More evidence on video as useful method for informing people about treatment

Especially useful for complex consents I think - this study with CAR-T, and look out for results of SHORE-C work on genomic expression profiles videos

jnccn.org/view/journals/…

Hear from SHORE-C's Lesley Fallowfield in this new article from BBC Sussex that addresses the gaps in communication, information & fairly basic support for patients with secondary (metastatic) breast cancer.
bbc.co.uk/news/articles/…
Catch the interview tonight on BBC South East!

BSMS Year 4&5 students!

SHORE-C are looking for participants for a study exploring the use of virtual learning in delivering a training module on navigating angry conversations in a healthcare setting 🏥

You will receive a £25 voucher 💰

Find out more 📲bit.ly/4bkaVgP

It’s breast cancer awareness month. Please view this short film below if you don’t know what to say or do when someone you love has advanced breast cancer.

There is still time to complete our <5 minute survey on which neurodegenerative condition patient groups might benefit from a gastrostomy tube patient decision aid. Click the link if interested forms.office.com/e/Z29u2cME33 Royal College of Occupational Therapists

Read our new open access paper on strategies for recruiting women with ductal carcinoma in situ to the LORIS study, which is comparing conventional surgical treatment with active monitoring rdcu.be/doz38

Who do you think would benefit from a gastrostomy tube patient decision aid? If you work with people who have a neurodegenerative condition, we would love you to let us know in our 5 minute survey forms.office.com/e/Z29u2cME33. This follows on from our MND PDA gastrostomychoice.co.uk

The ever lovely Elizabeth Hurley here at Estée Lauder HQ UK at start of Breast Cancer Awareness month. She does so much for ⁦The Breast Cancer Research Foundation⁩ and support for our research ⁦SHORE-C⁩ @BSMS. (Video courtesy of Damian Hurley)

When someone you love receives a metastatic breast cancer diagnosis, it can be hard to find the right words. With BCRF support, Dame Lesley and her team released a new film for families and friends that features real quotes and anecdotes from MBC patients.
bit.ly/3QZMJsw

Here's a short film about the DiAMoND study and the resulting 'Gastrostomy Tube - Is it for me?' patient decision aid for people living with MND. The open access paper is available here tandfonline.com/doi/full/10.10…

New research shows significant gaps in support for secondary breast cancer patients.
A survey conducted by SHORE-C & funded by Make 2nds Count concluded that as more people now have a genuine chance of surviving for longer better support is needed.
📲bit.ly/3rVaS91

Dear Followers - thanks for helping to get film 'They just don't know what to say or do' when someone has advanced cancer, out to the general public. Here is QR code which some find easier than YouTube link:-youtu.be/wPMmPlH1AGk

SHORE-C has an opportunity for people who have/had #breastcancer to share their views in a telephone interview on a new NHS pathway for genetic testing. Experience with testing is NOT required. More information? please DM or email [email protected] Richard Simcock

SHORE C They just don't know what to say or do youtu.be/wPMmPlH1AGk via YouTube

It’s hard to know how best to help a friend or family member with advanced or secondary breast cancer. This short film highlights some of the things patients told us helped or hindered

Patient perspective on living with MBC (LIMBER): impact on their lives, behaviors that they found helpful & not, & the gaps in information, care & support highlighted. 44% didn’t have CNS & only 11% offered a trial Lesley Fallowfield SHORE-C Lesley Stephen Make 2nds Count

Read our latest paper about the lived experience of metastatic breast cancer: link.springer.com/article/10.100… Carlo Palmieri

A vital part of the POSNOC trial is the team SHORE-C who handle our quality of life questionnaires. This data will help us understand the impact of your treatment on your physical, emotional, and mental well-being. #clinicaltrials #BreastCancerResearch NCTU

Difficult health conversations are no game – but VR could transform how they unfold - read the BMJ Leader blog by SHORE-C's Lesley Fallowfield on how VR is preparing doctors to handle difficult conversations. Bodyswaps® RoySocMed.

📲blogs.bmj.com/bmjleader/2023…