Episode 2 of the ALADDIN Podcast is here!

Delve into to realm of patient engagment with Begonya Nafira - patient involvement expert from Hospital Sant Joan de Déu Barcelona ES.

Listen now on Spotify: podcasters.spotify.com/pod/show/aladd…
or Apple Music: podcasts.apple.com/us/podcast/the…

Take note of this job alert with Karin Straathof💙🎗 funded by Alice's Arc and testing #CART cells for #rhabdomyosarcoma Please consider working in this field and making a difference in childhood cancer. Please apply below.

In our first episode, Sara speaks to the ALADDIN Project Coordinator Dr Teresa de Rojas to learn more about the different educational activities on offer, and how the project is developing.

Listen now👇

Spotify: spotifyanchor-web.app.link/e/JDuLk5mmUHb
Apple: podcasts.apple.com/us/podcast/the…

Such a pleasure to be the host of the ALADDIN podcast series aiming to demystify the complexity of drug development for children with cancer. Please do tune in. #childhoodcancer #drugdevelopment

Such an impressive collaboration of funders, researchers & patient advocates. And now, three childhood solid tumour challenges funded. It is such a pleasure to be part of Cancer Grand Challenges with #NexTGen and congratulations to the new teams. #StrongerTogether

INTRODUCING ELSIE'S ARC - ARC 27 IN THE UK. Elsie died on January 3rd 2024 after chemotherapy & radiation failed to work. Elsie's Arc is a platform for Elsie & will contribute to raising awareness and investing in crucial research. Click here. #thearcs
alicesarc.org/arc/elsie-wool…

HOW DO WE BRIDGE THE GAP BETWEEN RESEARCH & FAMILIES? ALICE'S ARC SCIENCE & LAB DAY AT THE UNIVERSITY OF BIRMINGHAM. What a pleasure to spend rare disease day with this collection of families & scientists. Unified to change the story of RMS in the future #TogetherWeCan #RMS

LAUNCH OF OLIVIA'S ARC - 26TH ARC IN THE UK. This is Olivia, diagnosed with ARMS in her forearm, aged 4. She had chemo, surgery, radiation & a drug designed for lynch syndrome gene. Sadly, she died on 7th January 2024, aged 8. Click for more. #thearcs
alicesarc.org/arc/olivia-may…

Proud to announce new collaboration with lovethegameuk.co.uk football coaching company . LTG provides opportunities to children (5-16 years) for football activities & development, school sessions and holiday camps. LTG will work with us to fundraise and raise awareness.

Bravo to Year 8s who in the week before half-term were honing their entrepreneurial skills while raising money for Alice's Arc by making and testing healthy snacks and selling them to very appreciative Dolphins. godolphinandlatymer.com/pop-up-snack-s…

Harnessing the power of genomics can really help transform the lives of patients and their families through quicker and more accurate diagnosis, better understanding underlying causes and delivery of precision medicine for rare diseases and childhood cancer 🧬 🎗️

We are delighted to be part of this CYP Cancer taskforce. Alice's Arc will be participating in the research & innovation theme. With thanks to Caroline Dinenage & Sophie's Legacy for championing this cause. Now, to work. #TogetherWeCan #rhabdomyosarcoma #CYPCancerTaskForce

A pleasure to attend alongside other funders of childhood cancer research, patient advocates and clinicians. Always great to hear from Pass The Smile For Ben🎗🌻🐋 reminding why co-ordination & collaboration are imperative to change the dial. #thearcs #rhabdomyosarcoma

Amazing to be included in this Royal Parks Half video alongside other fantastic charities.

What a pleasure to be in Leeds on Friday with parents, clinicians, researchers coming together to discuss how this online resource can offer maximum usefulness for those facing relapsed/refractory RMS. Thrilled to be funding this with Children’s Cancer and Leukaemia Group and working with REFoRMS Project

So grateful Police Care UK

In the words of stage 4, rhabdomyosarcoma survivor, Abbe, who has been off treatment for over a decade. Watch her inspirational story. All we want for 2024 are more survivors able to thrive with minimal long-term side effects. #thearcs #rhabdomyosarcoma

youtu.be/lHSnvYRB990

Please consider attending this (costs covered)to help shape the design and functionality of an online resource aiming to provide treatment information & options for those facing an RMS relapse. We are co-funding this work with Children’s Cancer and Leukaemia Group #rhabdomyosarcoma #thearcs #StrongerTogether

'Charitable support is the cornerstone of any lab' says Susanne Gatz Uni of Birmingham.
Read about her groundbreaking work funded by Alice's Arc in the latest edition of #OldJoeMagazine :
uob.oldjoe.co.uk/A23-supporting… #BirminghamAction