We want to support chronically ill & disabled people with this. We'll be running some JOURNALISM TRAINING SESSIONS via Zoom this month, to assist people in writing articles & pitching #MEAwarenessHour . If you want to register your interest, email hello(at)thechroniccollaboration.com

Finally, we spoke for an hour today with the father of a young woman called Carla: currently living with #SevereME that an NHS hospital is ignoring. She is extremely unwell repeatedly losing consciousness, unable to eat, yet the hospital is refusing to follow #MEAwarenessHour 1/2

Well as if yesterday wasn't enough Twitter has now turned #BringMillieHome #DontLetMEDie into a news topic on its 'explore' function: a brief overview & then a selection of all our tweets. For the first time we may have something to thank Elon Musk for 😱
twitter.com/i/trending/177…

My simple message is the world needs to wake up to Myalgic Encephalomyelitis.

I was hospitalised in 2006 it was horrendous. Lot of the treatment questionable. I live with the trauma now.

How is the treatment still like this 18yrs later?
#BringMillieHome #DontLetMEDie
GMC

Millie's family are incurring huge costs surrounding the terrible situation she is currently in.

If you can, please donate to their crowdfunder to support them through this awful process. We must #BringMillieHome #DontLetMEDie
justgiving.com/crowdfunding/b…

Why is #MyalgicEncephalomyelitis the only disease where guidelines can be completely ignored in favour of a psychological diagnosis that harms patients? We’ve seen this time and time again
#BringMillieHome #DontLetMEDie
GMC
@rcphysicians
Royal College of Psychiatrists
Victoria Atkins
Wes Streeting MP

The NICE guidelines state that ppl with #severeME may need an extremely low level of stimulation, someone to communicate for them, and a feeding tube. Yet Millie is detained in an excruciating environment, forced to communicate herself, and denied a feeding tube #BringMillieHome

Everyone who has #SevereME knows that what’s happening to #MillieMcAinsh could happen to us. We shouldn’t have to fear for our lives in the establishment that’s supposed to save our lives. We love you Millie, we are with you and we are you #BringMillieHome #DontLetMEDie GMC

This is unbelievable. #BringMillieHome and #DontLetMEDie are already trending at number THREE please keep going Millies mum and sister are so pleased 💖

Postcode lottery to be able to be fed via an NG tube in your own home? As someone who was fed via an NG tube from home due to severe ME I find it shocking and sickening they won’t allow Millie to be fed at home because of her postcode #BringMillieHome #DontLetMEDie

There is now a live protest outside the hospital for #Millie with the request to #BringMillieHome and #DontLetMEDie

How in 2024 are severe ME patients still not safe in NHS hospitals?! Please don't let 18 year old Millie die like Maeve Boothby-O'Neill and Merryn Crofts did. Please learn from the mistakes made GMC Royal College of Physicians Royal College of Psychiatrists #BringMillieHome #DontLetMEDie youtu.be/pobf0RPlJuw?si…

Millie is in 🏥 suffering from gastroparesis caused by severe #MyalgicEncephalomyelitis . Drs insist she has an eating disorder. There's a risk she could starve to death if she's forced to stay there + not treated properly. Pls #BringMillieHome . #DontLetMEDie GMC Royal College of Physicians

Sophia Mirza was wrongfully sectioned in 2003 because doctors didn't understand #MECFS . This caused a deterioration which ultimately led to her death. 20yrs later and it happened to Millie. It has been lifted but Millie continues to be mistreated.

#BringMillieHome #DontLetMEDie

How many more young women need to die for NHS hospitals to stop abusing #SevereME patients and follow the #NICEGuidelines ? One day the medical community will look back at these tragedies with deep regret #BringMillieHome #DontLetMEDie GMC @rcphysicians Royal College of Psychiatrists

It has been proven that Graded Exercise Therapy is not a successful 'treatment'. It's been proven that M.E. is a neurological condition. So why is Millie being treated like her condition is psychiatric? GMC Royal College of Psychiatrists
Royal College of Physicians
#BringMillieHome #DonntLetMEDie