🚨 𝐍𝐞𝐰 𝐏𝐮𝐛𝐥𝐢𝐜𝐚𝐭𝐢𝐨𝐧

An umbrella review, led by Sara Pinto, has been published by Journal of Pain and Symptom Management (JPSM)! It provides a state of science on patient and family #preferences about #places of #EOLcare & death.

🔗doi.org/10.1016/j.jpai…

European Research Council (ERC)

Over 400 people have now participated in the C-POS questionnaire study! This makes us one of the largest primary data #pedpc studies ever! Thank you to everyone who has taken part and to the 76 UK sites who continue to recruit to the study to reach our target of 600 participants!

👥️ 𝐂𝐨𝐥𝐥𝐚𝐛𝐨𝐫𝐚𝐭𝐢𝐨𝐧 𝐚𝐩𝐩𝐫𝐞𝐜𝐢𝐚𝐭𝐢𝐨𝐧 𝐩𝐨𝐬𝐭

We are honored to partner with IAPO. They make sure the voice and needs of #patients are heared in our research. With them we aim to drive positive change in #dyingplaces according to patients' wishes.

Today we celebrated the start of EU Navigate in Portugal with journalists, volunteer navigators and coordinators, and partners in the region 🎉 🧭

As doctors, we are failing to put patients’ needs first, causing harm at the end of life | Death and dying | The Guardian theguardian.com/society/2024/a…

Palliative care could be a game changer for public health harvardpublichealth.org/policy-practic…

Dementia Journeys Science Gallery London is open! 🥳

So great to be there yesterday and see people being drawn in by the art and interactive elements.

#Dementia #PalliativeCare #EMBEDCare #photography #graphicart #poetry

A lot of my academic focus over the past few years has been on out-of-hours community care provision, and use of Emergency care, for people near the end of life.

👇A brilliant / awful article by Adrian Chiles that simply, perfectly, explains why this matters.

Viewpoint discusses the concept of CARE (compassion, assistance, respect, and empathy) as a way physicians can practice the art of medicine in the current era of care that increasingly incorporates predictive analytics and artificial intelligence.

ja.ma/3TRqVzc

1/ People from the Black Caribbean community are under-represented in our recruitment.

It's important that their experiences are included in our research so that bereavement services are developed to meet their needs too.

New international study in J Palliative Care finds it's important to examine the factors that shape where people want to be cared for at the end of life. People may be shaping preferences based on what is feasible, as well as what they would prefer.
journals.sagepub.com/doi/full/10.11…

With our recently published umbrella review, we offer a state of science on #preferences for place of #EOLcare and death. This is a starting point to ensure preferences are met for more people.

🔗doi.org/10.1016/j.jpai…

European Research Council (ERC)
Journal of Pain and Symptom Management (JPSM) Sara Pinto
Barbara Gomes

The value and economic benefits of palliative care in primary care: an international perspective apm.amegroups.org/article/view/1… Primary care can provide palliative care cost effectively at scale EAPC VZW Usher Institute The British Journal of General Practice Richard Smith #supportivecare

Ten years after the World Health Organization (WHO) resolution on palliative care, nine since l wrote this editorial for Journal of Clinical Oncology.

Why do we still wait?

#palliativecare #pallonc #hpm ASCO

ascopubs.org/doi/full/10.12…

Very insightful and important read- not just for palliative care I would add liebertpub.com/doi/10.1089/jp…

I’m making the move from palliative care at home to inpatient care at the hospital this afternoon.

I have a bed at a really nice, new facility. It’s private, has a generous amount of space, and is very comfort-focused.

This is the best decision for me.

How do #children and #YoungPeople with #LifeLimiting conditions want to participate in self-reporting on their own #health outcomes? Lucy Coombes led a qualitative interview study to find out #pedpc . Full article: doi.org/10.1007/s40271…

“Palliative care is explicitly recognized under the human right to health. It should be provided through person-centered and integrated health services that pay special attention to the specific needs and preferences of individuals.”

who.int/health-topics/…

Telehealth Preferences among Patients with Advanced Cancer in the Post COVID-19 Vaccine Era. pubmed.ncbi.nlm.nih.gov/38467349/

“Countries should review the evidence supporting micro- and macro-economic benefits of palliative care approach in primary care and take the steps to guarantee access to all components in the Essential Package.” ⁦Tania Pastrana⁩ apm.amegroups.org/article/view/1…