ERN GUARD-Heart
@ERNGuardHeart
ERN GUARD-Heart is part of the European Reference Networks for rare or low-prevalence disease and focuses on rare and complex diseases of the heart.
@AMC_nl
ID:1067414340230361088
https://guardheart.ern-net.eu/ 27-11-2018 13:46:25
176 Tweets
596 Followers
217 Following
Follow People
EURORDIS-Rare Diseases Europe
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Rare Disease Day
29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
EJP RD - European Joint Programme on Rare Diseases
#EJPRD - European Joint Programme on Rare Diseases | RTs shares likes ≠ endorsement
Orphanet
The reference portal and knowledge base for information on rare diseases and orphan drugs. Orphanet nomenclature, ORPHA codes, Orphanet RD Ontology @inserm
A/Prof Jodie Ingles
Head, Clinical Genomics Lab | Program Director, Genomics & Inherited Disease @GarvanInstitute | Cardiac Genetic Counsellor | Swiftie | Opinions my own
Listen to podcast series episode 33: Hospital Helsinki – Tiina Heliö & Tiina Ojala
#podcasts #ernguardheart #EU4Health #europe #interviews #hospital #helsinki
Listen to Episode 32: Hospital Napels – Giuseppe Limongelli & Martina Caiazza (Duration: 17:22)
guardheart.ern-net.eu/podcast/32-hos…
#podcasts #EU4Health #Napels #hospital #rarecardiacdisease #guardheart
Listen to Episode 31: Hospital Trieste – Marco Merlo & Marco Masé
(Duration; 12.31)
guardheart.ern-net.eu/podcast/31-hos…
#podcasts #ernguardheart #EU4Health #europe #interviews #trieste #hospital
GuardHeart invites you to attend:
Webinar Arrhythmias and ablations in very small children
Register to receive the zoom link: docs.google.com/forms/d/e/1FAI…
#webinar #rarecardiacdisease #arrhythmia #ablations #congenitalheartdisease
Listen to Episode podcast 30: Hospital Murcia – Juan Gimeno & Maria Sabater (Duration; 11.30min)
guardheart.ern-net.eu/podcast/30-hos…
#podcasts #ernguardheart #EU4Health #europe #interviews #hospital #hospital murcia
Listen to Episode 29:
Hospital IRCCS Clinical and Scientific Institute Maugeri, Pavia –Carlo Napolitano (Duration: 21:54)
guardheart.ern-net.eu/podcast/29-hos…
#podcasts #Europe #EU3Health #ERN #networks
#guardheart #hospitalpavia #IRCCS
Listen to Episode 28: Hospital IRCCS Auxological Institute in Milan – Peter Schwartz & Luca Sala (Duration: 14:00)
guardheart.ern-net.eu/.../28-hospita…
#podcasts #ernguardheart #EU4Health #europe #interviews #hospital #hospital milan
Don't forget to sign up & join our upcoming ❤️AEPC Heart beats for education❤️ session:
🫀 Aortic valve
🗓️ Wed 6 March 17:00-18:30CET
➡️ Register now: bit.ly/3OFXBse
#AEPCcongenital #congenitalcardiology #YoungAEPC #education #aorticvalve ERN GUARD-Heart
Registration is open for our next ❤️AEPC Heart beats for education❤️:
🫀 Aortic valve
📆 Wed 6 March 17:00-18:30CET
➡ Register now: bit.ly/3OFXBse
#AEPCcongenital #congenitalcardiology #YoungAEPC #education #aorticvalve ERN GUARD-Heart
❤️AEPC Heart beats for education❤️
Learn about the importance of
🫀 Home-monitoring and cardiac devices
📆 Wed 21 Feb 17:00-18:30CET
➡ Register now: bit.ly/3OFXBse
#AEPCcongenital #congenitalcardiology #YoungAEPC #homemonitoring ERN GUARD-Heart
❤️AEPC Heart beats for education❤️ continues:
🫀 Home-monitoring and cardiac devices
📆 Wed 21 Feb 17:00-18:30CET
➡ Register now: bit.ly/3OFXBse
#AEPCcongenital #congenitalcardiology #YoungAEPC #homemonitoring ERN GUARD-Heart
Listen to Episode 27: Hospital Leuven – Rik Willems & Tomas Robyns (Duration:18:06)
guardheart.ern-net.eu/podcast/27-hos…
#podcasts #ernguardheart #EU4Health #europe #interviews #Hospital #hospitalleuven
Join us for our next ❤️AEPC Heart beats for education❤️:
🫀 Heart failure transplantation
📆 Wed 7 February 17:00-18:30CET
➡ Register now: bit.ly/3OFXBse
#AEPCcongenital #congenitalcardiology #YoungAEPC #education #HF #heartfailure #transplantation ERN GUARD-Heart
Listen to Episode 26: Hospital Copenhagen – Jacob Tfelt-Hansen & Bo Winkel (Duration: 12:19)
guardheart.ern-net.eu/pod.../26-hosp…
#podcasts #ernguardheart #EU4Health #europe #interviews #hospital #hospital copenhagen
Don't miss our next ❤️AEPC Heart beats for education❤️ hosted by ERN GUARD-Heart:
🫀 Best treatment for long QT syndrome
📆 Wed 24 January 17:00-18:30CET
➡ Register now: bit.ly/3OFXBse
#AEPCcongenital #congenitalcardiology #YoungAEPC #education #longqt #arrhythmia
