SEDSConnective(@SEDSConnective) 's Twitter Profileg
SEDSConnective

@SEDSConnective

Sympt.Hypermobility EDS HSD NEURODIVERGENT vol. Charity / health/education/care/work
Chair/Founder Jane Green MBE @JGJanegreen
Patron Dr Eccles @Bendybrain

ID:1085969371208605701

linkhttps://linktr.ee/SEDSConnective calendar_today17-01-2019 18:37:29

6,1K Tweets

4,7K Followers

3,0K Following

SEDSConnective(@SEDSConnective) 's Twitter Profile Photo

😃It's nearly the end of the month. Sign up as member & newsletter for news, events, research.
May is hypermobility month & what a surprise for tomorrow! ! sedsconnective.org
We are the userled, vol. charity for symptomatic hypermobility / neurodivergence

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SEDSConnective(@SEDSConnective) 's Twitter Profile Photo

We are looking forward to welcoming some of our community local members to the 'Rhythms of the Earth' Music making in nature event Wakehurst next week.

We are looking forward to welcoming some of our community local members to the 'Rhythms of the Earth' Music making in nature event @wakehurst_kew next week.
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SEDSConnective(@SEDSConnective) 's Twitter Profile Photo

If anyone has children in Scotland with Tourette's or is travelling there in July /August there is a casting call for children based on the life of John Davidson.
Email [email protected] for more information.

If anyone has children in Scotland with Tourette's or is travelling there in July /August there is a casting call for children based on the life of John Davidson. Email office@laurenevanscasting.co.uk for more information. #CastingCall #Tourettes
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SEDSConnective(@SEDSConnective) 's Twitter Profile Photo

Has anyone who is Autistic, ADHD, Dyspraxic TS or has symptomatic hypermobility, had a sick note whilst employed due to mental /physical health issues ?

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SEDSConnective(@SEDSConnective) 's Twitter Profile Photo

Connections between & members only webinar and Patron BendyBrain: Dr Jessica Eccles
🗓️19th May
⏰from 3.30pm BST
💻online via Zoom
First join as a member here: tinyurl.com/yabekyzu
👉Book here: tinyurl.com/5n7dbtfv

Connections between #LongCovid & #Hypermobility members only webinar and Patron @BendyBrain 🗓️19th May ⏰from 3.30pm BST 💻online via Zoom First join as a member here: tinyurl.com/yabekyzu 👉Book here: tinyurl.com/5n7dbtfv #EDS #HSD #hypermobilityAwareness #dizzy
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SEDSConnective(@SEDSConnective) 's Twitter Profile Photo

⭐Connections between & members only webinar with our Patron BendyBrain: Dr Jessica Eccles

📅19th May
🕝from 3:30pm
💻online via Zoom

👉Register as a member here: bit.ly/4aUYFTA
👉Book your spot here: bit.ly/3QkqoEF

⭐Connections between #LongCovid & #Hypermobility members only webinar with our Patron @BendyBrain 📅19th May 🕝from 3:30pm 💻online via Zoom 👉Register as a member here: bit.ly/4aUYFTA 👉Book your spot here: bit.ly/3QkqoEF #EDS #HSD #hypermobilityawareness
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The Ehlers-Danlos Society(@TheEDSociety) 's Twitter Profile Photo

April is . Studies show that people with joint hypermobility, Ehlers-Danlos syndromes (EDS), and hypermobility spectrum disorder (HSD) have a higher likelihood of being autistic than would be expected by chance.

Research BSMS, led by Dr. Jessica

April is #AutismAcceptanceMonth. Studies show that people with joint hypermobility, Ehlers-Danlos syndromes (EDS), and hypermobility spectrum disorder (HSD) have a higher likelihood of being autistic than would be expected by chance. Research @BSMSMedSchool, led by Dr. Jessica
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SEDSConnective(@SEDSConnective) 's Twitter Profile Photo

Our Chair was at the House of Lords this week at event hosted by Chartered College of Teaching where she is a Fellow. She was supporting our advocacy on neurodivergence (Autistic ADHD Dyspraxic Tourettes) & (symptomatic hypermobility issues (EDS pgJH) in education

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SEDSConnective(@SEDSConnective) 's Twitter Profile Photo

Children & young people also adults are conditioned to mask physical pain and health issues. They learn to MASK pain. Here are some tips from Autistic/ADHD Educationalist jane Green MBE Jane Green MBE FCCT connective 😶 from her article Tes and still are relevant

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Amy Rochlin(@amyrochlin) 's Twitter Profile Photo

I'm seeing the world of , , , , & more take center stage so researchers, clinicians, tech, biotech, govt. & business leaders recognize that this MASSIVE unmet medical needs to be addressed NOW. We are just getting started. Metrodora Foundation

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SEDSConnective(@SEDSConnective) 's Twitter Profile Photo

Ruth Swailes Suzanne Zeedyk Naomi Fisher Pam Jarvis Dan Wuori Cindy J., Ph.D. KT T - 🕊️ 💚 🇪🇺 Dr Aaron Bradbury Dr Helen J not moving on Williams 🇪🇺🐦 Sue Cowley For neurodivergent children it is crucial to understand how physical co-occurring health affects executive functioning (brain fog, masking pain, dizziness, palpitations, physical anxiety) . There is a paper on this if interested.

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