And we're off! 🚀🚀🚀Exciting line up of talks, posters & discussions to get stuck into at #gers2023 on the frontiers of genomics research & medicine. Massive credit to the pink shirt army of Genomics England staff working busily behind the scenes to make it run so smoothly 🙌

👇 Part of our efforts to put transparency into practice: explaining how we collect participants' genomic and health data, what we do to safeguard it and - critically - how it's the foundation for hugely exciting advances in genomic medicine that can help patients

Do you have expertise in ethics for health and genomic research? Or data access and governance in a world of rapidly evolving technologies? If so, we need you! Vital committee roles open for helping Genomics England navigate the cutting edge of genomic medicine & research 👇

Do you have expertise in ethics for health and genomic research? Or data access and governance in a world of rapidly evolving technologies? If so, we need you! Vital committee roles open for helping Genomics England navigate the cutting edge of genomic medicine & research 👇

Do you have a passion for patient advocacy? Have you consented to take part in genomics research?

The Participant Panel at Genomics England is recruiting.

Find out how to apply 👉 bit.ly/3oZS7jg

#recruitment #patientadvocacy

Transparency, accountability, involvement & public benefit are often touted as core principles for the use of health data: I enjoyed digging into what they mean in practice with Dr Nicola Byrne National Data Guardian for Health and Social Care

So happy to see UPD back under new leadership and with a bright future ahead. Huge kudos to NHS Confederation and the Wellcome teams for making the transition 👏 Onwards and upwards for this vital work!

For families everywhere affected by rare conditions, we're proud to support research that could make a difference with our amazing NHS Genomic Medicine Service colleagues #RareDiseaseDay

This👇is required reading for anyone in the health and care data ecosystem. 'Public benefit' for data use can be such a woolly concept - National Data Guardian for Health and Social Care has done a fantastic job creating practical, useable guidance on navigating this, underpinned by quality public dialogue insights👏

I am *so* delighted to see the continuation of UPD in a brilliant new home NHS Confederation - trustworthy use of health data is ever more important as an issue to understand, explore, and do better on. Thrilled that Wellcome is supporting and will be watching proudly in 2023 😊

This 👇 is a big, ambitious project. Are there complex ethical issues to unpick? Absolutely. Qs about genome sequencing for screening research? Definitely. So we're drawing on ethics expertise - including our critics - and deep dive engagement to inform every step

A pleasure to present at #BMJresearchforum on ethical data use in an evolving world of research & technology - bringing some early insights from what I'm learning about embedding ethics in practice Genomics England

📢Amazing job alert! We're looking for an Engagement & External Affairs Director Genomics England in an exciting new role to develop strategy & centre our participants. You'll be working closely with me but don't let that put you off...😉🌟 genomicsengland.co.uk/careers/open-p…

📢Know your research regulation? Excellent at operational planning and organisation for Ethics? Interested to learn more about genomic medicine and research? Come and join us!👀👇

Another excellent, engaging and much-needed piece of work from Understanding Patient Data, designed to help answer questions about why we need large-scale data for research. So pleased and proud of the team, esp for their the brilliant co-creation approach #healthdata #healthresearch

📢⏳️One week left to apply for the role of Genomics England Access Review Committee chair - help us strike the right balance of driving brilliant genomic research while safeguarding our participants' data #genomics #data access #data ethics #PPIE

This is a big deal, really pleased to see the direction of travel, which reflects the Genomics England approach: researchers come to the data, it doesn't go to them. Far easier to maintain accountability & transparency for data use that way

👇Where #genomic research, #datagovernance , ethical conundrums & participant voices all come together: we need a brilliant someone to help Genomics England navigate access to the data we hold - advancing science while doing right by our participants. Is this you? Get in touch!👀

This is thought-provoking research that prompts us Genomics England and other science/research organisations to reflect on who we serve, or exclude, and how we should adapt to be more worthy of people's trust and confidence #dataethics

This is really important work as #data use becomes more embedded in our day-to-day lives: we must take time to learn and understand what people think, want and fear from this kind of world. Kudos to the Living With Data team for making their research so accessible 👇