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I offer up-to-date guidance and statistics that benefit the Down syndrome community. Help me help others and share it with your Down syndrome networks and communities. Like and share if you think others can benefit!

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Proud to help treat four-year-old Theo's obstructive sleep apnea - a condition prevalent in people with #Downsyndrome .

Grateful to partner with Mass Eye and Ear Dr. Hartnick for this cutting edge treatment involving the Inspire device.
Read his story! 👉 massgeneralbrigham.org/en/about/newsr…

Happy to support my colleague, Clinical Research Coordinator, Mikayla today at the 15th MassGeneralChildren Pediatric Research Day.

I'm very proud of all the ongoing research the MGH Down Syndrome team continues to conduct to advance our knowledge of Down syndrome.

Not having access to a specialty clinic doesn't mean you can't get the resources, recommendations & checklists that your loved one with #Downsyndrome deserves.
DSC2U.org helps families get personalized health & wellness checklists.
👉DSC2U.org/plans

Go Jen!

The MGH Down Syndrome Program crew at the #Unstoppable MDSC Tweets Conference this weekend! Great energy, amazing speakers and wonderful company. Can't wait for next year.

#Downsyndrome #Downsyndrome awareness

Today is #WorldDownSyndromeDay .

In a study I conducted with the help of international colleagues, research showed that the US and other countries can do more to improve quality of life for people with Down syndrome.

Read more: sciencedirect.com/science/articl…

Yes to MGH Down Syndrome Resource Specialist, Ben! 💯Happy World Down Syndrome Day! What does it mean to you and those in your community? If they don't know about #Downsyndrome or this amazing day for celebrating it, SHARE THIS! #EndTheStereotypes #Downsyndrome Awareness

I am excited to participate and speak at the United Nations tomorrow on World Down Syndrome Day for an event celebrating the abilities of people with Down syndrome.

To tune in tomorrow (3/21) from 1:15 - 2:30 p.m. EST, follow this link ➡
webtv.un.org/en/schedule/20…

6 more days until World Down Syndrome Day!

Get your crazy socks! 🧦Grab a mismatched pair or colorful, crazy pair - whatever it takes to get people’s attention and get the conversation going! Then - take the opportunity to teach them something about Down syndrome!

Research opportunity!

The ABATE Study is testing an investigational vaccine that may slow the progression of
Alzheimer’s disease in people with Down syndrome. If you have DS and are between 35 - 50 years, you may be able to take part in this study. Complete the survey to see.

redcap.partners.org/redcap/surveys…

My colleague, Dr. Stephanie Santoro, MD of the MGH Down Syndrome Program was interviewed on the The Lucky Few Podcast last week In this interview, she talked about her latest research - Developing a Down Syndrome Health Instrument!

Take a listen!

theluckyfewpodcast.com/episodes/241-d…

If you have a child between 5-18 years of age with Down syndrome & are interested in hearing more about this research study, “Energy Expenditure and Weight-Related Behaviors in Youth with Down Syndrome” or see if you are eligible, click on the link below.

milwaukee.qualtrics.com/jfe/form/SV_em…

📣Self-talk is important!

Self-talk...
➡ is common in people with Down syndrome
➡ is a key player in cognitive development
➡helps to coordinate actions and thoughts

Talk to your doctor if you are concerned about your loved one's self-talk.

More info: massgeneral.org/children/down-…

Preparing your loved one with Down syndrome for a sleep study? 😴

For more tips on how to have a successful night, visit the MGH Down Syndrome resource page:
massgeneral.org/children/down-…

If you or someone you know is an adult with Down syndrome experiencing symptoms of depression, consider joining this treatment study at Massachusetts General Hospital.

Click on the link or copy and paste it into your browser for more information:
rally.massgeneralbrigham.org/study/down_syn…

🥳The MDSC Tweets Conference is back in PERSON this year - and I am thrilled to be among the presenters speaking!

I can't wait to share about Down Syndrome Clinic To You (DSC2U.org) Register for by visiting mdsc.org.

Can't wait to see everyone there!