Tofersen is an effective therapy for the 2% of people with #ALS #MND who carry a genetic variation in their SOD1 gene. Whether it is available in the UK depends on a cost threshold and assessment by NICE. The system is outdated:
theguardian.com/society/2024/a…

UK MND Research Institute MND Association

We're pleased to announce our new national MND Association Research Nurse Network - a £5 million investment to give more people with #MND access to clinical trials.

This 5 year investment will build a first-of-its-kind coordinated network of Research Nurses.

Full story below.

Luke Littler will show his support for the Motor Neurone Disease Association (MND Association) by wearing the charity's logo during the 2024 Premier League season.

👉 pdc.tv/news/2024/02/0…

In case you missed it, darts sensation Luke Littler will display the MND Association logo during the 2024 PDC Darts Premier League season.

Luke offered his support after seeing the work of the MND Association. Yet more vital #MND awareness raising.

🎯 #TeamNuke

To create our MND awareness campaign, we used three stories of people affected by MND; Mike and Zoe, Louise and Rob, and Mike.

We'd like to thank them all for the bravery they’ve shown in allowing us to film what life is like living with #MND .

Read their stories below.

#Corrie Motor neurone disease takes everything, but the MND Association is here so no one faces it alone.
 
Click here mndassociation.org/mnd-takes to show your support.
 
Watch our new advert here: youtu.be/p8HaoQaIMGo

The MND Association is here for all those living with and affected by motor neurone disease.

Tomorrow evening, tune into Coronation Street and find out how you can help us raise awareness of MND.

#MND #Corrie

Are you in #London , #Birmingham or #Manchester today…

Keep a close eye on advertising billboards, you might spot the MND Association.

Share what you see, you can help us raise awareness of #MND .

Tonight during Coronation Street, we are raising awareness of motor neurone disease for all those living with and affected by MND.

I’m very proud of what we’ve achieved and hope you all feel the same. We’re eager to show you.

Don’t make a cuppa during the ad breaks! #Corrie

Tune into Coronation Street this evening at 8pm on ITV.
 
You can help the MND Association raise awareness of motor neurone disease. No one should face #MND alone.
 
#Corrie

Check out our latest Match of the Day Match of the Day segment! 🎬

It showcases the incredible work of our Trust and includes some amazing special guests! 🐝

Watch the full feature here: youtube.com/watch?v=cAWY6H…

#CommunitySportsTrust | #RealisingPotential

I recently visited Bridges on behalf of Triangle Trust 1949 . They are a great team doing great work with young carers. And it was a privilege to meet Robyn on that that visit.

𝗔𝘁 𝘁𝗶𝗺𝗲𝘀, 𝗶𝘁 𝗰𝗮𝗻 𝗯𝗲 𝗼𝗯𝘃𝗶𝗼𝘂𝘀 𝘄𝗵𝗲𝗻 𝘀𝗼𝗺𝗲𝗼𝗻𝗲 𝗶𝘀 𝘀𝘁𝗿𝘂𝗴𝗴𝗹𝗶𝗻𝗴 𝘁𝗼 𝗰𝗼𝗽𝗲, 𝗯𝘂𝘁 𝘀𝗼𝗺𝗲𝘁𝗶𝗺𝗲𝘀 𝘁𝗵𝗲 𝘀𝗶𝗴𝗻𝘀 𝗮𝗿𝗲 𝗵𝗮𝗿𝗱𝗲𝗿 𝘁𝗼 𝘀𝗽𝗼𝘁.

Check in on those around you.

#WorldMentalHealthDay | #YouAreNotAlone | Samaritans

COUNTDOWN TO KICKOFF: It’s day one of rehearsals for the Red Pitch team - the pre-match warm up has begun! ⚽

Red Pitch returns 07 Sep for three weeks only. The guys have been getting themselves match day ready, so grab your tickets now.

bit.ly/RedPitch2023

'All the brilliant, beautiful things that have come out of the culture, that's come out from the estate' - Daniel Bailey

Audiences agree, this one's for the culture.

Red Pitch, Tyrell Williams's story of 3 Black boys from ends, returns in just 3 weeks.

🎟️ bit.ly/RedPitch2023

COME AND WORK WITH US: We have just released three incredibly exciting roles within our Marketing, Literary and Development teams 🚀

🤔 bushtheatre.co.uk/about-us/job-v…

So what type of research projects do the MND Association fund?

Our projects are split into four categories:

• Therapeutic targets
• Developing treatments
• Understanding clinical progression
• Improving standards of care

Click below to find out more about each theme.

ANNOUNCING: STAGED BY JERWOOD

This new programme, funded by a major grant from @JerwoodArts, will enable us to commission and stage 4 new plays from our Emerging Writers' Group.

First up: As We Face The Sun by Kit Withington co-directed by Lynette Linton & Katie Greenall.

The Bush Theatre in London have received a grant from @JerwoodArts to launch a two-year programme that will commission four plays by emerging writers bit.ly/3O6JHiZ

We’re helping India’s most marginalised young people to learn the skills they need to find a good job and to succeed in the workplace.
Skills valued by employers like CV Building, Interview Technique, Communication, Teamwork, Computing, and English as a Spoken Language.