

Our Yorkshire Picnic in the Park is coming up soon on the 18th May and tickets are going fast!🤩 Held in the beautiful grounds of Temple Newsam House just outside Leeds, and with accessible facilities, book your free places now! smauk.org.uk/picnics2024

Thank you to the incredible fundraisers who completed the London Marathon last weekend!🤩 They have raised an amazing total of over £30,000 for SMA UK as well as helping to raise awareness. Applications for our 2025 charity places are open now: bit.ly/44t2vAA

Newlife has launched a petition following the publishing of their report Fight For Our Future which shows it has never been so hard for families to access the specialist equipment they need. Find out more and add your voice 👉 newlifecharity.co.uk/sign-petition 📣

Thank you to father and daughter team Udo & Jana who completed the Shakespeare Half Marathon earlier this month and raised a wonderful total of £275 for SMA UK!🏃‍♂️🏃‍♀️ Find out how you can fundraise for SMA UK at smauk.org.uk/fundraising-ti… 🤩

Marathon in May starts today!🤩 Join the Marathon in May for SMA! 🏃‍♂️ Enjoy the challenge while supporting SMA UK. Sign up at smauk.org.uk/marathon-in-ma… 📣 Let's make a difference together! ✨

World HMV (Home Mechanical Ventilation) Day 2024 is on 20th May! Find out how you can support the event and take part in their #HMVandMe campaign: tinyurl.com/59zpty3r The more taking part, the greater the impact on raising awareness.

A big thank you to Michael who completed a 40-mile Ultra Marathon earlier this month and raised £500 for SMA UK! 🤩 He chose to fundraise for the charity in memory of his Grandad, who has SMA and passed away in 2016. Thanks so much for your wonderful support!❤️

Lyla received a grant of £5,000 towards a new chair through SMArt Moves 1.2. Read how this grant has unlocked a world of possibilities for Lyla and her family, in our latest blog, here 👉 bit.ly/3wazD3x 📣

The countdown is on! In just one week, Marathon in May for SMA kicks off! There's still room for more champions to join our cause and help us make a huge impact! Ready to jump in? Find out all the details and claim your FREE fundraising pack at smauk.org.uk/marathon-in-ma… 🏃‍♂️🎉

Movement for Good plans to donate £5,000 to ten health and wellbeing charities, and we're eager to be among them!🤩 Your vote can make a huge difference. Please support us by voting for our charity (number 1106815) before midnight on Friday 26th April 📣👉 bit.ly/3vVDhOP

A big thank you to everyone who ran the London Marathon for SMA UK over the weekend! Your incredible efforts have raised around £29,000 so far, making a real difference! You're changing lives, and we're deeply grateful for your support🌟

Huge thanks to Jeff, starting a year-long series of challenges for SMA UK! Brighton Marathon raised over £700! 🤩 Jeff aims to raise awareness & funds for SMA Type 3, crucial for families. Next: Tough Mudder in May 💪 Dive into Jeff's journey & contribute: bit.ly/3JrSrhU

National Star and Together Trust want to know how disabled young people feel about leaving school or college. There is a survey for young people: tinyurl.com/294jtfet and one for parents and carers: tinyurl.com/4yfrmadn

Both surveys are open until 11pm on 30th April.💬🌟

Hey! Wanna join our Marathon in May for SMA? 🏃‍♂️ It's a virtual fundraiser perfect for the family. Just cover a marathon distance in May, ask friends to donate, and support a great cause! Learn more at smauk.org.uk/marathon-in-ma… 🌟 Let's make a difference together!

The Carer’s Leave Act became law on 6th April, meaning that carers in England, Scotland and Wales are now entitled to one week’s unpaid leave to fulfil their caring responsibilities. 🎉🕒

Read more on Carers UK’s website: bit.ly/3JkBTbs