Reposting my reply for anyone Professor Garner has blocked. #MECFS #pwME #pwLC #LongCovid #chronicillness #MyalgicEncephalomyelitis
An opportunity to raise the multitude of issues experienced by people with #MyalgicEncephalomyelitis in the Westminster Hall Debate today. Thank you to all who participated ñ, Sajid Javid for lodging the debate & Carol Monaghan MP 🏴 🇺🇦 for summarising before Ministerial response
£8 million research spend over 10 years with [sic] 1.3 million people affected.
£800,000 per year
61.5p per person per year. Ish.
Eesh!!
#ME Debate #pwme #ME #MyalgicEncephalomyelitis
Thank you Andrew Gwynne MP on behalf of #pwME for speaking at today’s Westminster Hall Debate when you are suffering with Long Covid. You are a true ally. We hope you are able to rest and recuperate.
NHS NHS England #SevereME Department of Health and Social Care
#MyalgicEncephalomyelitis #VerySevereME
New Perspective! Epigenetic reprograming in myalgic encephalomyelitis/chronic fatigue syndrome: A narrative of latent viruses.
🔗doi.org/10.1111/joim.1…
#MyalgicEncephalomyelitis #chronicfatiguesyndrome #EBV #EpsteinBarrvirus
I was diagnosed with #ME #MyalgicEncephalomyelitis in 2007. I'm lucky that my GP is supportive but there is no treatment available. Paracetamol and rest. How can that be right for 17 years? #ME debate Sajid Javid
🌻 Share Like RT posts during #MEAwarenessHour in 12 hours time🌻
20:00 BST 21:00 Europe CEST
Talking all things #MyalgicEncephalomyelitis
#pwME please sign/RT letters
organise.network/actions/petiti…
UK Parliamentary Debate today
#ExposeMENow
Poster credit: Lisa_Cat 🙏
When the early realisation hits-there’s no treatment nor cure for #MyalgicEncephalomyelitis its traumatic enough to process
but
when still having to create innovative ways to overcome the stigma/indifference
25yrs later
IS “one of the greatest medical scandals of this century”
One person in a Facebook group has done this summary of Dr Speight's upcoming trip to Ireland.
irishmecfs.org/blog/dr-speigh…
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Thank you Carol Monaghan MP 🏴 🇺🇦 for your ongoing support of #pwME today’s Westminster Hall Debate & via the APPG & mentioning plight of #VerySevereME & urging publication of Department of Health and Social Care report.
NHS NHS England #SevereME Department of Health and Social Care
#MyalgicEncephalomyelitis
We’ve 14 #ME Awareness events happening in N.I. in May this year! The desperate situation for est 7500 patients & rapidly growing numbers, takes desperate measures-Join us!
Detailed list of events here: 1drv.ms/w/s!AjEToPrFeT…
#BeAVoiceforME #DiscoverME #MyalgicEncephalomyelitis
DAY 1 - ALL GONE
This is the harsh reality when you become ill with a chronic illness like M.E. It feels like everything in your life has gone.
#MyalgicEncephalomyelitis #MEawarenessmonth #MECFS #MillionsMissing #MEwarrior #SevereME #VerySevereME #NEISvoid #LongCovid #pwME
Thank you Carol Monaghan MP 🏴 🇺🇦 for your ongoing support of #pwME today’s Westminster Hall Debate & via the APPG & mentioning plight of #VerySevereME & urging publication of Department of Health and Social Care report.
NHS NHS England #SevereME Department of Health and Social Care
#MyalgicEncephalomyelitis
BBC have admitted that #DragonsDen #Accuseeds episode didn't meet editorial standards...
#pwme #ME #MyalgicEncephalomyelitis
Thank you Margaret Hodge for speaking on behalf of #pwME at today’s Westminster Hall Debate. We agree that we need a firm publication date on the Delivery plan from Department of Health and Social Care.
NHS NHS England #SevereME
#MyalgicEncephalomyelitis #VerySevereME
