Oh hey that’s me 👇🏼

Have you experienced #dialysis ? We want to hear from you to help shape the future of dialysis care using A.I. and art! Please share and contact [email protected] for more info 📨

Rebecca Baines University Hospitals Plymouth NHS Trust Sharing your patient experience good 🙂 or bad 😒 can be both rewarding for the individual going through a tough journey 🙏 it also helps others with similar condition 💜 Kidney Research UK use patient experience to help future research 🫶
#IamExperienceofCare week

Ever used patient transport in the North West? Then please help us by filling out this survey….

forms.office.com/pages/response…

Patient advocates are the ideal professionals to bridge the gap between researchers/med comms professionals/industry and the wider community of patients, carers, and members of the public #ISMPPAnnual2024

One week to go for our runners in this years BelfastCityMarathon good luck to our staff & pupil teams. Their selected charity is Northern Ireland Kidney Research Fund and fundraising page👇
justgiving.com/page/nikrf-aqu…
Organ Donation Northern Ireland Charuhas V Thakar Stephen O'Neill QUB Public Health Dr Clare Mckeaveney Organ Donation Ed Aquinas

Trying to make the topic of #health #equity accessible. What does it mean, and why could it matter for individuals and their families 🙏🏻 #wellbeing #HealthAwareness #inclusion

20 years of stagnant outcomes for the rare disease IgA vasculitis

Time for change

#UKKidneyEcosystem
LifeArc Kidney Research UK

Well damn

'Shocked that nothing has changed in 20 years'

Supporter and long-term volunteer Kathryn shares her story on the huge announcement of the £10.4M LifeArc-Kidney Research UK Centre for Rare Kidney Diseases and what it means to her.

Read her story: bit.ly/49ZnUTu

Tremendously proud to see the Needling Patient Reported Experience Measure (NPREM) featured in the Kidney PREM. It's a questionnaire co-produced by those with lived experiences to improve needling for others. Fez Awan Suzi Turton The UK Kidney Association Kidney Care UK
kidneycareuk.org/get-involved/k…

My sis was almost 18 when I got poorly…… come listen to how my kidney disease has affected her on April 25th #chronicallychristy

Kidney Quality Improvement Partnership NW Kidney Network Kidney Care UK A great meeting making kidney care more patient focused.

I found this graphic from Roy Lilley 💙 which sums up using patient experience to drive improvements

Amazing turn out for such an early start for the North West! Exciting to see so many people enthusiastic about using PREM to drive imrovement NW Kidney Network Kidney Care UK

Thank you to BBC Radio 1 Newsbeat for highlighting the shortage of organ donation within ethnic minority backgrounds. Skip to 3.34 to listen to Neerja discussing this.

👂 Listen here bbc.in/49PEeGd

The potential of the collaboration will hopefully help kidney patients of all ages 🫶🏾

We are thrilled to be a part of this collaboration, and look forward to working together in bridging the gaps within rare diseases

A privilege to speak on Getting It Right First Time (GIRFT) Academy to Fellows, with Fez Awan and Jo Fitzgerald 💙 #dreamteam

Brilliant improvement projects underway with significant professional diversity and every “habit of an improver” present 🤩

#bestkindofMonday #coproduction #improvement4impact

What the HS? An informative ~ 6-minute animation about #HidradenitisSuppurativa (HS), developed by Patientforeningen HS Danmark (Patientforeningen HS) and their clinical colleagues at Dermatologisk Afdeling, Sjællands Universitethospital, Rosklide, Denmark.
youtube.com/watch?v=pxx1Zq…

The “melting pot recipe” for effective young adult kidney clinics! tinachrys #sprclub2024