Today, the Grace Science Foundation celebrates the start of Asian American & Pacific Islander Heritage Month. This celebration is observed in the United States during the month of May, and recognizes the contributions and influence of Asian Americans, Native Hawaiians and Pacific…

Today, the Grace Science Foundation honors Earth Day. Earth Day is a time of the year to reflect on how your life impacts the planet.
The history of this day can be traced back to April 22nd, 1970, when U.S. Senator Gaylord Nelson founded it as a way to bring to light serious…

It is with our deepest sympathy that we share the news of a loss in our NGLY1 family. Jula passed away at the age of 1 on April 9th, 2024 in the Netherlands. Jula was a precious daughter and will be deeply missed. We send our love and support to Jula’s family and the global…

Happy Birthday to all of the April NGLY1 birthdays this month! We hope everyone is showered with April love and sunshine. Please see both pictures of all the NGLY1 April birthdays. #NGLY1 #RareDisease #Birthdays

Happy Easter from the Grace Science Foundation. It’s time for joy, family, and fun. Hope you get a basketful of all three this year! #NGLY1 #RareDisease #HappyEaster

This week is officially the start of the 2024 Major League Baseball season. “Opening Day is a celebration of the return of baseball, a time for fans to come together and enjoy the sport they love.” – Derek Jeter
#NGLY1 #RareDisease #OpeningDay

#NGLY1 #RareDisease #Birthdays

Pi Day is observed on March 14 (the 3rd month) since 3, 1, and 4 are the first three significant figures of π. It was founded in 1988 by Larry Shaw, an employee of the San Francisco science museum, the Exploratorium. #NGLY1 #RareDisease #PiDay

Dr. Kevin Lee, the Chief Scientific Officer for the Grace Science Foundation, gave a presentation on NGLY1 research. We also had the pleasure of hearing Gina Deck from Grace Science, LLC describe information on clinical trial processes. Thank you to both Dr. Lee & Gina for…

Today, we celebrate the start to women's history month. “Each person is born with very individual qualities & potential. We as a society owe it to women to create a truly supportive environment in which they too can grow & move forward.” Princess Diana. #WomensHistoryMonth #NGLY1

Happy Rare Disease Day! Meeting with the surgical team after they safely delivered GS-100 to the 1st #NGLY1 patient yesterday. This took an army. Thank you to all. Now we wait & pray for full & speedy recovery. Please send good vibes into the universe for this patient & family.…

Perfect way to spend rare disease day...dosing the 1st #NGLY1 patient with our gene therapy. Thank you to the thousands of people who made this day possible (patients, families, donors, scientists, clinicians, investors, regulators, advisors at other rare disease foundations &…

Breaking News: Grace Science, LLC has initiated a clinical trial for GS-100, a gene therapy for the treatment of NGLY1 Deficiency. Please visit the clinical trials link below for more information. #NGLY1 #ClinicalTrial #RareDisease
clinicaltrials.gov/study/NCT06199…

It is with a heavy heart that we share the news of a loss in our NGLY1 family. Willow passed away at the age of 8 on Wednesday, February 21st, 2024 in Canada. She is gone too soon & will be deeply missed. We send our love & support to Willow’s family & the global community during…

#NGLY1 #RareDisease #Birthdays

President John Adams gave a great quote to live by: 'If your actions inspire others to dream more, learn more, do more, and become more, you are a leader'. May this Presidents' Day inspire you to dream, do, learn, and become! #PresidentsDay #NGLY1

Wishing our NGLY1 families a day filled with love and laughter, and all the happiness life can bring on this Valentine's Day. You make our community so special!
#ValentinesDay #NGLY1

#ChineseNewYear #NGLY1

Today, we are featuring Dr. Kevin Lee, the Chief Scientific Officer at the Grace Science Foundation. Dr. Lee strives to help us learn more about NGLY1 Deficiency & build new relationships with scientists. #NGLY1 #Gracescience #RareDisease #Chemistry

Today, we celebrate the start of Black History Month. 'Never Be Limited By Other People's Limited Imaginations.' Dr. Mae Jemison: First African-American Female Astronaut. #NGLY1 #BlackHistoryMonth