Rare Diseases IORD
@rarediseases_in
Indian Organisation for Rare Diseases (IORD) is a not-for-profit umbrella organisation with presence in India & USA, working for all rare disease stakeholders.
ID:4115681120
http://www.rarediseases.in/ 03-11-2015 18:43:35
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Just 15 days to go until #WorldOrphanUSA ! 👀
Catch sessions like, 'Innovative & sustainable ways to increase access to treatments', coming to the Global Market Access track stage April 25.
Register for the world's #1 #orphandrug & #raredisease event 👉 tinyurl.com/ytf27dud
As we celebrate the beginning of a new year, let us embrace new beginnings and look forward to a year filled with happiness, success, and good health.
#HappyUgadi
#GudiPadwa2024
Wishing you and your loved ones a joyous and colorful Holi filled with love, laughter, and unforgettable moments!
#HappyHoli
#happyholi2024
Everyone, regardless of their health condition deserves access to quality healthcare and support, especially those suffering from rare diseases: IORD president Prof. Ramaiah Muthyala.
Link: bit.ly/RareDiseaseDay…
Rare Disease Day
Ministry of Health
#RareDiseases
#RareDiseaseDay
Prof. Ramaiah Muthyala, President & CEO of Indian Organization for Rare Diseases, addressed attendees on 'Alternative Therapies for Rare Diseases' at the National Homeopathic Scientific Seminar-2024 in Hyderabad.
rarediseases.in/alternate-ther…
Ministry of Ayush
CCRH
#RareDisease
May the spirit of patriotism fill your heart with pride and and joy. Happy Republic Day 2024!'
#RepublicDay2024
3-yr-old Norman was diagnosed with a #raredisease called Amniotic Band Syndrome (ABS) that affects about one in every 10,000 kids & treated at
UMN Medical School
Check this inspiring picture story 🙂
#amnioticbandsyndrome
#UMNmed
wherediscoverycreateshope.umn.edu/orthopedic_sur…
May this auspicious festival fill your days with abundance and brighten your path ahead. Happy Makar Sankranti!
#Lohri2024 #makarsankranti2024 #Pongal2024 #MaghBihu #uttarayan2024
🚨Registration before 14 January 2024 to join us in Rome for a 3-day training to get instruments and knowledge on novel strategies to foster solutions of undiagnosed #RareDiseases cases
ℹ️Registration & more information: ejprarediseases.org/event/training…
Critical shortfall in financial aid for treating #RareDiseases at KEM Hospital, where only 20 out of 107 patients benefit from the grant. With a need of Rs 131.86cr, the hospital received only Rs 3.9cr, leaving 79.44% of patients awaiting crucial treatment
indianexpress.com/article/cities…
Equity in diagnosis is not just a goal; it's a necessity for those facing rare diseases.
Join us in pushing for global healthcare unity. Together, we can bring change to the undiagnosed.🏥
#ShareYourColours #Awareness #RareDiseaseDay #LightUpForRare
Wishing you a joyous Christmas & may the coming year be filled with new opportunities, growth, and wonderful moments your loved ones! Merry Christmas and a Happy New Year! 🎄🎉
#FestiveCheer #SeasonsGreetings #JoyfulMoments #ChristmasMagic #NewYearWishes #CelebrationTime
Staggering Statistics
Did you know that people with rare diseases make up 5% of the world's population? This makes it equivalent to the 3rd most populated country in the world! 🌍
#RareDiseaseDay #ShareYourColours #Awareness #LightUpForRare
The proportion of population lacking essential health services decreased by 15% from 2000 to 2021. By 2021, 4.5 billion people still did not have full access to essential health services: World Health Organization (WHO)
Support #UniversalHealthCoverage #RareDisease
Office of Minister for Health, Telangana
Ministry of Health
In a boost to the #raredisease advocacy groups & stakeholders, the Union Health Ministry has designated Bhopal AIIMS as a CoE for treating rare diseases, making it 12th such centres in India.
#raredisease
Rare Disease Day
Office of Minister for Health, Telangana
Ministry of Health
rarediseases.in/bhopal-aiims-b…
