Hairy Cell Leukemia Foundation(@HCLFoundation) 's Twitter Profileg
Hairy Cell Leukemia Foundation

@HCLFoundation

Official Twitter profile for the Hairy Cell Leukemia Foundation, a nonprofit dedicated to patient education and research in HCL. https://t.co/jOwrcRSFER

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linkhttps://www.hairycellleukemia.org calendar_today21-07-2021 15:32:48

222 Tweets

154 Followers

129 Following

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🌟 NEW SERIES!

Please mark your calendars for May 3 at 12:30 pm Eastern for a new webinar series about clinical trials in hairy cell leukemia. Dr. Robert Kreitman from the NCI, NIH will discuss his open trials in HCL. A Q&A will follow.

Register at: hairycellleukemia.org/calendar/2024/…

🌟 NEW SERIES! Please mark your calendars for May 3 at 12:30 pm Eastern for a new webinar series about clinical trials in hairy cell leukemia. Dr. Robert Kreitman from the NCI, NIH will discuss his open trials in HCL. A Q&A will follow. Register at: hairycellleukemia.org/calendar/2024/…
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Tomorrow, join us from 3-4 pm Eastern for an HCL Variant Community Roundtable. This Zoom forum is a place for patients and families to connect, ask questions, and support each other.

Join us! Register via the link provided: hairycellleukemia.org/calendar/2024/…

Tomorrow, join us from 3-4 pm Eastern for an HCL Variant Community Roundtable. This Zoom forum is a place for patients and families to connect, ask questions, and support each other. Join us! Register via the link provided: hairycellleukemia.org/calendar/2024/…
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Join us for the upcoming HCL Variant Community Roundtable on April 10 from 3-4 pm Eastern time. Connect with others affected by the variant form of HCL to share stories, ask questions, and offer support. Register at: hairycellleukemia.org/calendar/2024/…

Join us for the upcoming HCL Variant Community Roundtable on April 10 from 3-4 pm Eastern time. Connect with others affected by the variant form of HCL to share stories, ask questions, and offer support. Register at: hairycellleukemia.org/calendar/2024/…
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🟒 You can still register for tomorrow's online meeting! Our Women's Group roundtables allow women impacted by HCL to connect, share stories, and support each other.

We look forward to having you join us!
Register:
hairycellleukemia.org/calendar/2024/…

🟒 You can still register for tomorrow's online meeting! Our Women's Group roundtables allow women impacted by HCL to connect, share stories, and support each other. We look forward to having you join us! Register: hairycellleukemia.org/calendar/2024/…
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A rare disease like HCL can be misunderstood as less challenging, but variants can complicate diagnosis. Don't underestimate HCL; seek expert evaluation and treatment to manage the disease properly. Learn more from our recent webinar: hairycellleukemia.org/february-2024-…

A rare disease like HCL can be misunderstood as less challenging, but variants can complicate diagnosis. Don't underestimate HCL; seek expert evaluation and treatment to manage the disease properly. Learn more from our recent webinar: hairycellleukemia.org/february-2024-…
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Cells have markers on their surface that identify them as a specific type. Flow cytometry allows us to identify the markers and the cell.

During our last webinar, Dr. Tim Call discussed this fascinating process: hairycellleukemia.org/february-2024-…

Cells have markers on their surface that identify them as a specific type. Flow cytometry allows us to identify the markers and the cell. During our last webinar, Dr. Tim Call discussed this fascinating process: hairycellleukemia.org/february-2024-…
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Join us tomorrow from 4-5 pm Eastern for our online Clinical Trials roundtable. We'll hear from a patient who has participated in an HCL clinical trial using vemurafenib and rituximab.

Register using this link: hairycellleukemia.org/calendar/2024/….

Join us tomorrow from 4-5 pm Eastern for our online Clinical Trials roundtable. We'll hear from a patient who has participated in an HCL clinical trial using vemurafenib and rituximab. Register using this link: hairycellleukemia.org/calendar/2024/….
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🟒 Join our Women's Group Roundtable on April 3.

This online meeting is an opportunity for women with HCL to connect and provide support to one another. We warmly invite women everywhere to join us for this inclusive and supportive gathering on Zoom.
hairycellleukemia.org/calendar/2024/…

🟒 Join our Women's Group Roundtable on April 3. This online meeting is an opportunity for women with HCL to connect and provide support to one another. We warmly invite women everywhere to join us for this inclusive and supportive gathering on Zoom. hairycellleukemia.org/calendar/2024/…
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HCL cells build up in the bone marrow and spleen, leading to low normal blood counts and higher infection risk. In a recent webinar, Dr. Tim Call discussed a case where pneumonia presented first and HCL was ultimately diagnosed. Learn more at: hairycellleukemia.org/february-2024-…

HCL cells build up in the bone marrow and spleen, leading to low normal blood counts and higher infection risk. In a recent webinar, Dr. Tim Call discussed a case where pneumonia presented first and HCL was ultimately diagnosed. Learn more at: hairycellleukemia.org/february-2024-…
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πŸ“† Upcoming Event: Clinical Trials Roundtable

On March 28, gain insights into HCL clinical trials from patients who have participated. Register here: hairycellleukemia.org/calendar/2024/…

πŸ“† Upcoming Event: Clinical Trials Roundtable On March 28, gain insights into HCL clinical trials from patients who have participated. Register here: hairycellleukemia.org/calendar/2024/…
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On Feb. 29th, Dr. Tim Call discussed key indicators for diagnosing HCL, including pancytopenia. Access presentation materials here: hairycellleukemia.org/february-2024-…

On Feb. 29th, Dr. Tim Call discussed key indicators for diagnosing HCL, including pancytopenia. Access presentation materials here: hairycellleukemia.org/february-2024-…
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πŸ“… TOMORROW

Are you the spouse, partner, or close family member of someone with hairy cell leukemia?

Please join our Family Support Roundtable this Wednesday, March 20, for conversation, support, and encouragement!

Register now: hairycellleukemia.org/calendar/2024/…

πŸ“… TOMORROW Are you the spouse, partner, or close family member of someone with hairy cell leukemia? Please join our Family Support Roundtable this Wednesday, March 20, for conversation, support, and encouragement! Register now: hairycellleukemia.org/calendar/2024/…
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Struggling with a decreased appetite during HCL treatment? Cancer and its therapies can diminish your desire to eat, leading to nutritional deficiencies. Combat this issue with eight tips from HCL Center of Excellence Scripps Health: shorturl.at/ovKLM

Struggling with a decreased appetite during HCL treatment? Cancer and its therapies can diminish your desire to eat, leading to nutritional deficiencies. Combat this issue with eight tips from HCL Center of Excellence @ScrippsHealth: shorturl.at/ovKLM
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🌟 Are you the spouse, partner, or close family member of someone with HCL? Please join our Family Support roundtable next Wednesday, March 20.
hairycellleukemia.org/calendar/2024/…

🌟 Are you the spouse, partner, or close family member of someone with HCL? Please join our Family Support roundtable next Wednesday, March 20. hairycellleukemia.org/calendar/2024/…
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Join us for an HCL Coffee Chat tomorrow at 1 pm Eastern. Connect with other HCL patients and families from around the world for support and community.

Register at hairycellleukemia.org/calendar/2024/…

Join us for an HCL Coffee Chat tomorrow at 1 pm Eastern. Connect with other HCL patients and families from around the world for support and community. Register at hairycellleukemia.org/calendar/2024/…
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Please read our latest blog, 'Sharing Your Rare Disease Stories of Hope and Resilience.'

A heartfelt thank you to all who shared their stories on ! Read the blog here: hairycellleukemia.org/blog/2024/3/8/…

Please read our latest blog, 'Sharing Your Rare Disease Stories of Hope and Resilience.' A heartfelt thank you to all who shared their stories on #RareDiseaseDay! Read the blog here: hairycellleukemia.org/blog/2024/3/8/…
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β˜• Connect with other patients next week!

Please register for our coffee chat on March 12 at 1 pm Eastern (noon Central, 10 am Pacific). Everyone is welcome to join, no matter where you live.

Learn more and register through the HCLF website: hairycellleukemia.org/calendar/2024/…

β˜• Connect with other patients next week! Please register for our coffee chat on March 12 at 1 pm Eastern (noon Central, 10 am Pacific). Everyone is welcome to join, no matter where you live. Learn more and register through the HCLF website: hairycellleukemia.org/calendar/2024/…
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Dr. Charles Chu from the University of Rochester Medical Center presented a study on innate immune cells in indolent B-cell non-Hodgkin lymphomas, like HCL at .

Read their abstract: ashpublications.org/blood/article/…

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Today is Rare Disease Day. Please consider donating to the Hairy Cell Leukemia Foundation!
form-renderer-app.donorperfect.io/give/hclf_dona…

The HCLF is a nonprofit 501c3 organization, and over 90% of every dollar goes directly to research and programs for patients.

Today is Rare Disease Day. Please consider donating to the Hairy Cell Leukemia Foundation! form-renderer-app.donorperfect.io/give/hclf_dona… The HCLF is a nonprofit 501c3 organization, and over 90% of every dollar goes directly to research and programs for patients.
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