Sickle Cell Disease News
@sicklecell_news
We exist to bring you science, research and clinical news about Sickle Cell Disease. We are a free digital publication dedicated to the patient community.
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https://sicklecellanemianews.com 17-09-2020 15:37:34
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Columnist Oluwatosin Adesoye explains how cardiomegaly, or an enlarged heart, is a potential comorbidity of sickle-shaped red blood cells. buff.ly/4aule0o #sicklecell #livingwithsicklecell #SCD #sicklecell disease #sicklecell anemia
The use of oxygen therapy in sickle cell disease is controversial. Learn when it should and should not be used: buff.ly/3WGaqIX
#OxygenTherapy #SickleCell #SickleCell Anemia #SickleCell Disease #SickleCell Education
The Colorado House of Representatives passed legislation that would establish a community outreach program for sickle cell disease. buff.ly/3UXH7k1 #sicklecell #livingwithsicklecell #SCD #sicklecell disease #sicklecell anemia
As columnist Dunstan Nicol-Wilson reflects on another year around the sun after his birthday, he's aware of his physical and mental health. buff.ly/3yiefKu #sicklecell #livingwithsicklecell #SCD #sicklecell disease #sicklecell anemia
Columnist Sylvia Amuta has been dealing with caregiver guilt, but recent conversations with her young cousin have shifted her perspective. buff.ly/4akwv34 #sicklecell #livingwithsicklecell #SCD #sicklecell disease #sicklecell anemia
Although columnist Mary Shaniqua is hesitant to join clinical trials, she's found another way to contribute to sickle cell research. buff.ly/3UzubPN #sicklecell #livingwithsicklecell #SCD #sicklecell disease #sicklecell anemia
Lyfgenia is a one-time gene therapy approved last year by the FDA to treat sickle cell patients, 12 and older, with a history of VOEs. buff.ly/3WyNkny #sicklecell #livingwithsicklecell #SCD #sicklecell disease #sicklecell anemia
Learn everything you need to know about blood transfusions for Sickle Cell Disease in this complete resource: buff.ly/4drEdez
#BloodTransfusions #SickleCell #SickleCell Anemia #SickleCell Disease #SickleCell Education
These therapeutic approaches can help ease symptoms and improve quality of life: buff.ly/4btvBCg
#SickleCell #SickleCell Disease #SickleCell Support
Oxbryta has become the first treatment for hemolytic anemia related to sickle cell to be recommended for NHS coverage by NICE. buff.ly/3y3NWr8 #sicklecell #livingwithsicklecell #SCD #sicklecell disease #sicklecell anemia
Columnist Mary Shaniqua explains why she hesitates to join a clinical trial, despite knowing that participation aids in treatment development. buff.ly/4bnpP5i #sicklecell #livingwithsicklecell #SCD #sicklecell disease #sicklecell anemia
Several therapies have been approved to help manage sickle cell disease and its related complications. Explore them here: buff.ly/4boNdzr
#SickleCell #SickleCell Disease #SickleCell Support
Changes in how the brain works may lead to hypersensitivity to pain in sickle cell disease, not unlike sensitivity to pain in fibromyalgia. buff.ly/4bjyHsG #sicklecell #livingwithsicklecell #SCD #sicklecell disease #sicklecell anemia
A Phase 2 bone marrow transplant trial in SCD patients using haploidentical donors and lower intensity conditioning had high survival rates. buff.ly/4dnKGY3 #sicklecell #livingwithsicklecell #SCD #sicklecell disease #sicklecell anemia
As a disability rights advocate, columnist Mary Shaniqua stresses the need to create more access in London and everywhere. buff.ly/3JC7x4n #sicklecell #livingwithsicklecell #SCD #sicklecell disease #sicklecell anemia
Fertility tests in male adolescents with sickle cell may not be feasible if it implies travel to a reproductive center, a study suggests. buff.ly/3Jx3cPV #sicklecell #livingwithsicklecell #SCD #sicklecell disease #sicklecell anemia
A Canadian researcher won the 2023 Barer-Flood Prize for her work in developing iCanCope, a mobile app to aid in sickle cell pain management. buff.ly/3U7hcVt #sicklecell #livingwithsicklecell #SCD #sicklecell disease #sicklecell anemia
PH treatment riociguat safely lowered blood pressure in people with sickle cell disease, early findings from a clinical trial showed. buff.ly/4aEjEdc #sicklecell #livingwithsicklecell #SCD #sicklecell disease #sicklecell anemia
One of the things columnist Dunstan Nicol-Wilson likes most about being a mentor is the ability to help empower younger patients. buff.ly/4aUhLst #sicklecell #livingwithsicklecell #SCD #sicklecell disease #sicklecell anemia
buff.ly/3UgEYyv #sicklecell #livingwithsicklecell #SCD #sicklecell disease #sicklecell anemia