Noted your point about Office for National Statistics (ONS) showing 65000 children with #LongCovid . Possibly one of the greatest areas of policy neglect/denial

Long Covid, apart from all the other horrible things, is a process of ongoing grief. How does one get used to endlessly grieving one's own life?

Feels like we’re building up a head of steam on this subject now.

TIME's list of the 100 Most Influential People in the world is out. I'm honored, delighted, and grateful to be a part of this incredible group #TIME100 🙏🏼🙏🏼🙏🏼 TIME
time.com/6964230/akiko-…

Excellent article on the subject of viral persistence and current state of play regarding (US) antiviral trials for Long Covid.

science.org/content/articl….

And also very useful for those with Long Covid who fit ME/CFS criteria (ie fatigue/PEM, pain).

I’m somewhere between moderate (during a good week) and severe (the rest of the time).

Great explanatory thread!

This really is fantastic work.

It’s the building blocks being laid down that will ultimately help us understand the mechanisms at play for each of these phenotypes/pathologies/symptom drivers (and from that comes successful diagnosis via tests and treatment design).

Re the importance of phenotyping and biomarkers in my latest vid.

The worst part of LongCovid might actually be the occasional day when the punishing exhaustion, chronic pain, & misery lifts for a day or two. You have a little extra energy, & it’s seductive. You’re able to get out & feel like you’re part of society again for a brief moment in…

Autoimmunity in Long Covid and POTS academic.oup.com/ooim/article/4…

Look, I’m always perfectly happy to accept interventions like talk therapy and brain retraining might be effective for any range of conditions. My only requirement is for sufficient data supporting the claim. Anecdotes, positive though they may be, need not apply.

Captain Picard Captain Picard

I've been busy the last week or so, you know, actually working the fucking problem and so I was unable to immediately react when the same old clown car of 'experts' (i.e. clinicians on twitter who have not actually read or understood the literature on #LongCOVID ) tagged this 1/

Per Buer 🌈 Shaney Wright My bet: viral persistence present in many both w & w/o LC. Difference is those with previous atopy/orthostatic intolerance/connective tissue disorder more likely to have the aberrant immune / NS response which triggers metabolic madness (ie fatigue/PEM) & other LC symptoms.

I can't accept Drum & Bass. We need Jungle!!!

Jordan got COVID in January 2022, & his life hasn’t been the same since.
He shares how his life has been impacted by long COVID & urges Victorians to stay ahead of the virus with protective steps.

Learn more about the symptoms & how to stay safe: go.vic.gov.au/3R9GosU
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A wonderful paper! A couple of takeaways

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