As much as I’d love to continue to tweet about #UniteToFight2024 , I’ve seen the most remarkable presentations from the best scientists we have advocating for us and I am done 🥹

Overstimulated and exhausted. I’ll be around a while trying to come back to earth 🌏

Magnificent ❤️‍🩹

Dr David Putrino Lab

'We need more sophisticated drug trials'

People need to understand the complexity, and yet all of the symptoms need to be individually treated.

'Complex illnesses require complex solutions'

Unity means equity.

#UniteToFight2024

Dr David Putrino Lab

Live and replicating virus in the body need to be targeted by antibiotics, antivirals, and monoclonals, and the combinations of these.

'We need these drugs trialled yesterday'

#UniteToFight2024

Dr David Putrino Lab demystifies diagnosis, pathobiology and treatment.

'Post-acute infection syndromes are not new or mysterious'

Not an exhaustive list. There are many more syndromes, and a lack of language to describe them.

#UniteToFight2024

Dr Michael Kacik talks about vascular disorder.

Post infection diseases, including Long COVID and MECFS show vascular disorders in the endothelium.

Vascular therapy improves multiple symptoms.

#UniteToFight2024

Hey, UniteToFight2024

You guys are taskmasters!

And you’re doing an awesome thing for us all 😉

Thank you 🙏🏼

#UniteToFight2024

Dr Sayoni Das Das introduces the PrecisionLife Analytics Platform.

Deep insights into chronic diseases which account for 80% of HC costs.

Finding novel disease signatures, identifying 14 significant genes in MECFS.

LC symptoms identified 73 genes.

#UniteToFight2024

Dr Dr. Sabine Hermisson speaks about the experience of severe ME patients.

HIDDEN - MISSING - FORGOTTEN

Living in isolation, not able to go to hospital, experiencing severe pain, too weak to eat and drink, gastroparesis that cause malnutrition and dehydration.

#UniteToFight2024

Time for a chunky Kit Kat.

🥱🥺

That last vdo by Tom Tom Molmans, MD nearly broke me.

So much good coming from #UniteToFight2024 , even if it hurts first ❤️‍🩹

Tom Tom Molmans, MD talks about psychic trauma, grief and loss, and the lack of understanding by medical people about #LongCOVID and #PAIS .

Iatrogenic harm leads to guilt, depressed and feelings of being an unworthy outcast.

'Turn your vulnerability into strength'

#UniteToFight2024

Fiona Campbell, a former nurse, was disabled by the C-19 vaccine.

'My bloods were normal, but I was not'

No clinical code for vaccine reaction.

Vaccine injured patients have been stigmatised and face the unmet need of no access to Long COVID clinics.

#UniteToFight2024

#LongCOVID is controversial and stigmatised.

Patients are marginalised. Reluctant to respond to surveys due to discrimination.

LC & ME are disease states, not mental illness. Psychology cannot stigmatise LC.

80% are psychologised by HCWs.

Thx Georg Schomerus

#UniteToFight2024

Crowdfunded, patient led, and relaunching the research centre:

dysimmune.nz

New Zealand's C-19 response: high vaccine uptake, negative mortality 20-21, unique demographic. But no clinical pathways for LC patients.

Thanks to Dr Anna Brooks

#UniteToFight2024

Breaking Long COVID down into separate phenotypes can assist in the treatment of patients.

Patient X is not cured, but has been treated and made improvements from being bedridden to return to work.

Thanks to Susan Rae for the study and the plea for FUNDING.

#UniteToFight2024

After a spectacular day/night of presentations yesterday from world class scientists talking so fast to get their many valuable points across, it’s kicking off again in an hour ⏰

Pop in to listen to the latest developments in the study of #LC & #ME .

You won’t be disappointed.

Someone found a good use for AI!

Hilarious 😆

#DontBeAMinimiser

Hey, NOVIDS 😷🦠😷

John Hopkins need you to be control participants in a survey.

Nothing but your info. No blood required.

COVID-19 research relies on all of us showing up if we can 🙏🏼❤️‍🩹

Probability is all well and good, but it’s not meant to stand in place of common sense.

Not when it comes to your life.

Plenty of us developed Long COVID after our first infection.

It’s a life lottery. When your number comes up is unknown.

Now, there’s a takeaway for you!

Thank you Ron Davis and #UniteToFight2024

Prof Iwasaki Prof. Akiko Iwasaki talks about post-acute chronic infections #LongCOVID .

Hormone predictors
Balance and coordination
Muscle strength
Brain changes in respiratory only infections
Reactivation of EBV
Sex differences

RCT of Paxlovid
Antiviral trial

#UniteToFight2024