OurBrainBank(@ourbrainbank) 's Twitter Profileg
OurBrainBank

@ourbrainbank

Moving glioblastoma from terminal to treatable, powered by patients. Please give. Founder Jessica Morris 1963-2021. #OurBrainBank #GBM #glioblastoma #GBMRights

ID:839539538481545216

linkhttp://www.ourbrainbank.org calendar_today08-03-2017 18:13:18

3,7K Tweets

2,8K Followers

2,4K Following

Brain Tumour Research(@braintumourrsch) 's Twitter Profile Photo

Brain tumours kill more women under 35 than breast cancer and remain the biggest cancer killer of children and adults under 40. Glioblastoma (GBM) has the most devastatingly short prognosis, and our hearts go out to Sophie Kinsella 💛

Read more ➡️ bit.ly/3UmbSPp

Brain tumours kill more women under 35 than breast cancer and remain the biggest cancer killer of children and adults under 40. Glioblastoma (GBM) has the most devastatingly short prognosis, and our hearts go out to @KinsellaSophie 💛 Read more ➡️ bit.ly/3UmbSPp
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Glioblastoma Research Organization(@glioblastomaorg) 's Twitter Profile Photo

⚠️ | Meet Ben Trotman, a warrior who is defying the odds! At 41, Ben participated in a clinical trial after being diagnosed with GBM in October 2022 before his wedding!

#GBMNews ⚠️ | Meet Ben Trotman, a #glioblastoma warrior who is defying the odds! At 41, Ben participated in a clinical trial after being diagnosed with GBM in October 2022 before his wedding!
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OurBrainBank(@ourbrainbank) 's Twitter Profile Photo

Congratulations to our board member Nicola Nuttall (shitscaredmum) for her new book THE STARS WILL STILL BE THERE. Can’t wait to add it to our recommended reading list.

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OurBrainBank(@ourbrainbank) 's Twitter Profile Photo

Share your experience with GBM care and treatment in the US. By participating in our survey, you can help us identify disparities in care and contribute to improving treatment outcomes.

Survey Link: bit.ly/OBBsurvey

Please share!

Share your experience with GBM care and treatment in the US. By participating in our survey, you can help us identify disparities in care and contribute to improving treatment outcomes. Survey Link: bit.ly/OBBsurvey Please share!
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shitscaredmum(@shitscaredmum) 's Twitter Profile Photo

Thank you so much for having us this morning BBC Breakfast & for helping to raise awareness of the biggest cancer killer of children & adults under 40. Please don’t feel obliged, but if you do want to donate, here’s our link
2024tcslondonmarathon.enthuse.com/pf/nicola-nutt…

Thank you so much for having us this morning @BBCBreakfast & for helping to raise awareness of the biggest cancer killer of children & adults under 40. Please don’t feel obliged, but if you do want to donate, here’s our link 2024tcslondonmarathon.enthuse.com/pf/nicola-nutt…
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OurBrainBank(@ourbrainbank) 's Twitter Profile Photo

Share your experience with GBM care and treatment in the US. By participating in our survey, you can help us identify disparities in care and contribute to improving treatment outcomes.

Survey Link: bit.ly/OBBsurvey

Please share!

Share your experience with GBM care and treatment in the US. By participating in our survey, you can help us identify disparities in care and contribute to improving treatment outcomes. Survey Link: bit.ly/OBBsurvey Please share!
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OurBrainBank(@ourbrainbank) 's Twitter Profile Photo

Have you been made aware of all FDA-approved additional treatment options for GBM? Has quality of life outcomes been discussed regarding all possible treatment options?

Share your experience with GBM care by participating in our survey: bit.ly/OBBsurvey

Have you been made aware of all FDA-approved additional treatment options for GBM? Has quality of life outcomes been discussed regarding all possible treatment options? Share your experience with GBM care by participating in our survey: bit.ly/OBBsurvey
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Mark Lewis(@marklewismd) 's Twitter Profile Photo

Few things are as inevitable as the word “battle” appearing in the obituary for a patient who died of cancer

But we need to reframe the disease in a manner that does not imply cowardice or ignobility for level-headed refusal of treatment

theoncologist.onlinelibrary.wiley.com/doi/full/10.16…

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OurBrainBank(@ourbrainbank) 's Twitter Profile Photo

When glioblastoma (GBM) brain cancer treatment costs millions, the question becomes: who has access to it?

Our latest article published in Forbes 👇

forbes.com/sites/forbeseq…

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Professor Richard Scolyer AO(@ProfRScolyerMIA) 's Twitter Profile Photo

Fantastic news!!!!!!

Amazingly, my latest MRI brain scan shows no recurrence 10 months since my presented with a seizure in . Median time to recurrence is 6 months.

I’m extremely hopeful that the novel combination I’ve had &

Fantastic news!!!!!! Amazingly, my latest MRI brain scan shows no recurrence 10 months since my #glioblastoma presented with a seizure in #Poland. Median time to recurrence is 6 months. I’m extremely hopeful that the novel #neoadjuvant combination #immunotherapy I’ve had &
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OurBrainBank(@ourbrainbank) 's Twitter Profile Photo

Caregivers often sacrifice their own well-being to support, advocate for, and encourage their loved one living with this horrible disease. The guilt of not having done enough as a caregiver can be consuming.

forbes.com/sites/forbeseq…

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OurBrainBank(@ourbrainbank) 's Twitter Profile Photo

Patient Power means living a 'normal' life with a glioblastoma (GBM) diagnosis. DJ Stewart spoke with us for Forbes about how even when GBM tried to end his world, he continued on living.

Read the full article here: forbes.com/sites/forbeseq…

Patient Power means living a 'normal' life with a glioblastoma (GBM) diagnosis. DJ Stewart spoke with us for @Forbes about how even when GBM tried to end his world, he continued on living. Read the full article here: forbes.com/sites/forbeseq…
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OurBrainBank(@ourbrainbank) 's Twitter Profile Photo

If you or someone you know lives in these states and are affected by Glioblastoma (18+), please help us by participating in our survey. OurBrainBank is dedicated to capturing all voices. Your insights can make a difference!

Survey Link: bit.ly/OBBsurvey

Please share!

If you or someone you know lives in these states and are affected by Glioblastoma (18+), please help us by participating in our survey. OurBrainBank is dedicated to capturing all voices. Your insights can make a difference! Survey Link: bit.ly/OBBsurvey Please share!
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OurBrainBank(@ourbrainbank) 's Twitter Profile Photo

“Really serious when I say I don't think I have ever felt happier in my life, and I have the tumor to thank for that. Even though it'll kill me, I will die a happy man.” — Rod Nordland on living with glioblastoma.

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OurBrainBank(@ourbrainbank) 's Twitter Profile Photo

OurBrainBank Chair Ed Pilkington on the White House Cancer Moonshot and GBM:

“It’s a strange sensation sitting at the keyboard and writing this sentence: I have a deep and personal connection to the President of the United states. But I do.”

forbes.com/sites/forbeseq…

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OurBrainBank(@ourbrainbank) 's Twitter Profile Photo

Are you navigating life with GBM in the U.S. (18+)? How do you feel about the care you're receiving? Caregiver? Share your journey with us by participating in our survey. Your insights can make a difference!

Survey Link: bit.ly/OBBsurvey

Shares are appreciated 🫶

Are you navigating life with GBM in the U.S. (18+)? How do you feel about the care you're receiving? Caregiver? Share your journey with us by participating in our survey. Your insights can make a difference! Survey Link: bit.ly/OBBsurvey Shares are appreciated 🫶
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