A great boost for the last day on #ERA24 ! A very clear and notable session on Karla guidelines for PKD.

🙌Many thanks to Roser Torra and Olivier Devuyst for moderating this session.

💡Speakers: Vicente Torres, Djalila Mekahli, Roser Torra

Thread by #SoMe team member

-1 to #ERA24 ! Excited to reconnect, catch up on research, and network with patients and scientists. Visit PKD International at Booth D615, (we’re near the coffee, the square and the research zone!) come #MeethePatients !

Only 2 days to #ERA24 and we are very excited about the many #ADPKD #ARPKD sessions! Join us at the PKD International Booth D615 and get in touch to schedule a meeting!

Wonderful! We will be forever grateful to our first president for her unwavering dedication to supporting PKD patients. Her belief in international collaboration truly inspired our work and set a powerful example. 🌷

Only 1 week to #ERA24 ! We're eager to attend the many sessions on #ADPKD and #ARPKD .Come and see us at the PKD International Booth D615

📣 Journée scientifique POLYKYSTOSE - CRMR MARHEA
🗓️ 13 Sept 2024 à BREST
👍🏻 Nouvelles recommandations, actualités scientifiques, experts nationaux et internationaux
➡️ Inscription gratuite mais obligatoire, places limitées 👇

filiereorkid.com/%C3%A9v%C3%A8n…

🎉 Excited to welcome our new board! Their experience & passion will drive us forward. Join us in wishing them the best on their journey! #NewLeadership #TeamWork #ADPKD #ARPKD PKD International

🕊 In light of the recent passing of our President, our team is currently focusing on internal matters. We appreciate your patience as we work to regain full access to our social media accounts. Thank you for your understanding. - PKD International #InMemory Tess Harris ((in need of another kidney sadly))

KDIGO 👉This represents a huge amount of work amazingly leaded by #vtorres and #odevuyst with the endless support of KDIGO. It is an important step forward towards a better care for #adokd PKD Foundation PKD International ERA - European Renal Association American Society of Nephrology ISN Education

🔝article on PGT (preimplantation genetic testing), one of the procedures with less equity across countries 🌎.
important for inherited kidney disease. KDIGO guideline on #ADPKD will also cover this👌
ERKNet Fundació Puigvert PKD Foundation PKD International journals.lww.com/jasn/abstract/…

The KDIGO Clinical Practice Guideline for the Evaluation, Management, and Treatment of Autosomal Polycystic Kidney Disease ( #ADPKD ) is available for public review through Friday, November 17. 

You can download the KDIGO ADPKD Guideline Public Review Draft and Data Supplement on

PKD Charity UK PKD International PKD Zystennieren e.V. Fed. Nac. ALCER oficial FEDERG AISBL AIRP - Associazione Italiana Rene Policistico ets

Researchers at the Royal Free London (and beyond) are looking into the big question of how much salt should be in dialysis fluid for optimal results. Discover more about this fascinating worldwide study here 👇

royalfree.nhs.uk/news-media/new…

The cardiorenal syndrome refers to a group of complex, bidirectional pathophysiological pathways involving dysfunction in both the heart and kidney. This Review focuses on the cardiorenal syndrome encountered in the hospital setting bit.ly/CJASN064

Paediatric Nephrology representation at the British Transplant Games #britishtransplantgames2023
BAPN Southampton Children's Hospital Evelina London Royal Hospital for Children, Glasgow Nottingham Children’s Hospital and NNU University Hospital Southampton 💙 Transplant Sport Ready Steady Go SCH

KDIGO is pleased to announce the publication of “Managing the Symptom Burden Associated with Maintenance Dialysis” in Kidney International. The Conference Report is based on the KDIGO Symptom-Based Complications in Dialysis Controversies Conference in May 2022.

Read the News Release:

Some of our favourite moments from the awesome British Transplant Games, Coventry last week! 🏃👨‍🦯👨‍🦽 🚴

4 days, 1000+ competitors, 25+ events raising awareness of organ donation, encouraging active lives, and honouring donors and families! 💜

Roll on 2024, Nottingham! 👀

Sharing our work Leicester Kidney Lifestyle Team on the relationship between patient activation and perceived functional impairment in #CKD at #ERA23 SAPPHIRE research University of Leicester Leicester's Research UoL Population Health Sciences

Bravo ERA - European Renal Association esp Monica & the Parma office🤩🇮🇹🇧🇪

Fab job #SoMe team led by Hugo Diniz, MD 🇵🇹 🇪🇺👏

Delighted for all but esp. Ana Carina Ferreira & Roser Torra 💗

& super to see the man working hard to make nephrology sexy again😂

Adesso al lago di Como 🍦

Felice lunedì 🥰

#ERA23

“Nothing about us without us!” - Wanda Konijn from the Dutch Kidney Patients Association NVN it’s got to be my new favourite way of saying for #Patientengagement #ERA23