EB Research Partnership
@EBResearch
EB Research Partnership funds research aimed at treating and curing Epidermolysis Bullosa (EB).
π¦ #HealEB
π¬ Find a cure
ID:1504787226
http://www.ebresearch.org 11-06-2013 16:42:16
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Was an honor taking photos for the Vedder fam, EB Research Partnership and little Patterson who lives with EB, a debilitating skin disorder. This kid has a heart of gold and inspires beyond words.Follow the links to learn a little bit more βπ»β€οΈπ¦
Top fundraisers on Team Vedder will be entered to win one of the great prizes below! Learn more and get involved at give.ebresearch.org/vedder2024
π¦ Ukulele signed by Eddie
π¦ Original Eddie Vedder Wave Art
π¦ Dark Matter Record signed by Pearl Jam
πΈ: Tim Durkan Photography
Come see us to support EB Research Partnership in Nashville at The Vinyl Lounge this Saturday! π©·π¦ tixr.com/groups/vinylloβ¦ #hookedlikehelen #butterflychildren
Seattle showed up BIG TIME at the Plunge for Elodie in honor of Patterson hosted by our incredible co-founders Jill Vedder & Eddie Vedder πππ¦π¦π₯Άπ₯Άπ₯π₯
Team Vedder is making huge waves for EB and you can join them at give.ebresearch.org/vedder2024
πΈ Photos by Tim Durkan
Thank you to the entire Seattle community who showed up to take the #PlungeforElodie !!! πππ king5.com/article/news/lβ¦
Big splash at Alki Beach this morning with EB Research Partnership co-founders Eddie Vedder and Jill Vedder ... and Patterson! westseattleblog.com/2024/04/video-β¦
POLAR PLUNGE: 100+ people, along with Team Vedder, ran into Puget Sound for EB Research Partnership this morning in honor of Patterson, a young boy from Maple Valley living with Epidermolysis Bullosa. FOX 13 Seattle
Lots of positive vibes coming from EBRP Australia!!! The GWS GIANTS stopped by the #PlungeforEB before battling out to remain undefeated this season.π¦πͺππ₯
Just a few weeks ago our CEO @michaelphund shared the stage, our mission and innovative business model with Jill Biden among other change makers at #IMAGINENonprofit . You can watch the full keynote here: youtu.be/9TV53ui60xk?siβ¦
AWS Nonprofits
From AFL legend Browny in South Australia to MLB all star Sean Casey in Pittsburg β the #PlungeforElodie is a worldwide movement to support EB! πͺπ¦π Want to join in the fun?! Head to give.ebresearch.org/virtual2024
I didnβt actually take the plunge per se this year, but I have in years past and the support is the same!
Learn about Epidermolysis Bullosa and give to support research to fight it here: ebresearch.org
Plunge For Elodie EB Research Partnership
Listen to the 1st episode of Wishlist Foundationβs interview series, Candle of Thought. What an honor to chat with Jill Vedder and Michael Hund about EB and EB Research Partnership! Listen to the interview below. Then head over to give.ebresearch.org/wishlist2024.
youtu.be/L32goYrZZug