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So true and agree Tanya Curry this needs addressing urgently for those who are eligible for Tofersen. Do you have any thoughts on being denied a second treatment for mnd (Proleukin) due to MND Association and other Consortium members agreeing a deal with ILTOO as well?
#attackmnd
David Kilgannon Please see this patient advocacy website that has a whole menu section on MIROCALS it may explain things more clearly. In essence patients are not been spoken to at all by ILTOO Pharma & on a limited level by the consortium. It really beggars belief! united2endmnd.org/mirocals/
razadu Darby Rimmer MND Foundation Rob Burrow CBE Ed Slater Here is the iltoo announcement of the mirocals consortium agreement in May 2023
iltoopharma.com/wp-content/upl…
razadu Darby Rimmer MND Foundation Rob Burrow CBE Ed Slater No the trial was a pure academic trial run by UK & France. No pharma involved. Chief investigator in UK. ILTOO were sold the rights to data after trial to produce new form of il2. But form used in trial was Proleukin. Our rolling update mirocals page
United2endmnd.org/mirocals
Lee Millard Darby Rimmer MND Foundation Rob Burrow CBE Ed Slater Lee Millard I have one question: Mirocals is a trial conducted by Iltoo, right? And Iltoo is a French company or am I wrong there? So I was wondering if you are working together with French ALS advocates. I know UK is not part of EU, but if different ALS advocacies from Europe
Patients United2EndMND need clarity on why/how #ILTOO were chosen. Can they deliver new drug as quickly as low dose #Proleukin ? If not, arrangements for alternative supplier are needed & with a contract that will get drug to MotorNeuroneDisease ASAP West Sussex North MNDA East Surrey MNDA-EastKent
