A question for anyone in the #PatientEngagement / #PPI community. I'm helping plan a conference that includes #PatientPartners as speakers, moderators, poster judges, etc. What supports besides payment of expenses & compensation have you found helpful at these events? /1

A fascinating video that shows the subtle and gradual development of #melanoma over time. Melanoma is treatable if detected early. Check your skin regularly and report any changes to your doctor.
the-sun.com/health/1125414…

Important work, and we also need to turn the lens on the invisible costs to patients or the public e.g. while conference attendance can be nice, it may involve extensive planning, preparation, and additional costs beyond what an institution may support.

May is Melanoma Awareness Month. Although largely preventable, melanoma is one of the fastest rising cancers in Canada. Please protect and check your skin to reduce your risk. #melanoma #skincancer
youtube.com/watch?v=_4jgUc…

Here’s a new one:

FAMILY DISCUSSANT

Still searching for the perfect term for the token patient.

US challenges 'bogus' patents on Ozempic and other drugs in effort to spur competition
cp24.com/world/us-chall…

Would medication #adherence improve if the delivery mechanism wasn't a pill?

Can taking #medicine actually be fun? An #art lesson from the #psychedelic #lsd experience.

The First Wave of Blotter Acid Inspired Trippy Psychedelic Art lucid.news/the-first-wave… via
Lucid News

Headwaters Hospital Releases New Patient Experience Framework justsayincaledon.com/headwaters-hos… Headwaters Health Care Centre #Healthcare #Caledon #dufferin

Aside from it being the right thing to do, there is a STRONG business case for the pharmaceutical industry to engage patients throughout the R&D lifecycle #ISMPPAnnual2024

3/14/24 NY Times: ‘What’s My Life Worth?’ The Big Business of Denying Medical Care With Prior Authorizations buff.ly/3Tg1O8L

What is co-production and what are its key principles?

Take a look at our curated resources on Learning for Involvement to find examples of co-producing health and care research: learningforinvolvement.org.uk/topic/co-produ…

Would medication #adherence improve if the delivery mechanism wasn't a pill?

Can taking #medicine actually be fun? An #art lesson from the #psychedelic #lsd experience.

The First Wave of Blotter Acid Inspired Trippy Psychedelic Art lucid.news/the-first-wave… via Lucid News

sue robins (she/her) Patient Commando Dr. Dawn Richards, PhD I calculated today that I have over 250,000 hours of lived experience with juvenile rheumatoid arthritis and other health conditions. I have nothing else to say as that figure has to stand on its own!

Emily Cordeaux explores how people voice+speak up about their care. Her narrative synthesis provides practical approaches 2create space4people 2speak up about their care: org commitment, deliberate spaces, inviting ppl to speak up, language concordant care #ICIC24 IHPME

PRESS RELEASE: Studies reveal MegaSpa is the wrong project in the context of our climate emergency mailchi.mp/9b3612642fa6/p… #topoli #onpoli #Earthday2024 #ClimateEmergency #EarthDay

Sharon Anderson takes the stage to provide us with a framework to action better supports for +inclusion of caregivers in health and social care. Her team developed a competency framework+education4providers. “Caregiving is a social determinant of health.” FamilyCaregivers #ICIC24

Today, we honour Bicycle Day, reflecting on the profound impact of psychedelic exploration. Let's continue fostering understanding and healing in our communities. 📷  #BicycleDay #PsychedelicResearch

For 8 years seniors in 80's & 90's have congregated Wendy’s to light #Shabbat candles share challah & grape juice. This film is about the joy of community & importance of connection in older age while facing the fragility of our mortality via Project UnLonely from Foundation for Art & Healing
artandhealing.org/wendys-shabbat…

Interested in learning about drug discovery & clinical trials that is understandable to patients? Please attend our upcoming CAPA webinar with Dr. Dawn Richards, PhD which is the first of a 3 part series to educate about drug discovery - approval - reimbursement processes in Canada!

More than 100 Ontario patients are speaking out in a new report about user fees being charged in private clinics, with most of the patients being seniors on fixed incomes.

READ MORE:
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