Have #neuroimmune disorder, #transversemyelitis #nmog #ADEM or others?
Give 15 minutes to Tara Duffy neurology student with #ADEM at University of New Hampshire, studying mindfulness and quality of life in these disorders. Survey here: unh.az1.qualtrics.com/jfe/form/SV_bx…
#AutoimmuneAwarenessMonth
Please RT

Edited by Stephen Dobson, Brit Svoen, Gabriella Agrusti, and Pip Hardy , and with contributions from many others 'Learning Inclusion in a Digital Age: Belonging and Finding a Voice with the Disadvantaged' is now available in print and as a free download link.springer.com/book/10.1007/9…

Call for Papers: Palgrave Handbook of Disability in Comics and Graphic Narratives graphicmedicine.org/call-for-paper… via @graphicmedicine

A great description of a terrible condition #chronicpain #pain #transversemyelitis bbc.co.uk/ideas/videos/w…

The #mealsonwheels service is a lifeline to independent living for the elderly and the blind. What are Hampshire County Council Ranil Jayawardena MP Rob Humby Helen Whately doing to find a replacement when apetito leave contract in 2 weeks? RNIB RNIBcampaigns Age UK Age UK Campaigns

HCP or partner supporting Young Peoples health?
Working at strategic/policy level on health inequalities?
Want to ensure YP voices amplified and heard?
Free online training led by YP on YP health inequalities from AYPH charity NHS England
Join and share: eventbrite.co.uk/e/working-stra…

Just frantically packing ready head off to the #11thDST2023 tomorrow. Check out the programme at dst2023.org

And, if you want a sense of what training for a marathon is like, then you might enjoy this little video by Tom Nutt, CEO of Meningitis Now :-) youtube.com/watch?v=FZrK02…

Please RT! (2/2)

Tom Nutt, CEO of Meningitis Now is running the London Marathon to raise funds for the charity. Sponsor him at JustGiving page:
justgiving.com/fundraising/to…

Please RT!! (1/2)

Help! We've been working with Imperial Health Charity on a resource for #healthcaretransition . If you're a #youngperson #parent #ahp #teacher or #clinician working with #youngpeople please rate/feedback on any part of the pilot 11to25hub.com
Please RT to your networks!

It's #RareDiseaseDay !
For 20 years #PatientVoices has helped people share their #raredisease stories.
After hepatic pulmonary syndrome and #biliaryatresia a young woman can still “Look beyond the scar”
patientvoices.org.uk/flv/0607pv384.…
Genetic Alliance UK Rare Disease UK #CareForRare #bodyimage

It's #RareDiseaseDay !
For 20 years #PatientVoices has helped people share their #raredisease stories.
A young person with #EosinophilicEsophagitis #EoE can feel that their life is becoming “Small”
patientvoices.org.uk/flv/1068pv384.…
Genetic Alliance UK Rare Disease UK #CareForRare #CEGIR

It's #RareDiseaseDay !
For 20 years #PatientVoices has helped people share their #raredisease stories.
A mother reflects on her life with a son with #EosinophilicEsophagitis #EoE in her story “Our normal”
patientvoices.org.uk/flv/1062pv384.…
Genetic Alliance UK Rare Disease UK #CareForRare #CEGIR

It's #RareDiseaseDay !
For 20 years #PatientVoices has helped people share their #raredisease stories.
#sclerosingcholangitis and #ulcerativecolitis won’t stop Stuart’s love of soccer “One chance” is his story.
patientvoices.org.uk/flv/0614pv384.…
Genetic Alliance UK Rare Disease UK #CareForRare

It's #RareDiseaseDay !
For 20 years #PatientVoices has helped people share their #raredisease stories.
“Take 2” the determination and resilience of one young person with #sclerosingcholangitis #ulcerativecolitis
patientvoices.org.uk/flv/0608pv384.…
Genetic Alliance UK Rare Disease UK #CareForRare

It's #RareDiseaseDay !
For 20 years #PatientVoices has helped people share their #raredisease stories.
“An invisible illness” cannot defeat the sheer will to live of one young person with #dysautonomia
patientvoices.org.uk/flv/1086pv384.…
Genetic Alliance UK Rare Disease UK #CareForRare

It's #RareDiseaseDay !
A dear friend shared this story of dignity and love despite the anguish of having a child with #Mucopolysaccharidedisease #MPS
“For Issy” is Steve's message for his other daughter.
patientvoices.org.uk/flv/0460pv384.…
Genetic Alliance UK Rare Disease UK #CareForRare

It's #RareDiseaseDay !
For 20 years #PatientVoices has helped people share their stories. Here are some of their #raredisease stories.
What is “Normal” when you’re living with #VonWillebrand anyway?
patientvoices.org.uk/flv/0699pv384.…
Genetic Alliance UK Rare Disease UK #CareForRare

It's #RareDiseaseDay !
For 20 years #PatientVoices has helped people share their stories. Here are some of their #raredisease stories, in their words and voices.
“The best…and the worst” a young person vs #ulcerativecolitis
patientvoices.org.uk/flv/1234pv384.…

It's #RareDiseaseDay !
For 20 years #PatientVoices has helped people share their stories. Here are some of their #raredisease stories.
“Fractured” is one man’s story of #mastcell #mastcell activationdisorder
patientvoices.org.uk/flv/1184pv384.…
Genetic Alliance UK Rare Disease UK #CareForRare