To mark #RareDiseaseDay 2024, Alexion and OrphanDev Network have published the second edition of their Rare Disease “Crossed views” report, entitled “Rare Diseases: When Women Advocate.”
bit.ly/WhenWomenAdvoc…
It’s so wonderful seeing what an impact our Rare Moments page had on the rare disease communities this year! Check out our blog to hear some key highlights from #RareDiseaseDay 2024! bit.ly/4ayNgbV bit.ly/3W1WKIa
I love being on a team that elevates the rare disease communities! Find out what Worldwide did for #RareDiseaseDay 2024 in our recent blog: bit.ly/4ayNgbV bit.ly/3W8fdCN
'There is a very Irish attitude to people with disabilities that are not visible, if you don't have a missing limb or are not using a wheelchair or crutches: 'Sure you’re grand aren’t ye?'
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#MDIRareConditionAwareness #RareDiseaseDay
25 Disturbingly Bizarre Things Found Inside People #RareDisorders #RareDiseaseCure #RareDiseaseDay #RareDiseaseFight #RareDiseaseFoundation [Video] On rare occasions, people end up with things in their body that shouldn't be possible. Here are 25… dlvr.it/T5tL8q
25 Disturbingly Bizarre Things Found Inside People #RareDisorders #RareDiseaseCure #RareDiseaseDay #RareDiseaseFight #RareDiseaseFoundation [Video] On rare occasions, people end up with things in their body that shouldn't be possible. Here are 25… dlvr.it/T5tKt4
Every Color Matters helping cancer patients who are often overlooked #RareDisorders #RareDiseaseCure #RareDiseaseDay #RareDiseaseFight #RareDiseaseFoundation [Video] For those facing rarer forms of the disease, often overlooked by larger advocacy groups,… dlvr.it/T5jVQr
Every Color Matters helping cancer patients who are often overlooked #RareDisorders #RareDiseaseCure #RareDiseaseDay [Video] For those facing rarer forms of the disease, often overlooked by larger advocacy groups, finding support can be especially… dlvr.it/T5jVRS
FRIDAY NIGHT FRENZY PREVIEW: Game of the Week #RareDisorders #RareDiseaseCure #RareDiseaseDay #RareDiseaseFight #RareDiseaseFoundation [Video] Marc Robbins gave a preview of the game of the week and UConn ... dlvr.it/T5hH0S
US implements new color-coded system to warn Americans about heat danger #RareDisorders #RareDiseaseCure #RareDiseaseDay #RareDiseaseFight #RareDiseaseFoundation [Video] A new color-coded heat warning system was introduced by the National Weather Service… dlvr.it/T5vYkr
FRIDAY NIGHT FRENZY PREVIEW: Game of the Week #RareDisorders #RareDiseaseCure #RareDiseaseDay #RareDiseaseFight #RareDiseaseFoundation [Video] Marc Robbins gave a preview of the game of the week and UConn ... dlvr.it/T5hH7k
Maine woman shares fight with Cushing’s disease #RareDisorders #RareDiseaseCommunity #RareDiseaseCure #RareDiseaseDay [Video] The rare hormone disorder, which can mimic other conditions, can be difficult to diagnose. It affects about 15 million ... dlvr.it/T5wXLK
Two Hunters Died of Rare Prion Disease. Doctors Suspect a First-of-Its Kind Deer Transmission #RareDisorders #RareDiseaseCure #RareDiseaseDay #RareDiseaseFight [Video] Two recent cases of prion disease in the U.S. may have been caused by contaminated… dlvr.it/T5mjlm
Maine woman shares fight with Cushing’s disease #RareDisorders #RareDiseaseCommunity #RareDiseaseCure #RareDiseaseDay [Video] The rare hormone disorder, which can mimic other conditions, can be difficult to diagnose. It affects about 15 million ... dlvr.it/T5wXL6
Celine Dion, 56, stuns in energetic shoot after Stiff Person diagnosis #RareDisorders #RareDiseaseCure #RareDiseaseDay [Video] Celine Dion, 56, looked stunning in a new energetic shoot as she spoke about 'learning to live' with cruel Stiff Person ... dlvr.it/T5sqTK
Two Hunters Died of Rare Prion Disease. Doctors Suspect a First-of-Its Kind Deer Transmission #RareDisorders #RareDiseaseCure #RareDiseaseDay [Video] Two recent cases of prion disease in the U.S. may have been caused by contaminated deer meat, though the… dlvr.it/T5mjZv
Celine Dion, 56, stuns in energetic shoot after Stiff Person diagnosis #RareDisorders #RareDiseaseCure #RareDiseaseDay [Video] Celine Dion, 56, looked stunning in a new energetic shoot as she spoke about 'learning to live' with cruel Stiff Person ... dlvr.it/T5sqKr
'people might not think that you’re able to do something and they might exclude you from their plans. It would be better for people not to assume and ask anyway.'
🔗Tap the link for more.
#RareDiseaseDay #MDIRareConditionAwareness
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Get involved in #RareDisease advocacy in YOUR town!
Join our webinar on Thursday, April 25 at 7pm ET to learn how to volunteer with NORD. One panelist, Abby, will share how she got her town to #LightUpForRare on #RareDisease Day!
RSVP now: bit.ly/3UeXurT
