CanChild researchers report on the #livedexperience of Healthcare providers #HCP who are parents of children with #disabilities - a valuable and often under-utilized perspective sciencedirect.com/science/articl…

📢 The Healthy Trajectories team is excited to offer a tailored Family Engagement in Research (FER) course for Australian researchers and family engagement partners, beginning in July 2024!

👉 Learn more about the FER course on our website: healthy-trajectories.com.au/news-and-event…

Thread: As registration is now open for the Family Engagement in Research Course, (ferprogram.ca) you might be wishing to speak to a human being as to whether or not the course is right for you! We will be hosting an open house to answer all your questions!
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📢Happening tomorrow so there's still time to register to learn about youth and family engagement in #ClinicalTrials (i.e., as team members/collaborators, not as participants). Will you join us?👇

⭐️⭐️ Join us in the CanChild Kids Brain Health Network Rae Martens -Family Engagement In Research Program Family Engagement in Research Course this Fall or Winter! ⭐️⭐️ McMaster University Continuing Education

Apply here: redcap.link/FER2425

We have lots of fun planned for you - kicking off the day with a Research Keynote about family engagement in research from Sam Micsinszki and Sara Pot of the Rae Martens -Family Engagement In Research Program 👩‍👩‍👧‍👦

Coming up next Monday is our FER Ideas Incubator. A monthly opportunity for those who do the work of #patientengagement to come together and plot potential solutions to common challenges in the work. Monday March 11, 7pm EST
Register here: eventbrite.ca/e/fer-ideas-in…

Deadline for the Frank Gavin Patient Engagement Leadership Award is March 28 - nominate yourself or someone you know!

This year they will select two recipients: a parent, caregiver, or family member + a youth or former pediatric patient. #EmpoweredYouth

Check out this informative article on brokers and boundary spanners! 📚 It discusses the roles of support practitioners, implementers, intermediaries, knowledge brokers, funders, and the field of #ImpSci . Don't miss the amazing infographic! ⤵️
bit.ly/3pYI4I5

Every year in 🇨🇦, 14,000 children die from a #RareDisease .

The #GoC , through CIHR, is investing $20M to establish a national pediatric rare disease network, led by Dr. Thierry Lacaze-Masmonteil & in collaboration with McMaster University Department of Pediatrics researchers. ⬇️

pediatrics.healthsci.mcmaster.ca/mcmaster-pedia…

Our research-to-care model integrates research, translation, and patient-centered care to break new ground to address challenges faced by rare disease patients in Canada. 🤝For more information, view the official launch story at lnkd.in/gW-DrcfC #CRDNLaunch

Thread: Today is #RareDiseaseDay and collaborative engagement in research matters. The FER program is honoured to support the work of RareKids-CAN alongside the many who endeavour to support hope and better wellbeing for all impacted by rare diagnoses. /1

We are excited to announce that CanChild will be exhibiting at the #pacrim2024 , the 39th Pacific Rim International Conference on Disability and Diversity, on February 27th and 28th!

We hope to see you there and connect with you online!
#CanChildPacRim2024

Let us join hands to change practice in childhood disability! Join the #IAACD Community of Practice session with Peter Rosenbaum
'Labelling with a Diagnosis or a Functional Description of Children: Isn't this a silly question'
Jan 30 1pm UK Time
Register us02web.zoom.us/meeting/regist…

Are you a service provider to, or a #CareGiver of, someone with a #Developmental concern in Canada?

Join the #FWords Foundations Course study!
➡️canchild.ca/en/research-in…

CanChild, McMaster University, Hamilton Health Sciences, Kids Brain Health Network

🍁💬 Heads up: check back next week for the official launch of the public engagements that will help refresh Canada’s Strategy for Patient-Oriented Research. #SPORSRAP

Calling all service providers who work with children with neurodevelopmental disabilities!
Register now: bit.ly/InterestInEnvi….

For more information, email Debbie Hughes, Research Coordinator, at [email protected]

Are you a service provider to, or a family member (parent/caregiver) of, someone with a developmental concern in Canada?
If so, we invite you to be part of our F-Words Foundations Course study!

Contact Sarah, [email protected], for more information.

#childdevelopment

The ENVISGE-SP Program is recruiting service providers (SPs) who work with children with developmental challenges, delays or disabilities and their families. Our aim is to pilot a series of five online workshops for service providers.
canchild.mcmaster.ca/surveys/?s=KXT…

Are you curious to know if the Pathway is a for you? If you've been engaged in healthcare or healthcare research as a person with lived experience for a lengthy amount of time, we'd love to see you there!