Carers face physical and emotional challenges that can easily restrict their lives. Older carers bear the responsibility of looking after their loved ones and themselves which navigating the changes that age can bring. For more information and support: loom.ly/pTgY4Mg

This #InternationalDayOfCharity we'd like to thank everyone who has supported our #HuntingtonsInMind campaign. ✉️

As parliament is back in session, it's a brilliant time to support our campaign.

You can use our template letter to send to your local MP: loom.ly/GBFyPOc

Cruinniú eile #SEAS22 ar maidin le Robbie Gallagher, Fianna Fáil 💬

Bhí deis ag Nollaig Mac Giolla Thuile, Orlaith Nic G & Seán Ó Murchadha cúrsaí Muineachán Le Gaeilge mar aon leis na héillimh náisiúnta a phlé ✅

#Gaeilge #Gaeltacht #Gaeilge 4All

Why focus upon 'MISSION: isPOSSIBLE'?
Happy Father's day from all at HDANI.
International Men's Health Week (MHW) begins on the Monday before Father's Day and ends on Father's Day itself. ow.ly/ugs050JwTA2

Don't forget you can listen to Sarah Winckless MBE, British Rower and former member of Team GB discussing how Huntingdon's has affected her family and how she is living whilst at risk. Tuesday 21 June at 7pm. ow.ly/pya650Jt9xi

Children and Young People who are at risk of inheriting HD or who have a close family member with HD are welcome to attend this event ow.ly/9XjO50JwTt6

Don't miss hearing from British Rower and former star of Team GB discussing how Huntingdon's Disease has affected her family and how she has dealt with living while at risk ow.ly/7Zv050Jt9uC

HDANI are proud members of the NI Rare Disease community and the NIRDP offer a range of opportunities to empower and connect families affected by any rare disease!@NI_RDP

We're calling for the full reopening of all day centres, short breaks & respite support across Northern Ireland. These services still haven't returned to pre-Covid levels & some of our carers haven't had a break in over 2 years. #CarersWeek

carersuk.org/NI/carers-week…

Join our team! (Or share with someone who would be great for this role)

Full Time Family Support Worker needed
(Primarily Western Trust)

communityni.org/job/full-time-…

#jobfairy #nijobs #jobs #newjob

What an incredible support Revolut customers gave to a worthy charity The Late Late Show! Granted, there were some challenges at the peek of the live campaign. So, I've personally donated €100K, and will also match any further donations this weekend via Revolut up to €1M.

📣Northern Irish Neuro Community. I'm doing some research and would appreciate a RT

Looking for people with progressive neuro conditions who have tried to access rehab to share their experiences

🎥 Watch: ulster.cloud.panopto.eu/Panopto/Pages/…
📧 Contact: [email protected]

Really insightful video interview on Front Line Genomics with our Patron Sarah Winckless who talks about how finding out she is gene positive for #Huntingtonsdisease affected her and the fulfilment she finds in her role with SHA. bit.ly/3ncUZEZ Huntington's Disease Association HDANI Huntington's Disease Association of Ireland

Are you a Social Worker? We have an informative guide for Social Workers that want or need to learn more about Huntington's disease.

You can find the full guide on the link below.
loom.ly/HcSJuU8

#SocialCare #SocialWorker #LetsTalkHuntingtons

Do you remember when you joined Twitter? I do! #MyTwitterAnniversary

Royal College of Occupational Therapists Huntington's Disease Association of Ireland EHDN News EHDN Collaborations Scottish Huntington's Association HDANI yippee the video versions of our #OccupationalTherapy clinical tips series. More to come...think we did 12 in all.

RCOT Neuro Practice Royal College of Occupational Therapists
RCOT Mental Health Huntington's Disease Association HDANI HDYO
EHDN News EHDN Collaborations
Scottish Huntington's Association Huntington's Disease Association of Ireland

We're updating the Best Practice Guidelines. Interested? Please join us

hda.org.uk/events/occupat…

Have ideas? Share them; let’s make things better. Register now!
Carol McCullough 🦓 ⚡🐬🗿 Miriam Martin Michaela Hollywood MBE Michael Holden MBE Dermot Devlin he/him Bernie Drayne helen hamill 👨🏻‍🦽 Patient and Client Council (PCC) Christine Collins MBE RCGPNI MNDA Northern Ireland HDANI The PSP Association Deirdre Heenan Michelle Tennyson BSc MPA CF Liam Farrell
Please RT

MS Ireland Huntington's Disease Association of Ireland IMNDA Dementia Research Network Ireland HDANI MNDA Northern Ireland please retweet.
Research based in Dublin

Peugeot Peugeot Ireland #peugeot
I'm actually desperate at this point as it is a wheelchair adapted van and the only source of transport for my little girl that we had to fundraise for in the first place.