Dr Will Thomas ran a marathon on Sunday in an incredible 3.5hrs. After months getting up super early to train. We are so grateful for his support. justgiving.com/page/will-thom…?

On this very #rarediseaseday we are delighted to launch our new website ttpnetwork.org.uk thank you to Takeda Pharmaceutical and AppCentric for your support and expertise

This is such an innovative film and will be a fabulous resource for patients and their families. We are proud to have been invited to the premiere!

Our Christmas fundraiser has arrived! visufund.com/ttpnetwork-chr…

Today we celebrate World Mental Health Day 💛
A diagnosis of TTP can have a significant impact on mental health, so it’s important to remember to reach out if you’re struggling.
You are never alone 💛

ttpnetwork.org.uk

Please join us Thursday at 7pm!

Thu 12 Oct 7:00 PM - 8:00 PM: Webinar - October 2023 tickettailor.com/events/ttpnetw…

FAO Patients (or caregivers of under 18's) living with TTP based in Europe or Canada:
Research to gain an understanding of the experiences of people living with TTP in Europe and Canada. If you wish to participate, please scan the QR code or visit bit.ly/3CJU5rM

These three amazing individuals were among 49 who were congratulated today for their commitment to blood donation. I was honoured to thank them in person. J x. NHS Blood+Transplant Give Blood NHS 🩸🩹

Thank you to every single person in the NHS who helps our TTP patients to survive and thrive.

We're proud to announce the recipients of the #ISTH2023 Esteemed Career Awards: Robert Andrews, Ph.D.; Ampaiwan Chuansumrit, M.D.; Maureane Hoffman, M.D., Ph.D.; Menno Huisman, M.D., Ph.D; Marie Scully, M.D. isthcongressdaily.org/articles/ArtMI…

Sharing two studies - mailchi.mp/142b2f0d3d6b/2…

The SHOT team would like to wish all blood donors a happy #WorldBloodDonorDay 🎉

You are amazing and save lives every day! 👏

We are so grateful that you 'Give blood, give plasma, share life, share often' ❤

#WHO #BloodDonation NHS Blood+Transplant SNBTS-Scottish National Blood Transfusion Service Welsh Blood 🏴󠁧󠁢󠁷󠁬󠁳󠁿 NI Blood Transfusion

Because you give, we live. Thank you!

There is time to register for the UCL #TTP bridgathon TTP Network ttpnetwork.org.uk/ttp-london-bri…

This website plus the link below can help with supporting you when travelling with #TTP #TTP Aston23 TTP Network Please check your documents on return from the insurers to ensure they've accurately recorded your diagnosis. ttpnetwork.org.uk/travel-transla…

If you would like to volunteer to help with TTP Network with their events or social media or enrol in the buddy system for others who have #TTP drop them an email at the below addresses #TTP Aston23

Congratulations to the team TTP Network for the amazing day today in Birmingham. 25 years since Jo first wrote to Woman Magazine to ask if anyone else out there had experienced #TTP . What a difference the group has made to so many, preventing isolation #RareDisease #TTP Aston23

The ConNeCT study (single site) findings reveal that less than 50% of people with #TTP registered were able to return to the same employment they were in pre diagnosis. Revealing the importance of social support within the MDT HaemSTAR 💙 NIHR #TTP Aston23 TTP Network

ConNeCT study reveals that individuals with #TTP are at a statistically higher risk of poor emotional health & depression. This was reflected in patient feedback today & shows the importance of #psychology involvement and a holistic approach to care #TTP Aston23 TTP Network