Today, the RACGP is calling for the restoration of patient Medicare rebates for GPs interpreting electrocardiograms or ECGs. It’s impacting patient access to affordable care, timely diagnosis and management of heart conditions. This risks people’s health getting worse.  #GP

A national registry has been designed at Garvan to better understand rare diseases and connect families with new research opportunities.

Find out more: ow.ly/7aYM50QIAmJ

Did you know? 40% of those with #HCM have an identifiable gene mutation. Talk to your cardiologist about genetic testing to learn more.

Tenaya is pleased to support HCMA - Hypertrophic Cardiomyopathy Association's efforts to increase awareness of hypertrophic cardiomyopathy. Learn more at 4hcm.org.

2024 Heart Health Month article collection

In honor of this special month dedicated to cardiovascular health, Elsevier is sharing some of the top articles from our cardiology journals and all articles are freely available through March 31, 2024. spkl.io/60194xcNv

#OnThisDay in 1984, Dr Victor Chang performed Australia’s first successful heart transplant at St Vincent's Sydney. Today around 70 Australians undergo a heart transplant each year thanks to the pioneering work led by Dr Chang and his team. victorchang.edu.au/about-us/victo…
#HeartDisease

Two researchers at the University of Colorado Denver - Anschutz Medical Campus are kicking off a groundbreaking study of gene therapies for DCM.

Read a Q&A with the researchers: news.cuanschutz.edu/news-stories/c…

A five-year study by MedStar Health's Heart and Vascular Institute is the first to show rare genetic variants related to DCM.

Read more: wndu.com/2024/02/16/med…

The Rare Disease Registry is all about helping us understand how changes in DNA cause disease and ultimately how we can use that information to help benefit patients both now and in the future.

Watch now: ow.ly/zqkV50QGtAx
Find out more: ow.ly/Wi4Z50QGtAw

Thanks to a $50m MRFF grant the development of the world’s first durable #ArtificialHeart has moved a step closer! Our Prof Chris Hayward is playing a pivotal role that could see an Aust patient having BiVACOR artificial heart implanted soon at St Vincent's Sydney victorchang.edu.au/artificial-hea…

QLD Marfan/aortopathy community, join Dr. Yong Shen Wee at The Prince Charles Hospital on April 20 for a special one day conference on Marfan Syndrome and aortopathy. Gain insights from specialists, share knowledge, and support advancements in the field. fundraise.thecommongood.org.au/event/2024-mar…

Although it's the leading cause of death in Australia, many people still don't know their risk of developing heart disease. This is why getting a routine Heart Health Check might just save your life ❤️
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📢 Australian Genomics & the Australian Alliance for Indigenous Genomics ( #ALIGN ) call for a total ban on insurance companies using #genetic & #genomic test results to underwrite life #insurance policies.

Read & share our submission to the Fed Govt: tinyurl.com/4wmkzev7

#OnThisDay in 2015, researchers including the Institute's Prof Diane Fatkin @FatkinLab revealed the most common genetic cause of dilated #cardiomyopathy – changing the way families are now screened around the world: ow.ly/ZLQ050QqcAZ
@HarvardMed Imperial College London Vascular Surgery SingHealth

The Government is seeking public views on changes to laws about GENETIC DISCRIMINATION

Please contribute to positive change and have your say by filling in this simple form. It only takes a minute. Submissions close 31/01/24 discrimination.good.do/total_ban_gene…

To our #HCM community,
We are pleased to advise that Mavacamten, a novel drug authorised for use in obstructed HCM patients, has been recommended to be placed on the Pharmaceutical Benefits Scheme (PBS) by the Pharmaceutical Benefits Advisory Committee (PBAC) 🙌

The new board of the CMAA gathered on the weekend to plan our activities for 2024. We look forward to a busy year building the Association to offer more to those impacted by #cardiomyopathy . We wish you and yours a very happy festive season 🎄

Thank you for your advocacy, you are making a difference 👏

Please welcome our new president Leigh Bell! A passionate advocate for #cardiomyopathy patients, Leigh brings fresh perspectives and envisions a brighter future for our community❤️

Congratulations to Dr. Ellie Paige from @QIMRBerghofer for being awarded a 2023 Future Leader Fellowship! Dr. Paige's research is set to use genetic information, big data, and modeling to make critical contributions to cardiovascular policy and practice decisions in Australia. 🌟

A new board for #AGM2023 brings fresh leadership. Thank you to retiring members for their dedicated service. Exciting times ahead!