Simon Harris TD accessing #scoliosis surgery is a basic human right.

Spina Bifida & Hydrocephalus Paediatric Advocacy

The Scoliosis Advocacy Network #BackUs Children's Health Ireland Simon Harris TD Stephen Donnelly It’s a travesty, How long before this child is inoperable ?

Eamon Melia CHI Spinal team must review Liam as a matter of urgency.

4 weeks + in hosp due to deterioration & yet no spinal review to date according to mum.

Provisional Surgery Date issued by Children's Health Ireland despite no clinical rv since deterioration.

Simon Harris TD Stephen Donnelly

This is not am image from Gaza this is how the Irish health service treat its own children, If the health minister, Robert Watt or Bernard Glouster had any shame they would resign.

Delighted to Announce -My #Disability (Rights) Bill 2023 - Passed Committee Stage. Thanks to Taoiseach ⁦Simon Harris TD⁩ & Minister ⁦Anne Rabbitte TD⁩ for their Crucial Support - Thanks to all my Supporters & Fellow Senators - A Huge Leap Forward for #Disability Rights ✊

Today the OCO appears before the Oireachtas Committee on Public Petitions and the Ombudsmen to discuss our work and in particular our 2022 Annual Report.

Full statement available here:
oco.ie/library/openin…

When will Liam be reviewed by spinal team ? Simon Harris TD Stephen Donnelly

Weeks & weeks in hospital deteriorating.

Safe care = ongoing review of situation & planning for surgery.

EOS scan - anaesthetic rv - respiratory rv etc.

Children's Health Ireland must step up. Bernard Gloster

Brendan Byrne The Scoliosis Advocacy Network #BackUs Simon Harris TD Stephen Donnelly Children's Health Ireland Bernard Gloster When my son was waiting on his 1st #scoliosis surgery he was described as cachectic.

My son waited 15mths for this essential surgery.

Simon Harris TD was MoH.

Our children can’t thrive when they are left to deteriorate on wait lists.

Pamela Dennehy Claire Cahill Aisling McNiffe 🇵🇸 #Striving #VoteYesNo Stephen Donnelly The Scoliosis Advocacy Network #BackUs Simon Harris TD RTÉ HSE Health Protection Surveillance Centre (HPSC) HSE Ireland Michael Healy Rae Norma Foley T.D JOE DUFFY European Commission So, Liam is disimproving.

When we speak of someone's loved one being in hospital, we say 'Well, she's in the right place.'

The 'right place' = the place where they'll get the treatment they need.

So now that Liam is in the 'right place', are the CHI surgeons going to operate?

A year ago today, myself & Amanda Coughlan were in Temple St to give a presentation to reps from Boston who were conducting an external review.

The families themselves were refused permission to speak, so we were their voice.

Read the closing statement we gave 👇
#backus

Today -Heart Pounding - Bringing my Disability (Rights) Miscellaneous Provisions Bill 2023 to Committee Stage in Seanad - I hope to Progress it to Report & Final Stages by Summer Recess. I will also Introduce an Independent Supports (Rights) Bill on Social Model of Care 2024 soon

Homeric Thinking Aisling McNiffe 🇵🇸 #Striving #VoteYesNo Stephen Donnelly The Scoliosis Advocacy Network #BackUs Simon Harris TD RTÉ HSE Health Protection Surveillance Centre (HPSC) HSE Ireland Michael Healy Rae Norma Foley T.D JOE DUFFY European Commission We are in temple Street since Friday as Liam deteriorated 💔all due to scoliosis ... no infection present ... all the effects of untreated scoliosis in a timely safe way and before it came to this 💔

Emma's child waits for #scoliosis care, neglected by Simon Harris TD Stephen Donnelly failure to ensure safe, timely treatment.

Child after child left to deteriorate on waitlists.

It's a CRISIS! Intervene NOW to stop this suffering! #BackUs Spina Bifida & Hydrocephalus Paediatric Advocacy

Pamela Dennehy Regina Doherty TEDDYS ICECREAM Simon Harris TD Barry Ward 🇮🇪 🇪🇺 DúnLaoghaireTown.ie Bernard Gloster Spina Bifida & Hydrocephalus Paediatric Advocacy Irish Country Living CHi Stephen Donnelly Bernard Mulvany PBP DBN 🥑 NORD The Scoliosis Advocacy Network #BackUs Deepest sigh.., so inhumane.

Pamela Dennehy Regina Doherty TEDDYS ICECREAM Simon Harris TD Barry Ward 🇮🇪 🇪🇺 DúnLaoghaireTown.ie Bernard Gloster Spina Bifida & Hydrocephalus Paediatric Advocacy Irish Country Living CHi Stephen Donnelly Bernard Mulvany PBP DBN 🥑 NORD The Scoliosis Advocacy Network #BackUs I hope you get a better response from him than we did when we desperately needed surgery. Hard to believe children are still going through the same pain & suffering.

Sending our best wishes 🥲

Stephen Donnelly #carecantwait

Simon Harris TD Fine Gael Maria Walsh MEP Sligo Rovers Frank Feighan T.D. What about my child’s scoliosis surgery Simon Harris TD !!!??? My son is 12 snd you promised 7 years ago he would not have to wait more than 4 months for his operations??? The healthcare system is in shambles to the neglect of children and disabled citizens of #ireland #scoliosis

'No child will be left waiting' Simon Harris TD you probably passed it on (like they do with every thing) to Stephen Donnelly so why is nobody helping this family?

Spina Bifida & Hydrocephalus Paediatric Advocacy Simon Harris TD Stephen Donnelly Bernard Gloster Agree, and Children's Health Ireland offering a provisional date is only an administrative action & not based on clinical need at this time.

Liam has deteriorated since his pre op assessment.

Safe care must prevail.

Simon Harris TD Stephen Donnelly direct Ortho CHI to review Liam today.

The Scoliosis Advocacy Network #BackUs Simon Harris TD Children's Health Ireland Stephen Donnelly Dear Lord, that poor, poor child!!! My heart breaks for him, and knowing what a mother's pain feels like in this situation, it breaks for her, too. This is nothing short of state sponsored abuse, in my opinion.

Simon Harris TD - Pamela has asked you to help her son.

He is in much need of his #scoliosis surgery.

Least you can do is respond to her at this time. It’s basic respect & decency.

The Scoliosis Advocacy Network #BackUs have also contacted your office about Liam with no reply. Ombudsman for Children