Drag Race icon Yvie Oddly reflects on ‘deteriorating body’ and living with Ehlers-Danlos syndrome via PinkNews July 2022: buff.ly/3X12znv

#EDS #HSD #hEDS #NEISvoid #LGBTQ #Drag #Drag Race #RuPaul #Hypermobility #Talent

'Are You Choking? Throat Problems and Care in #EhlersDanlosSyndrome and #Hypermobility ' with Professor Martin Birchall - Now available to watch on YouTube: youtu.be/da0r6HZ7qHs?si…
#WorldVoiceDay
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Save the Date! Join us for a free webinar, Managing Anxiety and Mental Well-Being with VEDS, on May 29 at 7pm EST. Melissa Flint, PsyD, will discuss coping strategies for anxiety and improving your mental health. Registration coming soon. #VEDS

Calling all researchers! We are now accepting abstracts on autonomic disorders and their common co-morbidities to be presented during Dysautonomia International's 12th Annual Conference in Chicago this June. Abstract deadline May 15th. Details at DysConf.org/abstracts.

EDS, Dating & Internalized Ableism

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#EhlersDanlosSyndrome #EDS #hEDS #hypermobility #HSD #Fibro #Fibro myalgia #NEISvoid #Spoonies #Zebras #Pain #CPP

Lots coming your way for the month of May (EDS Awareness Month). And maybe a new look for our website some day.

Meanwhile, we can use your support here, thank you so much! #EDS #hEDS #HSD #NEISvoid #Zebras

chronicpainpartners.com/chronic-pain-p…

Our recent Austin Symposium, Living Better with Loeys-Dietz, Marfan, and VEDS, connected community members with experts. Here, Rachel Tays and Yvette Oviedo, meet Karen M Kim, MD. The next in-person educational event will be May 11 in Portland, Oregon. bit.ly/3uIVfU7

🌟 Celebrating 5️⃣ Incredible Years of EDS ECHO! 🌟

We reflect on a journey that began in April 2019, transforming education and care for #EhlersDanlosSyndromes (EDS) and #HypermobilitySpectrumDisorders (HSD) globally: ehlers-danlos.com/educating-empo… 🎉Project ECHO #MedTwitter #MedEd

#MedEd #EDS

More than 30 years after the Americans with #Disabilities Act took effect, federal officials are imposing first-ever rules clarifying how the law applies online. disabilityscoop.com/2024/04/15/fed…

'It’s a subtle #film ..but it is definitely touching on a topic that’s very personal to me, which is the experience of a person w a #disability or #chronicillness in a #parenting situation': buff.ly/437UiQm EDS Awareness #EhlersDanlosSyndrome #EDS

Drag Race icon Yvie Oddly reflects on ‘deteriorating body’ and living with Ehlers-Danlos syndrome via PinkNews July 2022: buff.ly/3X12znv

#EDS #HSD #hEDS #NEISvoid #LGBTQ #Drag #Drag Race #RuPaul #Hypermobility #Talent

Our recent webinar 'Finding a Job That Fits Your Needs: Federal Jobs 101' is now available online. This webinar highlights how US residents can find job opportunities for their skills and abilities both remote and on-site. and much more! Watch now: youtu.be/13JGM-o7Evs?fe…

Common Ocular Complications of Ehlers-Danlos syndrome 2019 by Dr. Diana Driscoll, fellow EDS patient and optometrist

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#EDS #HSD #hEDS #MCAS #POTS #NEISvoid #Fibro #Fibro myalgia #EyeHealth #Eyes

EDS is not rare and is under diagnosed

Advocate Nthabeleng Ramoeli on her EDS journey, #EDS care in Lesotho, and why she established an NGO to help all rare disease patients

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#EhlersDanlosSyndrome #Hypermobility #HSD , #NEISvoid #Medicine #Africa #HealthCare

ICYMI: Earlier this month, TMS sent out a newsletter to our email subscribers, updating them on all the things we have been working on in the first few months of 2024! You can access a web version of the newsletter here: buff.ly/43GBABb

EDS & Psychological Medical Trauma: An Introduction

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#EhlersDanlos #hEDS #MCAS #HSD #Hypermobility #NEISvoid #MedEd #FOAMed #MedTwitter #Doctors #Nurses #Zebras #Psychology #Trauma #MedTrauma

Ehlers-Danlos Syndromes, Gynecological complications and sexual health by Jackie Saa, Sarah Cook & Karina Sturm

buff.ly/3zKLrai #EDS #Hypermobility #HSD #Fibro #Fibro myalgia #SexualHealth #Gynecology #SexEd #MedEd #MedTwitter #NEISvoid #OBGY #OBGY NTwitter