We're sad to hear of the death of James Clarke & our thoughts are with his friends & family. James was a great supporter of ours & a Doddie Champion too.

His efforts to drive MND research were tireless & he accomplished a huge amount.

Full statement:
myname5doddie.co.uk/whats-on/artic…

How amazing is this? High-5 to everyone who has been involved in Doddie Aid 💙💛💙💛💙

Take a bow #Doddieaid North & Midlands #DoddieAid - Team Barbarians Doddie Aid Wales #DoddieAid TEAM SOUTH Doddie Aid 2024 #TeamGlasgow and of course, #teamedinburgh #DoddieAid 💙💛💙💛💙

#doddieaid #myname5doddiefoundation

My Name'5 Doddie Foundation

A reminder that there's 1 week to go until our webinar for researchers focusing on our Advancing Treatments Award:
📅 18 April
⏰ 1-2pm

If you're thinking of applying, this webinar is a great chance to have questions answered & gain insights. Join here:
us06web.zoom.us/webinar/regist…

Our very own, Mairi McInnes, is running the #bostonmarathon on Monday, 15 April.

Mairi is raising £s for My Name'5 Doddie Foundation and awareness of #MND and #doddieweir 's charity.

Please give her whatever support you can.

justgiving.com/page/mairi-mci…

Still winter in the hills!

I'm currently attempting to climb all 282 Munros in honour of Dad who lost his life to #MND just 15 short of completing them himself 💔 #DoingItForDad

If you can spare anything 🙏

justgiving.com/page/munros4mnd

#142 Beinn a'Chreachain
#143 Beinn Achaladair

Take a few minutes to fill out the survey and get yourself in with a chance of winning a £100 voucher for a My Name'5 Doddie Foundation merchandise partner of your choice, and help shape future Doddie Aid events.

#DoddieAid - Team Barbarians #Doddieaid North & Midlands Doddie Aid Wales Doddie Aid 2024 #TeamGlasgow #DoddieAid TEAM SOUTH

And so... All Roads Lead To Rome is done!!!

Left Rome yesterday at 08:50. Just arrived home. Cream crackered.

I don't drink, but after completing our challenge - 'when in Rome'.

justgiving.com/page/richard-e…

More to follow, but for now. Zzzzzzz and back to work tomorrow.

A huge thank wild Luing for hosting us, karen Mac for food and Oban and Lorne rugby club for last night and for helping raise over £35,000 at the dinner. May the wind be in our favour #allroadsleadtorome #tacklingmnd #doddieaid2024 #mnd

I am sorry to inform you all our amazing dad passed away peacefully yesterday. He was a true warrior and inspiration to so many people we are so proud of him he made so many friends on this site so Thankyou everyone he will never be forgotten 💔💔
This was his favourite video 💔

Follow A View From My Camera and #theinternationalroamingbundle team as they make their way to Rome.

Show whatever support you can, but please spread the word in #mnd

#allroadsleadtorome #doddieaid #myname5doddiefoundation #doddieweir

justgiving.com/team/internati…

Our CEO, Jill Douglas, will be stepping away from her role at the end of April & becoming patron of the Foundation.

Jill will remain a key cog for the Foundation in her new role & will continue to tirelessly support the MND community 🤝

Full story 👇
myname5doddie.co.uk/whats-on/artic…

People living with MND don't have time to wait.

Today, alongside MND Association & MND Scotland, we have written joint letters to both regulators and ILTOO pharma regarding the MIROCALS trial.

Full update 👇
myname5doddie.co.uk/whats-on/artic…

Have we got an auction for you, experiences and things that are truly unique follow the link below

sliderstock.com/rome/item/Besp…

#allroadsleadtorome #doddieaid2024

Huge thanks to Jill Douglas for everything you have done as CEO of this incredible charity 💛💙
You should be so proud of what you, Doddie, and everyone involved with My Name'5 Doddie Foundation have achieved during your time at the helm!
I'm so glad to hear that you will still be involved 🥰

Congratulations and thanks to all MND patients who participated in this trial and indeed all trials. Also to the dedicated medical professionals that made this happen. Groundbreaking and beyond life changing for those that have the SOD1 gene. Incredible

A wee reminder of the Doddie Aid Sir Chris Hoy 'Coffee and Cake' social ride tomorrow morning at 10am on Zwift

The lovely Louise Minchin joining once again too 💙💛

zwift.com/uk/events/view…

The last & only MND treatment authorised in the EU was in 1995. Today, the EMA made a positive recommendation for Tofersen to treat people with SOD1-MND.

This recommendation needs to be reviewed by the European Commission but represents a landmark moment: myname5doddie.co.uk/whats-on/artic…

A wee dip this morning with some of the #dadsanddudes guys.

Good to ease off the legs from the ride yesterday.

Training for #allroadsleadtorome for Doddie Aid in support of My Name'5 Doddie Foundation

10 days to go!

justgiving.com/page/richard-e…

Team #theinternationalroamingbundle

Who's in? #DoddieAid - Team Barbarians Doddie Aid 2024 #TeamGlasgow #Doddieaid North & Midlands Doddie Aid Wales #DoddieAid TEAM SOUTH My Name'5 Doddie Foundation

A reminder of Hoy's Doddie Aid BINUS coffee and cake Zwift event!

Don't miss out 👊👇

#DoddieAid - Team Barbarians Doddie Aid 2024 #TeamGlasgow #Doddieaid North & Midlands Doddie Aid Wales #DoddieAid TEAM SOUTH My Name'5 Doddie Foundation