This is my friend Reggie Bibbs. Reggie is the kindest and most loving person I have ever met. His face is disfigured from a rare genetic condition called ‘Neurofibromatosis.’

After many years of never leaving his bedroom, out of shame and embarrassment, Reggie finally summoned

We have lots of #NFWarriors who want to shout about their NF1!

Here is Ember telling us about her NF1.

Ember would love it if you could give her a like but most importantly a SHARE to help her raise important #NFAwareness !

#CTT #OfCourse #YesIHave #Neurofibromatosis #NFPU

Today is NF awareness day! Help spread awareness!

Neurofibromatosis (NF) is an incurable genetic condition that causes tumors to grow on nerves throughout the body.

Follow KitKats journey at
facebook.com/CataleyasCrusa…

#EndNF #ikNowaFighter

Neurofibromatosis (NF) is an incurable genetic condition that causes tumors to grow on nerves throughout the body. Kids w/ NF have a higher risk of developing childhood leukemia & cancer. My cousin KitKat has incurable brain tumors & is on her 2nd round of chemo due to NF. #EndNF

عند ذكر

Von Recklinghausen's disease

يتوارد الى اذهاننا ذلك المرض الذي يصيب الجلد

ولكن يوجد نوعان من هذا المرض وكلنا يعرفها جيداً ولكن باسماء اخرى

Von Recklinghausen's disease of skin= Neurofibromatosis

Von Recklinghausen's disease of bone caused by Hyperparathyroidism

Meet our walk chair Melanie. She has been a part of the NF Network family for over 11 years. Melanie is inspired by her son, Zac, who has NF1. HerOrlando, FL walk is September 15. For more information and to sign up, go here...
runsignup.com/Race/FL/Orland…

Neurofibromatosis Month is observed in May every year. The aim is to raise awareness and improve the visibility of this disease where tumors grow in the nervous system. The disease is not cancerous but can cause a range of symptoms and issues in patients.
#NeurofibromatosisMonth

I have NF1... of course I have cafe au laits........

Thank you Darcey

#NFAwareness
#OfCourse
#Neurofibromatosis
#NF1
NF Patients United

Morbid Knowledge Joseph Merrick, the 'Elephant Man', suffered a tragic life. Born with neurofibromatosis, he was abandoned, exploited, and mistreated as a freak show attraction.

Despite finding refuge at London Hospital, he struggled to lead a normal life, facing social rejection and stigma.

Neurofibromatosis is an autosomal dominant disorder caused by a mutation in the NF1 gene (aso called von Recklinghausen disease) that codes for the neurofibromin protein that typically presents with skin lesions, lower and upper extremity deformities, and spinal involvement. This

Proud to see Meghana Patil presenting a very interesting and complex STEMI case in a neurofibromatosis patient at ⁦SCAI Now⁩ ! ⁦Temple Cardiology Fellowship⁩ ⁦Temple Health News⁩ ⁦Pravin Patil⁩ ⁦Anjali Vaidya MD 🫀⁩ ⁦Martin G. Keane, MD⁩ ⁦Riyaz Bashir⁩

Even though Neurofibromatosis is not visible, it can cause life-threatening symptoms such as nerve #tumours or benign #cancers . 💚💙 In this video Catherine, from NFIreland emphasizes the importance for patients to educate themselves about the #disease & #symptoms

#prevention

💙 May 17th is Neurofibromatosis Awareness Day (NF1). I was diagnosed with NF1 in 2004 whilst 7 months pregnant. I had never heard of it before. Thought that I'd be brave, & share a short synopsis of my story, & how my life changed forever with NF1 #NeurofibromatosisAwarenessDay

Vilma, de doce años, y Bambi, un chihuahua de ocho. Los dos eran de mi hermana Rosa. Cuando falleció en 2017, los adoptamos. Son inseparables. Mi hermana sufría graves discapacidades físicas: síndrome de Turner, neurofibromatosis, pelvis de Otto, una diferencia de cinco

Tonight the #CNTower will also be lit blue and green for National Neurofibromatosis Awareness Day / Ce soir, la #TourCN sera également illuminée en bleu et vert pour la Journée nationale de sensibilisation à la neurofibromatose

'Neurofibromatosis (NF) is a rare disease that causes affected people to develop tumours and many other symptoms. Approximately 250000 people in Europe are affected by NF. There are three different types of NF: #NF1 #NF2 #Schwannomatosis
Find out more nf-patients.eu/what-is-nf/

PREGUNTA RÁPIDA ⚡️ (361 / 2000)

Tipo de neurofibromatosis que se asocia con el hallazgo de la foto:

#ENARM 2024
#ENARM

Punto extra si escriben el nombre del hallazgo ****

Today is the day, it’s #Neurofibromatosis Awarenessday !

Amariah tells us about her NF1.

Amariah would love it if you could give her a like but most importantly a SHARE to help her raise important NF awareness!

#CTT #NFAwareness #OfCourse #YesIHave #Neurofibromatosis #NFPU

Modern Health Neurofibromatosis type 1 (NF1) is a multisystem genetic disorder that is characterized by cutaneous findings, most notably café-au-lait spots and axillary freckling , by skeletal dysplasias, and by the growth of both benign and malignant nervous system tumors, most notably benign

DYK -> Neurofibromatosis is the most common neurological genetic disorder, affecting 1 in 3,000 people? Learn more in EP 5 of #YourComplexBrain - “Erasing the stigma of Neurofibromatosis” featuring Drs. @suganthsuppiah & Ryan Thomas.

Listen & subscribe: bit.ly/3UymeKE