Indian Prader-Willi Syndrome Association
@IPWSA_
Indian Prader-Willi Syndrome Association(IPWSA) is a non-profit trust founded & run by parents of PWS angels. Connect with us at [email protected]
ID:1417791411336982528
21-07-2021 10:21:43
322 Tweets
83 Followers
44 Following
Depression, bipolar disorder, and other serious mental health challenges are a particular risk for people with PWS. What signs should caregivers watch for? Download our guide to Serious Mental Health Problems in PWS. #PraderWilli fpwr.us/49NJA5L
Medicines, especially antibiotics that have a red vertical line on the packaging, should never be consumed without consulting a qualified doctor. Be aware, Be safe.
#AntibioticResistance #ReadTheRed
PraderWilli syndrome indiatoday.in/lifestyle/heal… via @indiatoday came across this very well explained article on PWS, however they have missed mentioning that help and support group is available right here in India. Aroon Purie Sir-let’s complete this story.
Ministry of Health We need funds to treat children with Prader Willi Syndrome too. #policymakers toi.in/ClsMwZ
The Untold Story of India’s Rare Disease Management Saga ethealthworld.com/s/pp1s6bj # via ETHealthWorld We need media support to spread PWS awareness.
🚨 IT'S RARE DISEASE DAY GLOBALLY! 🚨 Join us marking #RareDiseaseDay 2024! Spread awareness, share stories, and support those living with rare diseases. Together, we make a lasting impact! #ShareYourColours
Congratulations ORDIndia for a decade of dedicated work for the future of #RareDisease community in #India #RareDisease Day2024 #RareDisease Awareness
#RareDiseaseDay #RareDiseaseDay 2024
Explained in simple regional language
🩵🩷💚💜
KMC Health Department on Rare Diseases| পুর ক্লিনিকে বিরল রোগের চিকিৎসা youtu.be/2JpVGRsz-aY?si… via YouTube
Some #GoodNews in a long time, Thank you Kolkata Municipal Corporation Atin Ghosh Official Sir 🙏
Kudos to Kolkata Municipal Corporation Atin Ghosh Official Sir for this BIG announcement of their PILOT PROJECT for #Rarediesease screening #WorldRareDiseaseDay
Bengal leaving footprints for the nation to follow! Rare Disease Day RARE Revolution Magazine EURORDIS-Rare Diseases Europe ORDIndia 𝐇𝐞𝐚𝐥𝐭𝐡 𝐓𝐢𝐦𝐞𝐬 India Medical Times