Join Jane, who has cystic fibrosis and professional experience in supporting people with work and employment, to explore how you can demonstrate to employers the valuable skills that life with CF has helped you develop.

Book your place today!

➡️ ow.ly/YB0W50ReSlL

Our wonderful trustee Neil Priscott invites you to an exciting afternoon of cricket in support of Cystic Fibrosis Trust.
Don't forget to get your tickets now!

➡️ cysticfibrosis.org.uk/celebratory-cr…

Due to our cross-infection policy, we are unfortunately unable to host guests with CF.

We are excited to offer a series of baby massage workshops for parents and babies with CF who haven't yet started crawling.

The workshops will take place on the 25 April, 2 May, and 9 May at 10am.

Email [email protected] to find out more.

ow.ly/ggCt50RbhMZ

CF STORM is a large study aiming to find out if people taking Kaftrio can safely stop taking some other treatments.

The study is on its way to meeting its recruitment target but still needs more people to join them!

ow.ly/Ma8U50RbaAx

There are currently short-term issues with supply of Creon (particulary 25,000) in some areas. We are in contact with the NHS, Viatris (the company that makes Creon), and CF clinicians, to minimise the impact of any shortages.

For more info ➡️ ow.ly/2tmk50RbC1t

Since 1964, Cystic Fibrosis Trust has been here to support everyone affected by CF.

As we continue to mark our 60th year, we heard from Jonathan, Rob, Charlotte and Stuart about their lives with CF and how things have changed.

youtube.com/watch?v=ps5MG3…

💛Fab news ブラック★ has recruited the 500th person with #cysticfibrosis to this trailblazing study.The 1st UK CF stopping trial to understand if ppl who are stable on Kaftrio aged 6+ can maintain health w/out some burdensome daily nebulisers. True team work across the community👏

Loads of fun online events are happening over at CF Trust Youth this springtime! 🎮

Check out our calendar of one-off workshops for children aged 6-12 with #cysticfibrosis (siblings are also welcome to sign-up!)

Email [email protected] to find out more.

Wishing our ambassador James Dunmore a very happy birthday!

Thank you for all you do to support Cystic Fibrosis Trust! We can't wait to cheer you on at the London Marathon later this month.

#cysticfibrosis #londonmarathon

Have you heard about Managed Migration to #UniversalCredit ?

❗If the deadline on your Migration Notice is after 8 April, you may want to delay your claim for Universal Credit until after this date when benefits rates are due to rise.

Find out more:

➡️ ow.ly/H8Wb50R9oOn

Huge thank you to everyone who voted for our video, 'You don't see CF', to win a @smileycfa award! We are proud to share that we were voted one of the bronze winners of the 2024 People’s Choice.

Check out the award winning video now! 💛
➡️ ow.ly/1jGy50R9aVh

Pam, the founder of the amazing CF Mamas, has a quick message for you about the upcoming CF Mamas and Papas Meet Up.

Get your tickets now: cysticfibrosis.org.uk/cf-mamas-and-p…

Are you a parent of a child with #cysticfibrosis (CF)? The CF Mamas & Papas Meet Up is an opportunity to meet other parents of children with CF from across the country.

Join us on Saturday 27 April 12:30-3:00pm in London.
Get your tickets now: cysticfibrosis.org.uk/cf-mamas-and-p…

Last week the CF AMR Syndicate published a report on the difference their patient-centred ‘Therapeutic Product Profiles’ has made, a wishlist for making new medicines to treat CF lung infections.

Read more about the TPPs on CF AMR Syndicate’s website.

ow.ly/FzCP50R7i5S

“I like to listen to people’s thoughts and lives, and I suppose, in the main, that is a reflection of my pod too.” - Stephen

goodpods.app.link/slIgXn6uqIb

Grateful that CF AMR Syndicate LifeArc and Cystic Fibrosis Trust already working hard on reducing the risks and improving treatment options for people with #cysticfibrosis 🤝💛 #collaboration

Are your kids looking for something to do over the holidays? We've created some fun activities for children with CF to do with their siblings and friends!

➡️ ow.ly/a1Ni50R49L7

#holidayfun #holidayactivity #cysticfibrosis #colouringin #artsandcrafts

Happy Easter to all of our followers who celebrate!

✨Fundraiser Friday✨
This week, we want to say a huge thank you to all our amazing branches across the country for all the amazing work they have done this year! Your dedication has raised over £100,000 to fund life saving research and support people affected by #cysticfibrosis

We're wishing everyone celebrating a happy and peaceful Easter and Ramadan.

Our social media and helpline will be closed over the long weekend from 4pm today and will reopen on Tuesday 2 April at 10am.
For immediate support please contact your CF team, the Samaritans or CALM.